posted
I just found out that I tested positive via antibody tests for both. It's interesting b/c they are both autoimmune diseases, and I had neither before Lyme/Babs. (Or at least I didn't know it!)
My LLMD said it's "possible" that the infections caused both of them but more likely "genetic."
Any opinions here? No one in my family knowingly has either disorder.
Can Lyme trigger such auto-immune problems? It certainly seems feasible to me, but I wonder how common that is.
I can't believe pasta and cookies are forever gone! But good thing I'm Japanese and like my rice
I will start a gluten-free diet for Celiac's and also try Armour thyroid for Hashimoto's.
I'm a little pleased to see abnormal conditions like this, anything that helps explain why I sleep all day, constantly shiver, have elevated temp daily, in addition to usual Lyme neuro symptoms.
I gained 10 pounds, weigh more than ever, even though I subsist on less than 1000 calories a day! Typical Hashimoto's, I'm told.
I'm really hoping the new diet will help. Anyone had success here? How long until those villi start absorbing stuff better? It all reminds me of Leaky Gut, I don't really understand the difference.
BTW, I just had a B-12 shot and feel pretty great, the best in a month. I read that Celiac patients are often deficient here due to general malabsorption.
I'm feeling lousy though because my CD57 went fro 26 to 20 over two months, despite my aggressive Mepron/Zith/Bicillin routine. I just can't believe it didn't help anything! Looks like I'll be an IV Rocephrin girl by springtime. Posts: 390 | From Oakland, CA | Registered: May 2007
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
The endocrinologist, that i saw one time only, didn't make me change my diet or test me. He wondered why i need Vit D2 supplements 50,000 IU's 2x/wk, and suspected celiac as a cause of malabsorption, although i don't have other symptoms of it, but didn't ask me to get tested or stop eating wheat.
My digestion improved when i started taking digestive enzymes; i thought they help. I take Now brand Optimal Digestive System. Also sublingual B12, and lots of probiotics.
Posts: 1226 | From USA | Registered: May 2007
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I wonder if a nutrionist could be of help?? They can order blood tests, no??
I'm skeptical of gastroenterologists. Had a bad experience with one last year (was undiagnosed and he didn't help at all.) A GP can run the Labcorp test too.
Thanks for the suggestions: I've been meaning to up my probiotics. The good ones are just so pricey though, and you have to time them with your abx.
Symptoms of malabsorption can mimic Lyme pretty closely I think... can cause neuropathy even. That was news to me.
Glad to hear that the B12 helped you too.
Posts: 390 | From Oakland, CA | Registered: May 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
The catch phraze AUTOimmune is just another way of saying we dont know what you have but you have these markers. Thats bull its some type of a infection that the body cant get rid of . So the body knocks down infection and then later it comes back and wham now your autoimmune. You know it all comes down to them science looking for pieces and parts of diseases instead of looking over and over under a miroscope for the actuall bug.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I believe my Lyme disease caused my celiac disease. Yep, for sure.
delune... You really need to pay attention to the possibility of celiac. You may be keeping yourself from recovering from Lyme & Co. by not following the diet.
I could tell a huge difference within one week of avoiding gluten. Go to www.celiac.com and look for the lists of OK and NOT-OK foods.
You have to watch EVERYTHING! Spices, flavorings, processed stuff is pretty much OUT.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
Cookies are not gone forever .... just the cookies you eat now. There are many gf products.
You could be genetically susceptible to celiac disease, then getting Lyme could have been the trigger. There are many Lymies at glutenfreeforum.com (on the OMG I might be onto something thread -- just jump in, don't read all 1700 pages, lol -- and the Lyme Disease thread).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
Cookies are not gone forever .... just the cookies you eat now. There are many gf products.
You could be genetically susceptible to celiac disease, then getting Lyme could have been the trigger. There are many Lymies at glutenfreeforum.com (on the OMG I might be onto something thread -- just jump in, don't read all 1700 pages, lol -- and the Lyme Disease thread).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
To Ellie K: About expensive probiotics--- Now brand Gr8Dophilus is not too expensive and it works. I buy it from iherb.com. I also get Lactobacillus rhamnosus-- they entitle it "Russian Choice Immune" or something; that may be a bit expensive, but i think i read that it's one of the few microbes that works against Claustridium difficile, at least to some extent.
Posts: 1226 | From USA | Registered: May 2007
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Ellie, did you have the two markers that are for celiac or the two that just mean you're predisposed to it?
Did you test ok for absorption of nutrients?
I just found I have the latter and am hoping I won't be told I have to avoid gluten altogether.
I voluntarily did a gluten free diet for 8 days now and can't say I feel any different.
I've never had any celiac symptoms.
I'm ok with this diet so far, but eating out is going to be so hard. I want everything everyone else is eating.
Posts: 1302 | From USA | Registered: Dec 2002
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posted
I agree with going to Celiac.com. It's great! If you tested positive for Celiac, you MUST remain gluten free forever! You can cause many other serious health issues if you don't remain gluten free. It's really not that hard, it will seem hard at first, but you'll get used to it. Posts: 215 | From Student | Registered: Oct 2007
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
You mentioned no more pasta, but I had organic brown rice pasta penne for supper a while ago which was as good as regular pasta. Maybe just not as al dente.
I found it in our local food coop.
You cook for only one minute at a boil, and then let it sit for 20 minutes. I think I didn't watch the clock, so maybe next time I'll get it to be al dente.
Posts: 1302 | From USA | Registered: Dec 2002
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