posted
I read something here about if you have the HLA-DR4 genotype you have a hard time getting over lyme, as well as detoxing.
Please feel free to correct me if my understanding is wrong though!
Since I seem to be having a hard time with both issues I mentioned, I decided to ask my doctor to test me for it.
She agreed, so I did and recently found out I have it!
I gather it's not a really good thing to have, especially when you have lyme!
I'd like to learn more about it, but am not sure where to look for such information!
Can someone, who knows anything about it, please tell me more about it, perhaps even provide me with links to information on the internet, so I can educate myself more on it?
I've had multiple chemical sensitivities for many years, so could me having it be an explanation for them?
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Hey lady. I just posted on another thread about me realizing that I am also chemical sensitive. I know nothing about this HLA-DR4 though.
Who tested you, regular doc in city? Did you start seeing a LLMD? I'm sorry I can't remember that.
I know I've got a PM from you that I've failed to respond to. I remember that subject.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
Where did you get this test (what lab)? I have heard about it resulting in having a hard time with your body being able to remove toxins. I think I read something by Shoemaker or Dr. Richard Lloyd talking about this regarding detoxing, not sure where though. Maybe you could try to google it and find info. I'll look when I have more time too. I would like to get this test too.
Posts: 871 | From NJ | Registered: Mar 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I believe its bullcrap about the toxin bit there is NO PROOF OF THAT.
However, different HLA subtypes interact with pathogens differently. It is based on molecular mimicry. There is an HLA subtype that doesn't handle klebsiella well in the gut (something like DR27?) and can lead to ankylosing spondylitis as a result.
A piece of the bug's surface is too similar to your own HLA surface, thus creating confusion for the body.
It could be the HLA-D4 doesn't handle lyme well, and through molecular mimicry creates inflammation and autoimmune response.
Posts: 2276 | From united states | Registered: Jun 2004
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SForsgren
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Member # 7686
posted
Visit biotoxin.info. Read Mold Warriors. Per Dr. S. this is a mold and lyme biotoxin susceptible person. For me (I have it), it serves as a reminder to do plenty of detox with my anti-microbial program as a failure to do so may make us feel more ill as a result of circulating biotoxins.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
I just got the labs in myself but they are completely unreadable and confusing-- and my LLMd's on vacation for a month!
Jennie, do you mind typing out what your positive result looked like?
I noticed that on my my Laborcorp sheet it seemed to only test for HLA "DRB" and "DRQ" differently numbered types.
This is the correct biotoxin typing to test for right????
I'm dying to know whether I have it-- any help is greatly appreciatd. (BTw C4a levels were 9000)
Sorry to steal your thread Jennie, many congrats on a discovery that will definitely help your treatment progress.
Posts: 390 | From Oakland, CA | Registered: May 2007
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
hla-dr4 is a genotype for probable rheumatoid arthritis in the future.
most people with this genotype have or will have rheumatoid arthritis.
to lymies it has significance. this genotype means a higher chance of of fibromyalgia with lyme. it also means that long term treatment of lyme will probably not be sucessful, long and many remissions and exaberbations.
people with lyme with hla-dr4 do not respond to normal lyme treatment, with long term fibro.
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
dave...my doc-one of the original llmds-told me because i have that gene i would get osteo-arthritis...and i did. a lot of different places...very early. i also was positive for one other gene. can't remember now. my grand mom had RA. so far i don't test pos for it or have symptoms ---well i have pain and xrays show hardly any cartilage but no deformities...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
stymie, even though we won't be able to change this marker, can't we improve our quality of life by doing positive things?
I'm sincere with asking you this. I realized or should say accepted the fact some part of all this is going to be with me for life. I have all the sx of arthritis in almost all joints and parts of my body.
I can improve those type sx and control pain but no matter what I've done over the last 10 yr have I been able to eliminate it.
My first real sx (that I'm positve about)pattern of lyme & company happened in 98. That is when it attacked my knees and my hands/wrists.
I was a very young 40 yr old at that time. It would drive me crazy for days on end. Suddenly it would be gone for days. Sound familiar?
I used to think if you have arthritis isn't it there everyday? Some days less painful, I know, but it would be there period? I would have days of nothing, no pain or ache in knees or hands???
Thanks doc for your input on stuff you learned in school.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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SForsgren
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posted
Don't let someone tell you that HLA-DR4 means that you won't get well. Read Dr. S book Mold Warriors and visit www.biotoxin.info. I have talked with several LLMDs that suggest that their HLA-DR4 patients do get well though may need to focus a more significant portion of their treatment on detoxification rather than solely on killing. Be well
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
The studies re residual symptoms and HLA DR4 were ALL done with SHORT TERM abx treatment, so I do not believe that it necessarily holds true for long term treatment at all!! There is lots of hope.
HLA DR3 is connected to toxins, not HLA DR4, so I agree with OXy entirely, quote: I believe its bullcrap about the toxin bit there is NO PROOF OF THAT. UNQUOTE. In fact, HLA DR4 has been shown to have a protective effect in relation to gold toxicity- you will be LESS toxic than other tissue types studied.
GOOD NEWS about HLA DR4-
1. if you ever need methotrexate therapy people who are HLA DR4 are MORE successful with it than any other tissue type- so much so that they give HLA DR4 boosters to people who aren't before they start a methotrexate regime!! 2. it has a protective effect with gold toxicity 3. some subtypes of HLA DR4 are noted to have a protective effect noted against one kind of DIABETES- you will be less likely to acquire it- and if you do get it may be less likely to get related cardiovascular disease!! 4. there has been a protective effect for myeloid LEUKEMIA noted- you will be far less likely to ever get THAT!!! 5. it has been hypothezised that there are other protective features of this tissue type!!!
SO... it is NOT all bad news, it has good & bad in it, like everything almost*)!!! Take care, Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
LOOK at this- awesome!!! If you are HLA DR4 you are more likely to be responsive to treatment for these potentially fatal disorders!!!! ************************************************* 1: Br J Haematol. 2003 Nov;123(3):449-53.Links
HLA-DR4 predicts haematological response to cyclosporine in T-large granular lymphocyte lymphoproliferative disorders.
Battiwalla M, Melenhorst J, Saunthararajah Y, Nakamura R, Molldrem J, Young NS, Barrett AJ. Hematology Branch, National Heart, Lung and Blood Institute, National Institutes of Health, Bethesda, MD 20892, USA.
T-cell large granular lymphocytic lymphoproliferative disease (T-LGL) is often associated with life-threatening cytopenias.
Twenty-five subjects with anaemia and/or neutropenia caused by T-LGL were treated with cyclosporin A (CSA) 5-10 mg/kg/d for at least 3 months.
Eighteen patients survived between 35 and 77 months after starting treatment. Fourteen patients [56%; 95% confidence interval (CI) 35-76%] responded to CSA with sustained improvement in the neutrophil count or transfusion independence. Seven had complete normalization of blood counts, and four achieved a durable response only after the addition of erythropoietin. Sustained response required continued low-dose CSA.
In a multivariate analysis, HLA-DR4 was highly predictive of CSA responsiveness (odds ratio 18; 95% CI 1.8-184). T-LGL subtype, LGL counts after therapy, lymphocytic marrow infiltration and bone marrow cellularity did not significantly affect the probability of response.
We conclude that CSA is effective in inducing haematological responses in HLA-DR4-positive patients and that T-LGL is likely to have an immune pathogenesis.
PMID: 14617004
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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cottonbrain
Frequent Contributor (1K+ posts)
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posted
Sorry to hear you (all) have this gene.
Not too many days ago I started a thread here that may be of interest.
search on my user name and then scroll down towrad the bottom -- i included some interesting links there.
i read in buhner's book that one of his herbs effects HLA-DR4 expression. Don't know exactly how that would work, or which herb it was. anybody know?
To those of you who already have the RA symptoms (mine have been pretty mild for several years, but have been gradually worsening the last 2 years)--
what do you do to combat the progression of RA??
Posts: 1173 | From USA | Registered: Nov 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
okay, here's one answer to my own question, what to do about R.A.
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
jennie:
if it's any consolation i have this gene. it was one of the first things the llmd tested for when treated did not go as planned.
i have gone into remission may times and have been able to live with the symptoms of the arthritis
i am presently going to the orthopod for some new knees. these have just been developed. repair can be done with arthroscopic sx instead of full sx.
my other orthopd wants me to wait 6 years cause i'm not old enough.
so life goes on with or without hla-dr4. don't let it worry you, just expect longer treatment, and many symptoms will not get better even after treatment.
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
The test for biotoxin removal problems is NOT the HLA DR4 test that is related to lyme arthritis according to Dr. J. S.
It's worth reading the material on this if you want to get correct information. Here is a start.
I don't know a whole lot about it, just yet, but I'm starting to learn more. What I do know about it is it's not exactly a good thing to have, which is why I wanted to know if I have it.
I just had my doctor write me a lab order for it, which I then took to my local hospital laboratory. They sent it out to ARUP, who I don't think did the whole thing right. I believe Quest and/or Labcorp are the best laboratories to use to do the whole test and right.
I've been seeing a LLMD for several years now. Maybe you have me confused with someone else?
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Read my reply to Pam for the answer to your question. I also sent you a private reply to the private message you sent to me. I hope they help you!
I've read something along the same lines too, so I do think you're correct.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for the food for thought! I really can't argue with you either way about the toxin part. I understand the other part of what you said though and it does make sense to me.
Have you ever read Mold Warriors? I just started reading it, so it's too early yet for me to say what I think about it, but I'm hoping it will help me to understand this topic more.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for the helpful information! I will follow up on it soon!
I actually have the book, although it's just been collecting dust in my to-read stack of them. Now I have a good reason to read it and just started doing so!
Plenty of detoxing definitely doesn't make me feel near as ill and I've read a little bit about that and the genotype, which is why I decided to look into whether or not I have it.
I've been taking Cholestyramine without Actos (I had too many side effects from it) and it really seems to help me. I did get some pretty bad constipation (a known side effect) from taking it, but now that I'm taking a stool softener twice a day, it's abated.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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I'm sorry, but my test wasn't done by Labcorp. It was done by ARUP.
All I can tell you is mine says I have it. I'm sorry I can't help you anymore than that.
I believe Quest and/or Labcorp does the whole test and right though, so I think I need to have mine redone and plan to check into that.
I hope someone else comes along, who can help you!
Feel free to chime in on anything I post anytime! That's what we're all here for is to help one another!
Thanks for the congrats! I sure hope it helps me!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Most of what I've found and read on the internet refers to the arthritis you mentioned.
I haven't came across anything though about what you said about how it relates to complicating lyme treatment.
Can you provide me with some credible information, perhaps websites and/or journal articles about that? That's the part, which concerns me the most, so I'd like to learn more about it, for sure!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for the positive information! I truly appreciate it! I needed to hear it!
I hope to finish reading the book soon!
Since we should focus more on detoxification, what are some of the best ways to accomplish that?
I have a sauna and foot bath I use, plus I take Metagenics Ultra Clear Plus pH (supplement) and Cholestyramine (prescription).
What else can I do to help myself?
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for the positive post! It uplifted my spirits, for sure!
As with everything in life, I can see now it has both its plusses and minuses, so it doesn't make me feel so bad to have it now, knowing what you just said!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for mentioning your post here! I'll be sure to read it!
Did you ever remember what the name of the herb is, which he talks about? Anyone here know?
Anyone here know what some other ways are, besides taking low dose antibiotics, to comabt rheumatoid arthritis? Since it seems to be a significant issue with having lyme, it sure would be nice to know about more than one way to do so!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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quote:Originally posted by adamm: Wait--what portion of the people who get arthritis from
Lyme have this gene?
Correct me if I'm wrong, but I believe I just read in Mold Warriors about 25% of people have the genotype.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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I wonder why, when my treatment didn't go as planned too, my LLMD didn't think to test me for it? That concerns me my care is not being followed closely enough!
I'm glad you've gone into remission and can live with the symptoms! That makes me hopeful to hear that!
Good luck with your surgery for your new knees! I hope you enjoy them! I'm not a big fan of surgery, as I do so poorly with it, so I'll definitely continue to avoid it, as much as I possibly can!
You're exactly right, life does go on! It's just not a good feeling to hear, because I have the genotype, my treatment will be longer and I'll be left with a lot of symptoms afterward!
The timing of me finding out I have it may be in my favor though, as far as my divorce trial is concerned. I'd love to be able to present some credible information during it about what you have just said about how it will affect me.
Can you lead me to that?
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thanks for the link to the helpful information! I'll be sure to check it out soon!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
jj
You asked if there is anything else you can do to help your RA. This is what is working for me.
I have rheumatoid arthritis which is nearly in complete remission. I do have some damage to my left wrist that gives me trouble and my ankles can ache after I have been on my feet long hours but I no longer wake up stiff or swollen and can do everything I ever did.
I am still curing much so not 100% well yet but getting there.
Here is what resolved my swelling and joint pain the best.
1-Change of diet. Here is a good website about RA and diet. For me, it has been soooo true.
Particularly read the story link titled "This is a case history in which using vegetable juice and vegetables healed a woman of RA"
Changing diet has been the #1 most effective thing I have done. At the time I was diagnosed, I was swollen all over and all joints but my spine and hips were severely affected. I was housebound and horribly helpless.
Diet jumpstarted my recovery. I found a doctor that understood Leaky Gut Syndrome, toxicity, food sensitivities (big one), etc and together we brought me from a very high moderate RA to a weak positive.
During this time (1 yr) I only took very low dose minocycline, 100 mg 3 x week, which I do not think helped me at all. It targets mycoplasmas and apparently that was not my problem.
On May 12 07, I was bit again and within 48 hrs became extremely sick with fever, fatigue, muscle weakness and joint pain. Since this was a recent infection, I opted for antibiotics from an LLMD who is also a rheumatologist.
I rebounded to better than ever health within 30 to 60 days and have remained there. However, bloodwork does not yet say my RA is in remission although it is the lowest and best yet.
So, I am trying to eat far more veggies (as much raw as possible for optimum nutrients) and trying to drink at least one glass of fresh veggie juice daily. I also eat lean meat and fruit.
So far, I keep getting better and better. My concern now is another frekkin' bite.
The hand surgeon also believes infection is behind RA, but he thinks my immune system is permanently damaged and everytime I am exposed to any pathogen, my RA will flare again.
Please God, let him be wrong!!!!!!
My LLMD says "No way. The immune system can be healed" And she is a Rheumy.
Please God, let her be right!!!!!
Meanwhile, I make sure I eat really well. Here is an article on Leaky Gut Syndrome which I believe is behind every chronic illness.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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stymielymie
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Member # 10044
Personally, I believe in this theory. My symptoms got better with cholestyramine treatment and before I was even on any abx for Bart, the CSM totally cleared this horrible acne/papule stuff on my back.
Thanks for sharing with me what is working for your RA!
I'm happy to hear your RA is almost in complete remission and it's only giving you a few problems now!
I think way too many people underestimate what a good diet can do for you, for sure, not to mention what leaky gut, toxicity, and food sensitivities can do to you too! I'm glad you were able to figure those out for yourself and are better because of it!
I'm so sorry to hear you got bit again, but very glad to hear, like you said, you're in better than ever health!
I do some juicing, as well as eat some raw foods, but I know I can always do more, given the time! I've even given some serious thought to changing my diet to a totally raw one, but am not too sure I would last long very long on it! Maybe if I knew more about how to prepare my food more like that, but I know I have a lot to learn about that, for sure! Unfortunately, I've had to put that on the backburner for the time being though, since I have other, more pressing, issues I'm having to deal with, at the moment! Overall though, my diet is pretty much like what you've just explained, except I know I could stand to eat more vegetables! So, I guess I'm not doing too bad with it, although I know there's always room for me to improve it!
I sure hope you don't get bit ever again and keep getting better and better!
I hope and pray your hand surgeon is wrong and your LLMD is right!
Thank you, so much, for the links to the helpful information! I'll be sure to check them out soon!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thank you, very much, for the link to the very interesting article! What a great read, indeed!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thank you, very much, for the link to the very interesting article! It was definitely a good one for me to read, especially since I'm somewhat familiar with it! I did learn some new things though, which is good!
The theroy seems promising and makes perfect sense to me too, especially with me knowing I have the HLA-DR4 genotype! On top of that, I've always been one who herxes a lot with any antibiotic I try taking, not to mention have multiple chemical sensitivities.
I've been taking Cholestyramine for quite some time now and it's really helping me too! I'm glad it's helping you also! I do think it's helping me with my herxing, by removing the toxicity from my dieoff from my body, as well as my multiple chemical sensitivities.
It does give me some additional pain, but I figure that's, most likely, because it's pulling toxins out of my body, which is creating inflammation. I tried taking Actos to help me with that, but I experienced too many side effects from doing so, thus I had to quit taking it! That forced me to have to slowly increase my dose, but I've now reached a point where I can take two packets per day! The longer I keep taking it though, the better I keep feeling!
When I first started taking it, it did cause me to get really constipated. Thankfully, I remedied that though, by taking a stool softener!
I'm not able to take the full dose, which is 4 packets a day, because of all the other medications I take. I wish I could, but am glad, at least, with me being able to take half of a full dose, I'm still experiencing some positive benefits from doing so! Maybe if my medication schedule changes somewhat in the future, then I'll be able to take more of it.
Good luck to you with using it! I hope it keeps making you feel better and better!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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