sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Bejoy, thank you for continuing to post about your protocol.
Wow, on that ski accident! I'm glad she's doing better.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
re: Testosterone allows me to change lanes on the highway, reduces pain, and increases libido.
Are you a woman, Bejoy? I assume you are. I am taking bio-identical hormones, too. I didn't know to ask about testosterone testing... Is it helpful for women?
Thanks for all your info. I know how it is to go broke & lose alot of friends & connections due to ill health. It's very hard for many of us who can't work & can't get disability. We need a better system to deal with this! Please pardon the pun but it's really an "accident waiting to happen".
The healthcare system is a real problem. I worked for over 25 years & paid into the system (health insurance, social security, taxes, etc.)... I got no help from the gov't or anyone in regards to medical care when I was too ill to work. It makes me mad just to think about this...
I always tried to play by the rules, work hard, pay my bills on time but it got me nowhere in the long run. It seems that illegal immigrants get better healthcare than hardworking citizens. I don't have any problem with people coming into the country & wanting to be citizens but we got huge problems with the healthcare system that really need to be solved. Avoiding the issue & making people who are sick with Lyme seem like crazy people (malingerers - I think they call us) is really bad! What more can I say...
Sorry to vent here. It just make me so mad!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Sparkle, yes I'm a woman. We all need a little testosterone. Too much and you grow whiskers. Not enough, and you have no "drive."
Scott, yes, I beleive our best options are to use an integration of the best of everything we can come up with. You have been an inspiration to me and helpful to me in compiling this protocol!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Emotional Healing:
Emotions and relational issues don't cause lyme. Tick bites do.
Having said that, emotional and relational issues can cause stress that takes it's toll on the adrenals, and depresses the immune system.
John Gottmann wrote some research on the impact of being the recipient of degrading remarks. He noted that people get ill to the degree that they get put down.
During my course of lyme and treatment, I had to deal with feelings and beliefs about being put down, isolated, rejected from community, not good enough, incapable, unworthy of financial resources, unworthy of being well, etc. Ick.
I kept a determination to meet these issues head on, and it paid off. I cleared lots of baggage out of my life, with the help of friends, therapists, NLP, kinesiology, and homeopthic remedies.
It paid off. I got toxic people out of my life, and insisted on being treated well by those who are capable of it.
I'm more available now than I ever could have been to have a great relationship with my husband, have some good community support, keep some good friends, and to be well and stay well.
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Fin24
Unregistered
posted
I am SO glad to hear of success for anyone with this. But I have a question...you say you went "lower on abx" but the dose for penicillin at 3 per week when many of us do 1 per week combined with that dose of flagyll isnt what Id call "lower doses"
I like your systematic approach, very practical and again glad it worked for you
do you have info On your IGG and/or HLA types?? Im wondering if this would work for those of us with additionl challenges...its harder for us to get past
and do you have comorbidants?? other illnesses or weaknesses?? some of us have pre existing other stuff or genetic wekanesses
i.e. I have EDS and dysautonomias, my son has a few of his own problems like a poor HLA profile and low IGG maybe since birth.
any more info you can give us may help!!!
and again I hope this lasts for you a lot longer than my remission did ( which was about 4 years)
posted
Congratulations! I hope to be able to say the same thing one day! Thanks for giving me hope. Some days it seems like the challenges will never end.
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by bejoy: Emotional Healing:
Emotions and relational issues don't cause lyme. Tick bites do.
Having said that, emotional and relational issues can cause stress that takes it's toll on the adrenals, and depresses the immune system.
John Gottmann wrote some research on the impact of being the recipient of degrading remarks. He noted that people who get ill to the degree that they get put down.
VERY well put!
That is an interesting note by John Gottmenn. I was continually verbally degraded growing up and eventually had to cut off several family relationships to avoid the abuse, this was two years ago I finally cut ties. I had considered it part of my healing, but could not explain why.
No wonder I was so sick I couldn't get out of bed
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Fin, good point. I think my abx dosage may have been higher, but possibly shorter term than many people experience.
Other than lyme, I have been blessed with good robust health. I have always relied on my physical strength to help me get me through the pain and fatigue.
Only problems are teeth that didn't calcify properly as a child, and a functional heart murmur. My genetically strong constitution may make it easier for me to heal than for some people who may have genetic or congenital challenges.
Lyme brought on it's host of troubles, though, with a cascade of system failure. I am still rebooting. I still swallow fistfulls of capsules daily, and follow a health rebuilding protocol.
I have now posted all areas of regimen and protocol that come to mind. Notice the entries that have been edited. I have corrected some typos or filled in some missing items I had not thought of the first time around.
Viktor Frankl, a holocaust survivor, wrote a book called Man's Search for Meaning. In his book he concludes that we make meaning out of horrifying crises by making a difference in the world.
This topic is my attempt to make a difference for somebody in the length and depth of suffering they have to endure.
If my experience as a part-time lyme scholar and part-time lyme guinea pig can help somebody else get their life back, then my time in misery limbo doesn't feel quite so pointless.
I think I'll come back sometime soon, and post my top ten treatment favorites, and then let the topic float back down the board.
I'm not on lymenet so much any more, but if you send a PM it will come up on my email, and I'll try to answer.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Bejoy's top ten lyme busters and health supporters:
I wouldn't leave anything out of my posted protocol, but if I had to choose ten, these would be them:
1. Venex bee venom ointment 2. Penicillin G injections (like Bicillin) 3. Metronidazole (Flagyl) 4. Artemicin (Wormwood) 5. Deseret Biologicals Borrelia, Bartonella and Lym Remedies (ok, this is really three items) 6. Sota Instruments silver pulser blood purifier 7. Proteolytic enzymes 8. Vitamin C 9. Magnesium 10. B Complex
Throw in lots of fresh garlic swallowed by the clove, and plenty of lemon water, but they don't make the list since they are just grocery store items.
I also wouldn't want to leave out my Cortef, and natural hormone replacements, but that is adrenal therapy and not lyme specific.
Well, there you have it. Best of luck to you in your bug busting and healing process!
BEJOY!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Just an update here. I got some symptoms again after about 8 months of being symptom free, so I'm doing more treatment.
I think on some level I was pushing life as hard as I could, just to see what would happen, and get the inevitable over with, if it was going to happen.
So I renovated my apartment, landscaped the yard, went mountain climbing, took a couple of all-night drives while fighting off a case of strep that my daughter brought home, and got bitten by a black widow spider while cleaning up the woodpile.
Well, that did it, especially the sleep deprivation from the neighbors dog going off every morning at 5am for a week. (They were kind enough to take care of the problem, once I got the nerve to walk over and ask.)
So I got some neuro symptoms - dropping things, stubbing my toes, difficulty finishing sentences, difficulty swallowing.
I didn't want to face it, but after three days of spewing my lemonaid across the kitchen, I went back on treatment.
I'm taking bee venom ointment, SpiroNil teasel root, and LYM homeopathic from DB. I've also done a round of auto-nosode, and and keeping up with a pile of nutritional supplements.
I wanted to go back on my Bicillin stuff, but just one shot of it for strep turned me into a cottage cheese factory, with a bad fungal sinus infection. And that's on an almost carb free diet.
Don't get me wrong, I think antibiotics are great for people who can use them, but my body just won't keep the fungus at bay for now, so I'm after other options.
The neuro symptoms subsided in three days. I'm still low energy, and getting some lymph indication that there is die-off and clean up going on.
So far so good. Just wanted to share the update, for those who might benefit from my experience. Keep gettin' well you all!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi there Bejoy,
Sorry to hear that you're experiencing some symptoms again. Sounds like you're getting them under control.
Was really impressed by your protocol and thanks so much for posting it.
I was diagnosed with Lyme and co. and did 3 1/2 years of antibiotics.
Along with it though I did some alternatives too like the hot water baths, garlic, supplements, etc.
I'm not under a doctor's care and am wondering if your naturalpath prescribed your Cortef. I'm seeing a naturalpath only for my Lyme and other issues.
My naturalpath last month told me I wasn't recovering due to unresolved physical/emotional trauma from an MVA back in 2001.
Sure is a complicated disease we all have. I never would have thought that structural damage could effect our ability to recover from an infection.
Like you my hormones are all bottomed out. I'm under no treatment currently. I tried the topical bio-identical hormones for 6 months which didn't work for me. I wasn't prescribed Cortef so that's probably why.
I'm supposed to start HGH injections-per an endo sometime and hope it'll help with the fatigue.
Keep us posted as to how you're doing.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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It is wonderful that you went symptom free.. I am sorry about your recent relapse
If you did it before you will sure do it again.. I hope to get there oneday!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
I'm so very happy for you and hope that your daughter continues to heal.
Beautiful protocol and beautiful person.
Thank you for sharing.
Oh ya - testosterone - It's in my mix and I love it.
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