posted
Just picked up test results for Daughter.........UGH. Her Thyroid Peroxidase is 567 normal being 0 - 34. Last time it was 433 and LLMD put her on Medication.......
I think it isnt working!!! What is going on??? I am about to have a nervous breakdown. There are some other things on here that are off.
Nothing like this Thyroid though. Kind of late to call LLMD or the MD we see here in Vegas........
go into their THYROID area; normally there is a whole page of a variety of things related to thyroid, and you click on what you want to read about. it's user-friendly; great medical dictionary as well.
discusses meds too! good luck! I feel your apprehension; just try to relax. Right now, no news is good news!
keeping you in my thoughts/prayers tonight and this weekend; post what you find out ok Cathy!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Cathy, I wish I could help interpret things for you; Carol_PA is a nurse.
Try to remember there is nothing you can do about it tonight. Nothing bad is going to happen to your daughter tonight, but tomorrow it will be very important to reach her docs as it is Friday, and you don't want to be worrying all weekend.
Try some relaxing music, a hot bath, try to let go of it for tonight, because nothing is going to get worse by morning.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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They tend to be very Armour/HC oriented, but don't let that stop you from going there and learning.
The people at both sites have a great deal of experience with thyroid stuff and love to share the knowledge they've acquired from that experience.
There's excellent information at both those sites and welll worth the vist.
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yes everything you read could be true....
What also could be true is that the spirochetes are messing around with your daughters thyroid.
Remember that it gets into EVERYTHING!
Most of us have chronic fatigue that is caused by the lyme infection of certain hormone secreting organs and we can't GET the dang test to come up positive.
So, you actually may have a seperate problem with your daughter or, it's good ole Bb.
Not to worry though. Like the folks up there said....get to it right away but don't worry so much...
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
Icey, I don't have the thryoid answers ..... but I know you need to do something for yourself today. Treat yourself to something you like! You deserve it and you need it.
Hang in there, you are taking great care of your daughter and grand-daughter.
Lyme has messed with my thyroid, too ..... but I don't understand much about it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
How old is she, where does she live? What does she do?
Posts: 442 | From Biddeford, ME | Registered: Nov 2007
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bettyg
Unregistered
posted
ice, i'm checking in on you, DAUGHTER, and active g.daughter! so glad to read more replies; going to bed, just wanted you to know your family is in my prayers!
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Dear Ice
I have not had to deal with thyroid problems so no experience to pass on.
I have, however, dealt with and had extremely good success with my illness by treating the whole body. "Fix the terrain and you will fix the disease"
Please go to www.acam.org and see if you can find a medical doctor in your area who believes in finding causes and fixing them rather than medicating symptoms.
There is an answer out there, you just have to be persistent in finding it.
My prayers are with you and your daughter.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
My numbers got as high as your daughters, but I do know that when my thyroid started going whacky, it took a lot of experiementing with meds to get the correct dosage and the right type of med. Sort of the same process that diabetics go through in getting the proper insulin dosages.
This was one of my diagnosis's when I had no idea why everything in my body was going out of whack, but once being diagnosed with lyme, my LLMD said that it's VERY common that the thyroid gets attacked.
He said with proper treatment, depending on the damage, I may even be able to totally get off the meds. Hasn't happened yet, but I'm still in treatment and they keep checking the thyroid and even since Lyme, I've had to change dosages.
Having a sick child is scary, scary, scary! Hopefully you have found a doctor that can help her get the thyroid regulated but also if you know she has lyme, I would be getting that treated at the same time.
If she hasn't been tested, it may be worth your while to atleast get it ruled out by a LLMD. Good luck and keep us posted.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I was also going to say it looks like hashimotos.
My mother has this and controls it with meds.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Maybe have thyroid antibodies tested & if positive, ask yourself what seems more likely - your immune system attacking your thyroid "just because" or your immune system attacking a chronic infection that has become entrenched in your thyroid tissue.
Posts: 246 | From Grass Valley, CA | Registered: Jun 2007
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posted
I am so sorry you are dealing with this my 12
year old came back with a test like that when he
was about 9 or 10. Even
Dr J wouldn't treat his thyroid. Finally he is
being treated with Armour. They consider it
"Auto Immune Thyroid Disease" But that is all I
know I have just been told that it is the lyme.
My 15 year old is also on Armour. And I am on
Levothroid. The day my LLNeurologist game it to
I did more in 3 days than I had done in 3 years.
You are lucky that she is atleast getting
medicine. I was always within normal limits but
the lowest and it took me 5 yeaars to get it.
Does a Pediatric Endocrinologist treat her thyroid
or is it her LLMD?
Hope you get some answers soon.
While our kids numbers are way off the charts. I know over the last few years they did raise the numbers to about double because it was just like the Co2, the within normal limits is too low.
Best wishes, lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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posted
Notice "controls it", not cures it. Many people on MP, including some diagnosed with Hashimoto's Thyroiditis, no longer need to take any thyroid medication!
Posts: 246 | From Grass Valley, CA | Registered: Jun 2007
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