Topic: DH read elsewhere that Dr.K can cure Lyme. I'm not really familiar. Thoughts??
AliG
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I know I've definitely heard the name before. I think GiGi is likely VERY familiar with him. I'm hoping I can get some input from people who may know more about his protocols and their effectiveness.
I would appreciate both pros AND cons and PLEASE be kind to each other (as I'm sure you all will. )
Thanks in advance. Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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map1131
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Ali, you can do a search and read post after post from Gigi about this doctor. There are some others on this site that are being treated by him also. Some won't admit it on the board, due to the harsh treatment sometimes because his treatment style is not mainly traditional.
Gigi will tell you it takes years. It doesn't happen over night. I haven't seen Gigi here in a few months but one time asking for information from someone else??
If you can get the search going look at Gigi posts from the last few years.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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He is the most intellegent and gifted doc I have every met (and I have met many). ART is also the most reliable diagnostic tool that I have encountered.
His work on mercury toxicity and it's relationship between viral, bacterial infections and fungal/mold has been 100% accurate in my case. I am a textbook example of what he teaches.
Diana
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TerryK
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I'm no expert on Dr. K. but he is a long ways from you. Would you be able to fly out to WA State for treatment??
You can read hundreds of posts about him here and some not so nice posts about him on the LNEuro. Mostly making fun of his beliefs etc. unless those have been deleted.
Selma used his protocols to get better (she just posted recently that she was leaving the board) and GIGI got better mostly using his protocols. They are controversial - at least some of them are.
Personally, those who don't beleive in ART would not be happy with him.
He has been trying to get people to understand the importance of metals for years and his ideas about the importance of metals are verified as far as I'm concerned by the recent study on borrelia, non-toxic levels of mercury and mice.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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sixgoofykids
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I respect his approach and would definitely consider him Lyme literate.
He does take a different approach than ILADS, however, different isn't always "worse" sometimes it's just "different".
I think the fact that he treats the body as a whole rather than *just* killing a bacterial infection is in his favor. I also think some of his ideas, as well as Dr. C's ideas, are winning favor with some ILADS docs.
I don't think there is one way to get better from this disease. I think if you're using only one approach, ie, meds only, or anything else all by itself, that you won't get better or you will be on maintenance abx all your life. There are many angles that need to be addressed so the body can stay in remission on its own.
I am better and I am now working on strengthening my body as I'm weaning off meds to be able to stay better on my own.. I used abx, but I also used heavy metal detox and read a LOT about Dr. K. I also used coffee enemas, saunas, green laser, and herbs. I have a rebounder. I drink lots of water. I have a clean diet and I exercise (this was definitely loosely called exercise in the beginning! LOL).
So, since Dr. K takes the whole person into account and all that might be wrong with the person, I think he can get a person well from Lyme. He will use the reverse order that most ILADS docs will use .... that being, he will detox, chelate, etc. first, and use abx last. In the end, I would say he will get you well.
I know several people on his protocol and they are healing as fast and as well as I have using his ART methods.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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randibear
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hmmm, never heard of him. but i thought somebody told me to stay away from any doctor who said he could "cure" lyme...
sounds like he knows what he's doing tho?
is he expensive? where does he practice?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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SForsgren
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I am not sure that Dr. K himself would claim to be able to "cure" Lyme. I have been a patient of Dr. K for about two years and though he has been amazing and brilliant in my experience, I am still working on my recovery. I don't believe there is a "cure" for chronic Lyme at present. I do believe that Dr. K incorporates more pieces of the puzzle than most other practitioners I have seen. Without incorporating some of those things beyond Lyme alone, recovery is less likely. I do think that there are ILADS doctors, however, that incorporate many of these key components such as detox, heavy metals, parasites, viral co-factors, etc.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Can I post a link to an article about him? I'm not sure of the protocol here. If not, anyone who wants it PM me.
Posts: 39 | From NJ | Registered: Feb 2008
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Unfortunately, there are no magic bullets when it comes to curing lyme disease. Like everything else with lyme, some folks are helped, some are not. It doesn't mean the treatment doesn't work. It means this is very difficult and complex to treat and it takes a long time.
Posts: 925 | From California | Registered: Sep 2004
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AliG
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Thanks all for your input.
randibear, I may have been unclear. It was not from Dr.K that my DH heard the word "cure". It was from a post on another site.
Hubernacker, You are free to post links to whatever you like on here. They just don't like the names of Lyme-Literate Physicians posted.
Instead they refer to them by initial & location. A link to an existing thread somewhere else or a site of interest is always welcome.
Does anyone know how costly his treatment is?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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D Bergy
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This is the Protocol I have saved regarding the subject above. It is not first hand so I cannot guarantee its authenticity.
My wife is using the same chemical with a different dosage. No symptoms now or reaction from the MMS. I am sure it is not gone completely as we have not used it long enough.
I have not posted it before, because I did not think there would be much interest. Plus I cannot verify it.
D Bergy
The doctor X's recommended protocol for Lyme is a. Start 2 drops MMS twice daily. Increase slowly to 15 drops 3 times/day. or b. Maintain on 6 drops twice daily and spike once weekly to 15 drops twice daily exactly one hour apart.
Die off effects (nausea for a few hours most common)
He says it takes 18 months to clear up Lyme due to the various life cycles of the spirochetes.
He also recommends Chlorella to remove Lyme neurotoxins. 1 gramms 3 times/day. Once week; 5 - 6 gramms 4 times/day.
Posts: 2924 | From Minnesota | Registered: Aug 2006
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-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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sixgoofykids
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A rebounder is a mini-trampoline. It is good for the lymph system.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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AliG
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D Bergy-
MMS has nothing to do with Dr.K. That is something being promoted by Jim Humble. I believe that Mr. Humble's qualification to practice medicine is that he is a Metallurgist.
Please do not bring that controversy into my thread. Thank you.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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SForsgren
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AliG, that is incorrect. Dr. K spoke about MMS at a conference in London recently and does seem to support it. I have not confirmed the posts directly but it was posted by an attendee of the event.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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AliG
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REALLY?!
I actually checked Dr.K's site before I posted that. Perhaps I missed it somewhere?
I couldn't find it so I looked up MMS & found the connection to Humble. I just thought D Bergy was confusing it with something else that Dr.K had recommended.
If he did, in fact, recommend it, then I apologize. Do you know where that recommendation was stated?
edit: Sorry, I just realized that you said it was unconfirmed.
Thanks for the info.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Keebler
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-
As for posting name, if a doctor has an article or book published, it is reasonable to post a link - or the entire article -- here and, correctly, having the author's name with the material as you would with any other professional abstract or article.
The articles are published for the public to see. Books, too. And if you post published material as per copyright, the author's name should go with their body of work.
Copyright law for web is a little grey. As I interpret it, only works that are available by viewing at another site should be copied and posted, however. The link should be provided.
It is assumed that the author gave permission for that work being assessable by web viewers and that the site would not be able to alter the author's work.
If quoting from a book, actually typing it yourself to post, copyright laws tell us that should not be done. It is clearly infringement of copyright law. You might say that author addresses that topic on pages such and such, but that's all that's legal or fair.
If that work can be found by viewing elsewhere on the web, a link can be posted. Google books has many books available for viewing, BTW.
--
Still on this topic of posting names or initials,
Just as we do for the doctors who don't want to be advertised and want have their privacy honored:
If speaking of a published author's medical practice, it's best to still use initials, especially since those posts are not direct quotes from them or from their works but us posters "talking" among ourselves (of course, though, realizing anyone in the world can see this).
And, of course, if someone says something about a doctor, take that in context and as the person's word as they recall matters or as their opinion. If you are thinking of see that doctor yourself, call them and verify points you may read here if that would be key to your seeing or not seeing that doctor.
-
[ 04. February 2008, 02:43 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Greatcod
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It is quite a forest that Lyme leads us into.
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Keebler
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-
Great visual . . . a forest . . . I love forests.
I've been feeling more like having been caught in the abyss.
I will go back to my forest, just being aware yet still full of awe.
Truthfinder
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I'm afraid the topic of Dr. K. is a controversial topic on this board, but he certainly seems to have some very dedicated followers who have gotten well. But that could be said of many good Lyme docs.
Thanks Scott and D Bergy - I had no idea that Dr. K. was interested in - or even aware of - the MMS protocol(s).
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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AliG
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Keebler,
Thanks for the clarification on the Dr.name thing. I WAS having trouble trying to figure out how to explain that.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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map1131
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I recently received a name of doc not 5 miles from my home. Someone on this site that lives out of my city but in my state was the one that found this doc and his site.
It's in Ky if anyone is interested. His site claims they do ART and many, many other alternative type treatments.
If anyone is interested in looking at his site and you are not far from Louisville, Ky. then please send me a PM for the information.
I did call the office last week to find out what hours they are open. I plan to drop in the office and ask some questions prior to making an appt for myself.
The lymenet member that gave me the site info had a appt scheduled and then something (life) happened and she hasn't made it up here yet.
I will let her chime in if she wants to add anything to this thread. Some questions I will be asking when I stop in?
Who trained the person doing ART?
Are they familiar with the Dr K out of Washington state?
I will want to have great input and will need to do my research and study before any approach is used on me. If this is not agreeable with the doc, then I don't start using him period.
How much do you charge for certain protocols? Is any of your treatments covered by my two medical insurance companies?
I will also "bulk" if he or anyone in his office tells me they can "cure" me. They will get a lecture from me that they really don't know what they are talking about or if they do know the cure for my lyme & company they will be the first that knows the "cure". lol
I'm no fool. Gigi, Scott, Skyking, Tutu, Tincup and many many others on this site have taught me tons. I know and believe Gigi and her story. She was cured, with years of determination & faith. No doubt she had many blessings along the way. Most importantly she had Dr K.
Gigi has a few years on me, but by golly if she can do it so can I. So like I already said if you are interested in the site, PM me.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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luvs2ride
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During the 2 1/2 years I have had the "pleasure" of "qualifying" to hang out here at lymenet, I have noticed something.
Everyone I have come to know by way of Lymenet who has gotten well has used muscle testing.
I know we all have stages of recovery, but I mean the ones who say "I'm cured" all used some form of muscle testing to determine which meds/supplements were right for them at different times in their journey.
I find this compelling.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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SForsgren
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GiGi is in her seventies and can probably beat me around a track. The lady is amazing. She went from partially paralyzed and being drug across the floor to get the the bathroom to being hard to keep up with. She is one of the people that truly gives me hope and honestly one of the few that I have seen emerge from all of this and being back to a healthy, happy, productive life. She is one of my heroes.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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What is MMS? There is eradication of spirochetes or other invading microbes in the treatment of Lyme, but unless you have have a time machine and can go to a time prior to initial exposure there is no "cure", as once primed, the immune system will always be in a state of readiness to respond or over respond, whether BB is there or not, simply based on the stress/cummulative toxin/general immune stimulation that we all encounter in everyday life. Diet, fresh air, exercise, bodywork, detoxification and meditation will do more to raise the overall threhhold and lower the allostaic load than all the antibiotics in the world. Mercury and other heavy metals represent the greatest toxin load, but beware of perfumes, skin products and hair dye, the aromatic organic chemicals are an overwhelming toxic load too.
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luvs2ride
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Awe Dr Luddite! My hand surgeon said the same thing about my RA. He believes in infectious causes to RA (something rheumys don't)and he thinks the immune system is permanently damaged and each time I am exposed to any microbe RA will flare.
My LLMD Rheumy (who does believe in infectious causes) does not agree with this. She believes the immune system can be healed.
I'm praying she is right. I am also hoping, as you say, that I can set the stage to healthy by exercise, diet, and annual detox so my liver and other elimination pathways never become this overloaded again and I never again experience chronic illness.
I am doing extremely well but am not finished cleaning up my body yet.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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heiwalove
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luvs - i have noticed the same thing.
as for dr. k, i think he's amazing and if i lived on the west coast i would certainly try to work with him. as of now i work with A.R., his fulltime RN, who travels to nyc once every three months or so. she's incredible. she also had lyme and co, by the way, and is completely, totally cured now, using dr k's methods.
D Bergy
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As I stated in my post, I have not confirmed the MMS protocol came from the doctor in question. It would be nice if someone who has the means to confirm this with the doctor, would do so. I hate being suspicious, but I do not like going by the word of one person, that I do not know.
I have no reason not to believe the person who stated this, but there should be others close to the doctor that can confirm or deny this.
Anyone here that has questions about MMS can do a search here, or Google Miracle Mineral Supplement. It is, more accurately, Chlorine Dioxide you drink to kill bacteria, viruses and parasites.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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SForsgren
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I don't know that there is a specific protocol. Sounds like Dr. K discussed MMS at his London event. I will be at his WA event later this month and will have more details then. I do know that Dr. K does support the use of MMS with some of his patients. What I do not know is whether or not there are people that he would not suggest it for, what cautions he would have, etc. I suspect he is using ART to determine potential benefit for a specific person but I don't know that his comments on MMS were meant to be a general statement about use of the product without the care of a practitioner that knows more about it and can monitor one's care. Be well
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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D Bergy
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I am quite sure that if he is suggesting using MMS for Lyme, that it would be under the care of a doctor.
Unless you see him personally or go to one of his facilities, I do not know how that is practical.
Thanks for looking into it Scott. I do not like having incomplete or possibly inaccurate information.
If the subject is too hot for Lymenet, just send me a PM.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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AliG
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Thanks Scott for looking into that.
D Bergy,
I've re-read your post several times & I think I may not have been comprehending what you were saying.
The info that you posted was from what you understood, through another party, was Dr.K's recommendation to a patient for the use of the MMS. Is that correct?
If that's the case, I now understand why you were posting it here. That whole MMS thread left a bad taste in my mouth (pun intended), because of the hostility that had taken place there.
I get very nervous when I think there's a possibility that I may get caught in the midst of a "board brawl". I'm sorry I misunderstood your post and panicked.
Thanks for sharing the info.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bejoy
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Dr. K. has lots of info on his website that you can download. You can also order the same in bound form.
His protocols contributed greatly to my recovery, (esp the use of bee venom, although I chose to do it in ointment form rather than injection.)
I also understand that his staff will do phone consultation. I think that some of his staff travel for office visits out of state occasionally
I have read that Dr. K. and his family are lyme survivors.
Had I been able to travel, I would have chosen him for my LLMD.
While his approach differs from ILADS, he and the famous Dr. B. have conferred to learn from each other for the wellbeing of lyme treatment.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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D Bergy
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AliG
No need to explain. I was not real clear on this in my post. I hesitate to post anything on MMS I am not sure of 100%. But, by posting it I am hoping for some clarification from other members.
I have developed a pretty thick skin from previous experiences on Lymenet.
The dosage information came from a person who said they attended a conference or something of the sort in Europe in which the doctor was a part of.
After the person reported that the doctor was using MMS as a treatment, several people asked about how he used it as far as dosages. The information I posted is what that person reported as what the doctor was using for his patients.
It has also come to my attention that this is what is being done in Europe. I would guess the climate for alternative treatments is better than here.
I am speculating that it might not being used in the U.S. under his direction. As doctors do not have as much freedom to use alternative treatments in our country.
I think that if someone is interested in this method they should probably contact the doctor directly.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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AliG
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Thank you very much Cavey for your consideration.
I really was looking for any overall opinion on his effectiveness as a TBD treating physician. I wasn't really looking for any specifics with regard to his protocols.
My DH recently decided that he would rather be part of my solution than part of my problem. He is trying to help me & in doing so has taken to the first direction that we all go in. He is looking for the doctor that will "cure" me.
I think it stands to reason that, whatever avenue we try to pursue in treating these complicated messes, there are no easy answers and no quick way out.
When co-infections are involved, as in my case, it becomes very difficult to sort through all the solutions that are offered up.
It also becomes difficult to really know without doubt what co-infections you are dealing with, as it seems that even co-infection tests may not provide an accurate picture.
From what I think I can assess, Dr.K has helped Gigi & Selma actually get to a place of wellness. I may be wrong, but I don't think either believe that they are actually "cured" but both are presently feeling well enough to realize some enjoyment of their lives, Gigi has been symptom-free for years. Does that sound right?
I think Scott & Diana, he is still working with you and you feel that he HAS been helping you. Others have also seen benefit from some of his protocols and treatment principles.
Is my understanding thus far correct?
Heiwalove, Did his nurse actually claim to be cured? How long has she been free of symptoms, do you know?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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SForsgren
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GiGi is the closest to cured of anyone I have ever met with chronic Lyme. She continues to take good care of herself, but she can probably run laps around most of us at 75 years old. Maybe older now.
I am still working through my journey but do actively see Dr. K about four times a year.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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heiwalove
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AliG, i don't know the answers to your questions, but i will ask her the next time i see her.
i can tell you that she is by far the healthiest person i have ever encountered, physically/mentally/emotionally/spiritually. it is difficult to imagine she was ever sick.
luvs2ride
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When you get over chicken pox, they call you cured but in fact, the virus stays with you the rest of your life and if your immune system becomes compromised, you get shingles.
IMHO, symptom free is cured. Relapse could be re-exposed or revisited. Keep your immune system up and you remain "cured". This is the case in so many illnesses.
Luvs
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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map1131
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This is why I won't use the "cured" word on myself. I have to experience that like Gigi and others, then I will scream from the mountain tops.
Ali, I like your husband's attitude. Being part of solution, not the same old same old? That's my way of looking out side the BIG box.
I will not live my life stuck in this lyme & company hell. I might experience "cure" and then get another tick bite. So everything I've learned and done that helps me will always be a part of my continual health protocol.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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clairenotes
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My understanding of the word ``cure'' has evolved over time along with my understanding that microbes are, in many ways, part of our human existence. So for me, the idea of balancing, or re-balancing the ratios is more the goal, rather then ``curing,'' and building a strong immune system is key. Since diet and lifestyle have such a profound influence on immunity, we and the decisions we make, become part of the equation. We may be able to go only as far as we are willing to take ourselves.
Once having established that education and experience are there, my criteria is simple in choosing a practitioner, whether it is an ART practitioner, or ILADS, or any other... how healthy and/or vibrant do they appear themselves? And do they interact with me in a respectful and kind, if not compassionate manner because that, in my mind, is also an integral part of health. For some reason, as superficial as this may sound, this criteria has worked well for me. Having overcome lyme themselves is another huge positive. Because I also sometimes think that a practitioner may be able to take us only as far as they themselves have gone.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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I did see that post about Dr. K. using MMS and it was in relation to his patients that previously tested negative for Lyme. He found that using MMS and chlorella for 6 weeks and then retesting by Western Blot very often resulted in positive tests for these patients.
It was reported that he has had approx. 1000 patients test positive with this method who previously tested negative.
Maybe Scott can verify this for you when he talks to Dr. K.
Hope that's the info you wanted.
Looking
Posts: 590 | From Canada | Registered: Oct 2007
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adamm
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One wonders if we're ever cured of any infection we have...
many bacteria that could kill us under the right circumstances
(staph, strep, etc.) simply live in us without doing any damage
the majority of the time,
and it seems realistic to me that Bb might be capable of doing the
AliG
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quote:Originally posted by cave76:
This forum will probably give you a one-sided point of view about Dr. Kl.
I do realize that I am likely to get many postings from those who are fans.
I am trying to seek out objective results. I am just looking to see how many have seen success in his care.
Looking,
I believe that is fascinating information. It's not really what I was looking for in THIS thread, but it is interesting. I am looking forward to Scott's "getting the scoop" directly from the doctor.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I'm trying a novel approach to get information from everyone without the need for in-thread disputes.
I am trying to establish a thread for every different approach I can think of & get input only from those with experience in each thread.
Now go heckle me in your own thread!!!!!
[ 09. February 2008, 07:45 AM: Message edited by: AliG ]
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i think what you're doing is novel and admirable, AliG. i hope you get the info you're looking for.
i stayed out of the 'ILADS-only' thread because that is not the approach i know (though my LLMD is an ILADS doctor, he incorporates dr. k's and dr. c's theories/methods into his practice). it would be nice if everyone would do the same for this thread & others - ie, don't knock what you don't have personal experience with.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Well aren't you a tricky dickens!
Technically, if your LLMD is an ILADS member, I'd think you'd belong there but the differences in approach should certainly be given mention, as I think they may be notable.
Isn't Dr. C ILADS also, (or am I thinking of a different "C"?) or do I have yet another thread to start to really confuse myself?
Actually, I set up a thread for those who've tried multiple approaches, as well, so maybe there would be better?
Thanks for trying to pick the right thread!
(I'm actually classifying it as ILADS LLMDS because that's how one could find one, by looking for an "ILADS member".)
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i hope i can use his name here, since he's not an LLMD per se - by dr. c i meant cowden.
i don't feel i belong on the other thread because right now i'm not on abx (though i may add them later), and i personally prefer dr. k's approach (and his nurse is one of my practitioners, as mentioned above - along with my LLMD).
i'm not in remission, btw - just relapsed this past summer and have been in treatment again for three months. i'm definitely improving, but like all treatment for chronic lyme, it's a slow process.
i WAS in remission for two years using mostly alternative approaches; i think i fell out of remission because i wasn't vigilant enough in taking care of myself, and also i didn't stay in treatment long enough the first time (less than a year).
i hope & plan to reach permanent remission this time!!
posted
You might ask that one of his fans to ask him what his success rate is...or even call his office and see if they can give you the info. Maybe I should do that, but it's late at night. One of the major variables here is whether Dr. K is treating lots of Lymies who are treatment failures with the standard ABX protocols. I too am very curious--I'll be damned if I can figure out what works for Lyme treatment and what doesn't...so many claims are made by individuals here that it's crazymaking. ABX to herbs to Rife to amalgams replacment to staying out of the sun to HBO to drinking bleach...
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posted
I can also confirm that Dr. K uses MMS and has had really good success with it in recent months, however, in his experience, it is not especially effective for lyme, more so for babesia and bartonella.
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hi Ali G,
Yes I think I have the info you're looking for...
Dr K and Cowden...would be good medical practicioners for say keeping one fit when there's nothing major wrong with them....
Great cod....
Yes, there is ONE PROTOCOL that works....I am proof of that. Of course if you don't care to believe me then you can ask the thousands of patients of Dr Jones or the tens of thousands of Dr. Burrascano.
The protocol of Dr Burrascano and Ilads does work.
It does include many herbs, however it IS an alternative treatment plan to the AMA, CDC or IDSA or any mainstream medical approach.
Oh by the way....it only utilizes bleach for a rinse for thrush in the mouth...
If your DH is looking for somewhere to start then I would suggest the protocol I mentioned used by Dr Burrascano.
AND STICK TO IT LONG ENOUGH FOR RESULTS....you will realize results soon enough.
See Ya Sometime
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
tony z, how can you say that? you have no experience whatsoever with dr. k or cowden.
dr. k's protocols helped GiGi *cure her lyme. yes, cure, at the ripe young age of seventy-something. she was extremely, profoundly ill - paralyzed on one side of her body, unrelenting brainfog, reacted to everything and if i remember correctly had to sleep on her cement garage floor in the winter, really at death's door as so many of us have been..
and she is cured now. totally and completely healthy, healthier than most so-called 'healthy' people half her age who have never struggled with chronic illness.
so how can you say that dr. b's ILADS approach is the one and only way to get well? you can certainly say that's how YOU got well.. but purporting to speak for EVERYONE isn't a fair or accurate thing to do.
there is no one-size-fits-all when it comes to these illnesses. that much is clear.
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