LymeNet Flash: anybody know number of real lymies in us

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » anybody know number of real lymies in us

UBBFriend: Email this page to someone!

Author

Topic: anybody know number of real lymies in us

stymielymie
Frequent Contributor (1K+ posts)
Member # 10044

posted

the cdc gets reports of 20,000 per year
with strict test guidelines.
anybody know the actual number per year being treated?????

total lymies chronic and acute in the us???

docdave

Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

Hi - I don't think there is a place where the numbers of people being treated get reported. There's also the issue of how many other conditions are being reported. For example, I think fibromyalgia associations say there's 10 million with fibro, and I bet CFDs organizations would have a numbers estimate on what they've heard. Plus all the other possible presentation conditions. I would guess we have at least a tenth of the country infected, which could be a conservative estimate.

Posts: 13171 | From San Francisco | Registered: May 2006 | IP: Logged |

Paula 007
LymeNet Contributor
Member # 8002

posted

I know me and my husband are not counted. When I was diagnosed, the doc had the Health Department (some agency within it) call me and ask me all sorts of questions. Then I was told I wouldn't be counted. I wrote to the CDC and asked them if Fla was doing the count right? CDC (really nice person) called me and said, "Unfortunately, it is up to each state to set their own reporting criteria."

There!

Posts: 108 | From Florida | Registered: Sep 2005 | IP: Logged |

adamm
Unregistered

posted

Just out of curiosity--

how many of the diseases as which Lyme can present (MS, Lupus,

ALS, etc.) had been

documented

in the literature before the 70's outbreak?

sorry about the awkward construction earlier

[ 09. February 2008, 02:47 PM: Message edited by: adamm ]

IP: Logged |

bettyg
Unregistered

posted

adam, please rewrite your sentence; it's not making sense as is ok; thanks! [Wink]

dave, yes, i'm sure there is NO evidence of this. if tincup stops by, i'm sure she will read the top and reply.

dave, how are you doing now? any better...sure hope so! [group hug]

IP: Logged |

stymielymie
Frequent Contributor (1K+ posts)
Member # 10044

posted

betty
actually last 3 days feeling excellent.
had relapse, went back on 3 abx and vfend.
after 4 days feel great.

played competitive tennis twice in three
days knees feel ok not great.
played 2.5 hours today.

only problem was to much sun, now have malar
rash.
betty,
i still have money left over in the fund from
green santa. about $100.
it is actually my money, because i put the money in an account ,but bought the gift cards with my money.

as you well know, i am very willing to now share it.
either 4 $25 or 2 $50 cards.
pm me
docdave

Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/