posted
I think I posted about this a while back but I thought I would try again see if I could get more feedback.
I would like to hear from anyone who has any experience at all with "episodes" like the ones I am having.
Here's my problem. I am still having "spells" or "episodes" or whatever you want to call them where I suddenly start vomiting out of no where (sometimes I have very little nausea and other times I have fierce nausea but cannot vomit). Here's what happens -- I start crying hysterically (uncontrollably) and I get a panic feeling in my chest. I start shaking and I usually get a slight fever (but often times I feel freezing cold). When these episodes come on I cannot speak at all or my speech is very limited (the speech disturbances ONLY ever happen during these sobbing/vomiting episodes). Usually I end up on the bathroom floor curled up in a ball sobbing hysterically and gagging then I go to the toilet and start retching violently. I also have at times (but not always) felt incredibly weak to the point where I fall down to the floor. At other times I stagger around and bounce off the walls like I am drunk but I don't feel drunk and I obviously don't drink! It is very dramatic. It happened a few days ago but it wasn't as severe as the last time it happened. These episodes can last for an hour or so. When I was on IV they lasted a lot longer than an hour but now I'm off IV for the time being.
The crying comes out almost like stuttering at times I really don't know how to explain it except to say it is not normal crying at all. It is explosive LOUD sobbing. It is just hysterical sobbing.
As gross as this sounds what ends up happening is I end up with tons of mucus streaming down my face and a huge puddle of tears on the bathroom floor. Like I said sometimes I vomit a lot and other times I have severe nausea but just have violent wretching and gagging but cannot vomit. I think it sounds like toxins in that it seems like my body is trying to rid itself of something through the mucus, tears, vomiting, sweating (I sweat like crazy usually when this happens).
The episodes come on pretty suddenly for the most part which is part of what makes it so scary to me. Some days I'll notice I have nausea and then the episode happens and other days (like a few days ago) I had no nausea and I actually felt relatively well before the episode came on. The speech comes back quickly once the vomiting and crying stop. I can speak again when it's over. There was one time on Rocephin where it took an hour or so for my speech to come back to normal. My words were still all very stretched out and it was a big strain to talk. When I am sobbing/vomiting and someone asks me if I need help I literally cannot speak and I find that disconcerting. I know what I want to say but no words will come out. Or if they do come out they come out excessively slowly to the point where no one can understand what I'm saying. Sometimes what happens is I stutter to the point where no words can come out (the speech is similar to the sound of the sobbing I know that makes no sense I don't know how to explain it). It just feels like my brain is tripped up on something and I have to let it run its course.
To me it *sounds* like toxin overload but I'm not sure. I'm especially puzzled as to why it's still happening while I'm off the Rocephin. I've gone over my symptom journal many times looking for patterns but there seems to be absolutely no pattern as to when these episodes hit. Some days it will happen two days in a row and other times I'll go a week or more between these crying/vomiting fits.
I am on the candida diet - no wheat, gluten, sugar, etc. My doctor knows about these episodes I've told him about them however I haven't yet told him I've had them while I'm off Rocephin. The thing is I want to go back on Rocephin because it's really helped me a lot.
Has ANYONE had episodes like the ones I've described?
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
| IP: Logged |
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
HI there. Just when I think I'm suffering more than any other person on the planet, I read your post!
I don't mean to make a joke, but my gosh it is horrible what you are going through.
I can tell you that I had some similar episodes so bad that I ended up in the emergency room after I was "floxed" or damaged by fluroquinolone antibiotics.
The panic on my chest was so bad the only way to relieve it was to sob hysterically in screaming fits. I was experiencing this becuase of the nervous system damage from cipro and levaquin.
It happened several times, and one time I even called Dr. H in New York while I was in the midst of it and home alone, and he told me to go straight to the emergency room.
Can't believe that was four years ago now.
Those episodes did become less and less until they went away. Now I just cry over the usual stuff, like chronic pain and fatigue, but at least I feel like I have a CHOICE in whether or not to cry.
What is going on with you?.....that is a really tough one. Sounds like you are doing your homework by looking for patterns.
I can tell you that after I was floxed, there were no patterns to these episodes either.
Did you say you have discussed these episodes with your lyme literate doctor?
Did you have these episodes before your lyme treatment began? Do you remember what medication you were taking the first time you had one of these episodes?
I hope someone can give you some solid information and be more helpful than I have been.
So sorry you have these, Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
| IP: Logged |
posted
"Just when I think I'm suffering more than any other person on the planet, I read your post!"
LOL I'm not offended that actually made me laugh.
Sorry to hear about your awful experience with the -floxin family of antibiotics. That sounds awful.
--->"Did you say you have discussed these episodes with your lyme literate doctor?"
Yes but I haven't talked to him about it recently. I will consult with him soon and talk to him about it again.
--->"Did you have these episodes before your lyme treatment began?"
No I NEVER had this stuff before treatment. I never used to vomit like this or have fits like this or speech issues or any of that. I did have lots of mood problems (mania, depression, anxiety).
In fact this is not the only thing that's developed since antibiotic treatment (I've developed new vision problems but traded in some other vision problems).
--->Do you remember what medication you were taking the first time you had one of these episodes? "
Tinidazole.
Thanks for replying.
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
| IP: Logged |
I get the dry heaves every morning but it ends up as a sneeze, I'll take it given the alternative.
I say back off your meds for a few days and see if you feel better. My LLMD always tells me this, if you get too bad it's ok to stop for a few days and then start up slow again.
I just said a prayer for you, hang in there.
Steve
Posts: 406 | From Rhode Island | Registered: May 2007
| IP: Logged |
posted
THanks for replying. This has been happening when I'm not even on any meds.
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
| IP: Logged |
I can relate to the crying episodes.. I would sob like crazy for no reason though...
I never had any vomiting from it. just crying.
In the early days, I would have panic attacks and then could NOT stop the crying, it went on and on and then I was so exhausted from it all.
But I found from my journals that it was related to my monthly cycles. Every 2 weeks: really bad around when I would ovulate, and then again 2 weeks later with period.
I have read alot that some women experience sx flare up due to hormones, for me that is very true!
I am sorry your are dealing with this, but unfortunately I think it's just the nasty Lyme talking... Laura
Posts: 232 | From MN | Registered: Jul 2007
| IP: Logged |
posted
I definitely have PMS but this thing is so not PMS. It is weird. I'm going to ask my doctor about it again. I think it may be related to parasites?
The crying and vomiting and speech issues always go together. I've never had the speech problems without the crying. It's weird.
Has anyone had the speech problems with crying??
I think progesterone is helping my PMS.
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
yes, catwoman, I have these episodes. My family gets fearful for me during these days because I feel suicidal.
It passes, but there is an undeniable toxic, heavy brained feeling.
The black cloud day, I call it. It even overides my Wellbutrin. Then, I'm back to myself.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic