robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I used ketek several years ago before all the bad press. I di not have any trouble with it. My doc is suggesting I go back to it as it works better than Biaxin.
I am wondering if anyone around is on it and for what length of time. I am hesitant to return to it because of all the warnings now associated with it. On the other hand if it really is ok and others are using it safely and long term I would consider it.
I definitely trust my LLMD and still like to get opinions of others. No one knows everything.
Thanks
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I am starting it in 2 1/2 weeks at 400mg twice daily. I will get my liver enzymes checked every 14-21 days initially.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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I used it for two months and was fine, but my liver enzymes did creep up. I switched because we didn't see any improvement in two months. I've read claims that enzyme levels can creep back down to normal as treatment continues.
But I've read they can keep going up as well...hence the warning. My doc says its a good drug that got a lot of bad press. Use requires routine monitoring.
I think we see the same LLMD.
Posts: 87 | From Yorktown VA USA | Registered: Jul 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I was on it for about 2 months. I believe I developed chronic pancreatitis while on Ketek, but it's something that can't be confirmed.
I stopped the Ketek when I had what seemed to be a gallbladder attack and my pancreatic enzymes were elevated. My gallbladder is fine, but I have to be careful eating fatty food now.
I can't be sure it's the Ketek. I've also wondered if it was that I ate too much fat while on the anti-yeast diet. Or maybe a combination.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Ketek was the first abx I took and it really helped. I was amazed at how quickly I was feeling better and how much of my quality of life I got back while on it.
I took it for 9 months alone and then with Mepron. I had liver tests every 2-3 weeks and my numbers never moved more than a point or 2 up and down.
-------------------- Lucy Posts: 342 | From Hawaii | Registered: Nov 2005
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posted
I took Ketek for about 6 months with no problems. I'm not sure what exactly it added to the equation, but I tolerated it well.
Posts: 393 | From Washington, DC | Registered: Jun 2005
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posted
My daughter took Ketek for several months. It was the first antibiotic she started when seeing the LLMD.
She didn't have any problems with it. I can't say it helped, but nothing has helped her so that isn't an issue.
Her blood tests each month were fine, no problems. She was also on Mepron during this period and one other, I can't remember! Does plaqenil sound right?
So in answer to your question, she had no known problems from Ketek, it was actually one of the meds she tolerated.
HUGS,
-------------------- ICEY Posts: 468 | From Las Vegas NV | Registered: Jun 2005
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I took Ketek for about 4-5 months and it was the most beneficial antibiotic for me. I improved a LOT and quickly, but about 4 months in, my stomach just said 'no'. Even when I re-tried it, I would get stomach aches, horrible gas and diarrhea (but not C Diff).
At this point though, with all the bad press, I'd be too scared to try it again.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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