SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I am working on an article now with a doctor that treats CFS, FMS and similar chronic illnesses. If you have questions that you might find interesting to ask, please let me know. I am hoping to get clarification on IgG being an indication to treat or not treat viruses, for example. If you have other questions that might be good candidates for this next article, please feel free to ask. Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I know that chronic means "ongoing". I am wondering how a doc might further explain the term. Does it mean ongoing forever? Does in mean for a long time and then you can recover ?
I can never get a straight answer from a doc on this question.
Thanks, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Robi,
Thanks for the question. I will see if I can work that into the article. I do think it is a difficult question to answer but definitely one of interest.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Most people with CFS and FMS have elevated ANA titers. I want to know if, with antibiotic treatment, can the ANA be brought down to the negative level?
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Here's a question from someone with multiple illnesses (see my name!):
Why do so many doctors insist on lumping together CFIDS, chronic fatigue, and fibro when, in my experience, the levels of disability are radically different and the treatment and testing strategies really vary?
It skews treatment, as doctors tend to refer to CFIDS as "chronic fatigue" (which afflicts 25 percent of the population and doesn't even relate to CFIDS), treat it along with fibro, and miss the worst patients.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Scott, yes if the questions are open to viral issues, I have a few questions.
I am glad you are checking into the IgG vs IgM matter of treamtent or not and with WHICH antiviral? Different Md's have differing opinions, it is confusing. If you can show him this article (link below) and what the ID MD at Stanford says and I quote: "Many physicians beli eve incorrectly that an adult with no IgM antibodies, the infection must not be active. " - (4th paragraph)
Results from Focus labs read PAST EXPOSURE if the IgG only is positive. Lots of confusion with this.
But most of all, I'd like to have the "list" of symptoms for active viruses, do they cause lesions on the peripherial nervous system and if so can they heal with antiviral treatment.
1). Corticosteroids roll in releasing these viruses. 2). Which antivirals for which viruses does he prefer and recommend. 3). Why do people with LD & viruses herx harder than people w/straight - do abx or inflammation from herxing worsen active viruses. (There is a connection).
posted
Hi Scott, What about those of us who have had lyme for a long time and our Igg has been compromised? We are unable to develop antibodies to certain infections.
-------------------- "We can easily forgive a child whom is frightened of the dark: the real tragedy is when men are afraid of the light." Plato Posts: 37 | From OuterBanks NC | Registered: Apr 2007
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
lymebytes, it will be for an upcoming PHA. Probably 3 issues from now.
I am not sure what the last question on compromised IgG means. Maybe you can expand on it?
Good questions guys. I will certainly attempt to incorporate some of these. Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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