Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Where would you get the idea that twitching "all over" is entering stage 3? Tertiary (3rd stage) anything is defined by what? A subset of symptoms?
I've never read anything anywhere that shows or says that twitching is related to ANYTHING, much less tertiary lyme disease. I for one, have never heard that there is a definitive group of symptoms that categorize this naming of where you might be in the lyme disease game.
I have heard of "tertiary syphillis", though. And that I believe is when you enter the end-point of the game-nearing death. Brain involvement, etc.
If you have info regarding twitching being related to what you call "tertiary", please post it here!
I myself developed endless, all over the body, muscle twitching, a few months before I got diagosed, and started treatment.
Through out my 4 years of continuous, non-stop abx taking, my twitching never subsided. It finally started to lessen, and then become intermittent, after I stopped taking abx.
I still twitch to this day, and we're entering Year 8 of the story.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
Magnesium supplementation (and lots of it) seems to help my twitching. My fasciculations seem to be related to a big herx, or when symptoms come roaring back. Sometimes hard to tell which is happening.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
HERX*)!!!!!!!!!!!!!!!!!! Most likely!!!
I would always twitch like crazy when Herxing, when I still twitched!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
I could be wrong, but stage 3, tertiary, I believe would have more to do with dementia and insanity, that's when your body and brain have had it beyond the beyond.
I also think the madness categorized stage 3 syphillis...endpoint, death, nothing can be done.
Likely, there are, in my humble opinion, different categories of stage 3 the one just described above and the other more to the heart and the other more to ALS type paralysis kind of thing.
I've had muscle twitching on and off through pre diagnosis, treatment and currently. Sometimes the twitching in my thigh is more like a very penetrating and deliberate as if being eaten from the inside out kind of thing.
I've heard magnesium is very helpful for this.
I think it could have something to do with, in some cases, muscle atrophy (at a late stage), but I don't know what it is at an earlier stage.
Hope this helps put you at ease!
I would also attribute it to the disease process itself rather than herxing, more often than not, although it can be a manifestation of herxing at times.
posted
For me, all-over muscle twitching was a symptom that I had for many months...and the twitching got worse during the first few weeks of taking antibiotics, then decreased after that...but it's still somewhat present even after 4 months of doxy.
Posts: 40 | From Lancaster PA | Registered: Aug 2007
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jamescase20
Unregistered
posted
I ALWAYS twitch when a pill hits my bloodstream on an empty stomach. I never really exp any twitching, just SEVERE fatigue to the point of 25 hrs sleep a day.
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I went through stage 1,2 & 3 all within about 3 weeks after a cortisone shot basically blew me apart. Twitching was one of my first symptoms and scary.
Talk to your LLMD but Magnesium (citrate) can really help this, I take around 400mg per day.
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