posted
I got a sinus infection last JULY and finally had surgery to clear out the maxillary sinus in January.
My ENT said prior to surgery that I didn't have a problem with infection, I had a problem with drainage. Meaning that when the sinus was opened, the infection would go away.
[I'm sitting there thinking "but I have lyme disease."]
So now, 5 wks after surgery, he cultured my sinus and I STILL have pseudomonas and staph aureus in there.
GGGRRRRR!!!!!
Back to the antibiotics... which I REALLY don't want to do as I am having major stomach issues right now.
I'm pulling out my Rife machine as we speak!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Awww TuTu,
That just stinks! Kinda makes you feel all of the surgical measures weren't really necessary because the problem still exists huh?
Been there. Sympathizing with you!
ps not sinus surgery, but many joint surgeries
Posts: 3975 | From usa | Registered: Aug 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
GGGRRRRR!!!!! :cussing:
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Feelfit...The good news is that the sinus pressure and pain is much less since the lid is off the teapot so to speak!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
TuTu,
Yay for less pain! Hope your teapot keeps whistling Posts: 3975 | From usa | Registered: Aug 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
"when the sinus was opened, the infection would go away"
Does that meant he DIDN'T give you ABX?!!!!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Another one for the ducks!
May need to hit it with something strong....
If your stomach can handle it.
So sorry....
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Strong? The only thing really strong [that was working] was the quinolones and I'm not going there again.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tutu, I got quacked today too. I will post a new thread about my gastro doc (friend) experience later. Maybe after I calm down?
You've been quacked my dear!!!!!You better get that machine out. It's your only chance. I do believe in the quack book 6 mths of abx for "sinus infection" is enough.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
TuTu...the friend I told you about that had the surgery about the time you did and had a CSF leak got an infection recently too...albeit a not as serious one and could clear it with a week of abx.
Unfortunately the poison of choice lately seems to be levaquin.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
lymetoo,
This sounds so basic, I am sure you have already thought of it, but I rebound to keep my sinuses moving.
Have you tried rebounding? If you haven't and don't have a rebounder, you can sit on the corner edge of your bed and gently bounce up and down......or I could take you horseback riding.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Seriously, your doc is not totally wrong. If you can keep the snot moving, the antibiotic can get in there and knock out the infection.
My husband had to resort to accupuncture along with abx to finally clear up his sinus infections. He hasn't had one now for a couple of years.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Two thoughts: my friend took levaquin for 5 days it helped some (but not totally). Another friend noticed that once she started going to the chiropractor her sinuses were much better. Go figure. Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10195 | From Illinois | Registered: Aug 2004
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posted
I'm still seeing the Bio Cranial doc...so maybe it will eventually clear with his help.
I've missed my last two appointments due to bad weather. I missed the one today and have an appointment for next Monday. [again]
My ENT said that some people lose the ability of the cilia to move the crud along.
Rebounding, huh? Been thinking maybe I should get one of those...wasn't sure my sciatic nerve could handle it.
Levaquin? I did take way more than 5 pills. Sets my nerves on fire. Ain't going there again.
Thanks, guys. All suggestions are welcome.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Boil up some salt water & steam your head!
OH and chicken soup!!!!!!!!! Scientifically proven to help clean up your head, they just can't figure out how it works. (that IS true, by the way )
I also had a DO tell me that drinking through straws & chewing gum helps too.
Maybe some of that will work, now that you have some drainage. I REALLY REALLY hope you feel better!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
TuTu...sorry about your nose snot working...
Have your Drs. cultured your goo for fungus? They are finding that, in a lot of chronic sinus infections, the issue is not only bacterial, but fungal.
Mayo clinic has a PHD/MD who discovered this about 8 years ago...he met a lot of resistance, but his work is finally being accepted.
Yes, as AliBabba said...salt water irrigation works wonders...since you are too far from an ocean or the Dead Sea.
Perhaps Music Man can hit some notes that will kill the snuggers? (snot buggers)
I am now on Mino again...and after two days, my sinuses seem to be getting better...perhaps for you too?
I find being outside really helps shrink the swollen sinuses...then when I come back inside, all hell breaks lose again...moral of the story?
Live in a tree house.
Feel better Tootski! Hello to Hubby!
Peace, love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey tutu.. or shall I call you Rudolph?
The staff may be able to be treated with a prescription antibiotic ointment up in the nose... so to save the tummy, maybe consider that.
The next point I want to make is...
The first way a body rids itself of toxins is through sweating... the skin.
The second way is through the sinuses.
Could excess toxins be a problem? Especially since your sweating may be at a minimum due to the cold weather?
I would have major sinus problems but I am still taking the Sudafed 12 hour capsules once a day. That one little pill helps dry things out without extra drugs I don't need.
Hope you get some good help and maybe an idea from the info here?
Feel better soon... or you MAY be hitched to the front of a sleigh the next time it snows.
posted
The ENT/surgeon said the goo was black when he did the surgery....but the culture did not show fungus...Go figure.
Snow?? Gonna get a foot of it tonight. Maybe I'll go play in it tomorrow and then go back inside to the warm air??
Sounds painful!!
Thanks James and TC... You guys are always good for a chuckle!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Over on the yahoo group, infection & inflammation, several people have done well for chronic sinus infections, with a compounded spray. If I recall it had gentamycin and amphotericin (antifungal) and a smidge of cortisone (to reduce inflammation).
How about considering that? Go register for the group on yahoogroups.com and search the archives and you'll find the discussions.
Also, put your pillows in the dryer for an hour. Or buy new pillows. I keep reading new studies about how our pillows develop fungi and bacteria and dust mites and all kinds of gross stuff. It can't help the sinuses to sleep on that. I just washed all my pillows in hot water cycle in the washer and then put them in the dryer for 90 minutes. They seem much fresher!
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Thanks, oxygen! I was on gentamycin and clindamycin compounded spray. It did a pretty good job, all things considered.
The addition of an anti-fungal sounds like a good idea.
I do have one of those special hypoallergenic pillow covers. It's supposed to keep out all the mites, etc.
I'm going to ask my ENT about another spray tomorrow. I don't know if he'll go for it. It was the first ENT who prescribed the spray last time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
tutu,
what a crock; after all that pain and surgery! they don't "guarantee" their work! shucky darn!
i use XOPENAX, sp, and lately ASMATEK, sp; i'm tooo lazy to go to another room to check spelligns of their names. they both are helping plus NASONEX and ALLEGRA ....
Have you ever tried Xlear. It is a nasal spray made with xylitol and grapefruit seed extract. I used to get sinus infections all of the time until I used that.
You can get it from iherb.com. I would recommend putting in in a different atomizer as it comes out more liquid that I like.
Good luck kicking that infection.
Cat woman
Posts: 9 | From PA | Registered: Feb 2005
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posted
Yes, I have it. I wish I had known about it BEFORE getting this infection. It may have helped to prevent it.
I agree that the spray bottle is a difficult one to use.
What do you put yours in?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tutu, you better not be sending that snow my way. Please, I've had all I can take of this depressing winter. Send it elsewhere, please?????
Tutu, PM me if you want to chat about some possiblities with your rife machine. I know you can get something moving and going with it.
I wouldn't be afraid to hit it three times a day with any known freqs that disrupt those two bacteria. Attack them, lady.
The abx seem pretty hopeless from what I've read and seen in your posts for the last several months. Chiro should be able to help some too.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
Tutu, For what it's worth, both my hubby and I were swabbed about 2 years ago and we both had staph way up there.......we were on Bactrim for 6 months, plus compounded nose spray.
Evidently this can be quite common with chronic lymies says our LLMD.
Staph is a tough bugger to get rid of......check it out and see how much Bactrim they recommend to eradicate it.
Take care!!!
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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posted
my daughter had her 2 sinus surgery in 2 mts..after 2 one found a bad fungus that didn't show the first time..after 2nd one she is so much better and can breath again...like lyme she was sick for a long time and could't find out anything ..now we know it was a very bad fungus that was harden in her sinus...good luck and take care
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