I am getting better all the time. My energy levels and all of that are fine. I still have tinnitus, muscle twitching, some mild joint pain, numbness in limbs now and then.
By far the worst is the eye stuff. I have had flare ups of uveitis and vitritus since Oct 06 with floaters, dry eyes, burning, swollen eye lid all in my left eye, light sensitivity.
I see an opthamologist twice a month and it is managed by predistone drops but last week he put me on 20 mg of oral steroids. I know all about the risks but I am on antibiotics so I said fine do it.
My LLMD was going to take me off antibiotics if it werent for the eye issues. He has prescribed another 6 months of doxy 300 mg. He said he wants me eye settled fully for at least 2 months before I come off the meds. When the hell will that be?
Can anyone please let me know what experiences they have had with this. I am getting really worried as I have plans to move to China to work in Sept and I am in a bit of a race against time.
Your thoughts ideas would be really appreciated. Would antibiotic drops help at all?? Most of my problems are at the back of the eye though. thanks Neil
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
I'm no doctor but I wonder about your LLMD wanting to take you off your medication when you still have the tinnitus, muscle twitching, etc.
I'm glad that you've had a lot of improvement, but it would seem to me that those are clear indications that there is still an active infection. But that's just my opinion.
Have you discussed co-infections with your doctor?
Posts: 237 | From Rhode Island | Registered: Jan 2008
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posted
Yes he has treated twice for Bart with Cipro. He feels there is no need to treat any further as the Doxy gets the lyme and Bart. He is an ILADS doc and he did his training under Dr Burr.
I still feel I am infected and he does too. My symptoms are still flaring up a little especially at the moment. Its doxy all the way seemingly.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Oh...and I have also been on Buhners herbs for about 7 months straight. Andro, Jap knt, Catclaw, stephania root. Half dose = 32 tabs a day. I think any more is a bit ridiculous :-)
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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tailz
Unregistered
posted
My eye symptoms remain. I haven't worn my contacts in over a year because of it, but I believe it is from microwave sickness.
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posted
Well I believe its bugs in my eyes thanks tailz although all suggestions are welcome ;-)
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Please do your own research on this so you can make a well-informed decision, but there are some people that have apparently had relief with eye issues by applying castor oil packs to their eyes.
Some people have actually put castor oil IN their eyes, which I would never do. Though apparently castor oil is an ingredient in some dry-eye medications.
Again, do your own research and see if it's something you'd want to try.
I do castor oil packs on my abdomen as part of liver detox and stimulation for the lymphatic system. I make sure my castor oil is cold-pressed and hexane free.
I want to be clear that using castor oil for eye issues is not something that I have personally tried. Of course it goes without saying that you want to be beyond cautious when using anything near your eyes.
Best of luck, hope you are able to find something that works for you. Posts: 237 | From Rhode Island | Registered: Jan 2008
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posted
Thanks Niere.....will check it out. I agree with you ......cant be experimenting too much with the eyes. Although last night I put nettle tea bags in the fridge in pure water and applied them to my eyes for 20 minutes. Felt like it helped. Might try in again tonight. I'm also brewing up a small amount of buhners stephania root eye wash to put in with the tea bags. I'll see how it goes.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Have you tired Organic Extra Virgin Olive Oil? It really soothes the dryness on the lids (top & btm).
I also am using different essential oils. The peppermint essential oil seems to wake up the nerves for any droops.
My LLMD had me order oregano and clove oil for eye edema and dryness, too. (External use only...NOT for eyeballs)!!
You just have to be REALLY careful and dilute with the olive oil because the essential oils can be really potent. I put the peppermint oil above my eyebrow, on the temple and on my cheekbone (mixed with the olive oil) and sometimes my eye still tears up.
I'm only mid-Bart treatment so I'm optimistic as I kill the Bart, the eye symptoms will rectify and clear.
Other Bart treatment options: zith & Rifampin Levaquin
Cowden protocol: Cumanda
You probably already know all of this...but you never know which nugget of information will help.
quote:Originally posted by tailz: My eye symptoms remain. I haven't worn my contacts in over a year because of it, but I believe it is from microwave sickness.
my dog started talking to me yesterday. do you think he has microwave sickness?
Posts: 183 | From Craley, PA | Registered: Jul 2004
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posted
My eye sx cleared up a lot after a course of Avelox eye drops, an antibiotic eye drop. You should ask your Dr. for a prescription, and give it a try.
My personal belief is that all symptoms, including those of the eye, are caused by active infection.
Posts: 975 | From California | Registered: Apr 2007
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posted
broguearcher ....Care to share what your on? Whatever It is I'd ramp it down a bit with symptoms like that ;-) I agree tho....microwave sickness.....f*ck as if we dont have enough to be thinking about scuse my french!
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Psano2 Can you tell me how long that coure was and what dose?? Also briefly what where your eye symptoms ? I have visible inflammation to the back of my left eye. Definitely bugs in there...I swear I can see them sometimes.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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quote:Originally posted by NMN: thanks psano2 and Clarissa.
yeah I know right??!!! the world is wacked enough as it is without people believing that our appliances are conspiring to kill us.
Posts: 183 | From Craley, PA | Registered: Jul 2004
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Psano2:
Yes, I'd like to know more about the Avelox RX, too.
Also, like NMN, I'd like to know what your eye symptoms were? Did you have eyeball AND outter eye (btm & top lid) problems?
Please do elaborate, if you don't mind. I'm doing what I can but I still think something with abx in it would be more effective & efficient!
posted
Yes Clarissa I have some mild outer eye inflammation too. Mainly slightly swollen upper eyelid.....It has to resolve eventually eh?
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Hi - I've been able to successfully treat all eye symptoms by drinking mangosteen juice, an anti-inflammatory juice.
It cleared all symptoms up in 24 hours - eye muscle pain, blurred vision, floaters and light sensitivity - and has continued to do so.
I drink the Ultra brand, which has 70 minerals added to it from the Utah seabeds. There's also lots of other brands out there. You can find them in healthfood stores and online. There's also the strongest version, Xango, which is sold multi-level.
If you try it, drink a lot of water with it and go slowly. It can be powerful.
Posts: 13171 | From San Francisco | Registered: May 2006
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Thanks, Robin. I just started drinking Xango Mangosteen last month so I guess I didn't have the instant gratification you had BUT I am going to continue.
I'd flap sheets at the moon to stop this eye madness!
posted
I'm sorry to those who asked, but I forgot about this thread and just came across it again. I guess it's my Lyme brain.
In case anyone is still interested, I took a weeks worth of Avelox eye drops, 1 drop 3 times a day. I think you could just finish off the bottle, though. It's a tiny little bottle and is quite expensive.
Since using them last year I've been able to wear extended wear contacts again, something I hadn't been able to do for a long, long time.
I think it also helped w/my droopy eyes for a while, although I'm suffering from that again right now.
Sorry, I have to go now.
Posts: 975 | From California | Registered: Apr 2007
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scuse my french!
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