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» LymeNet Flash » Questions and Discussion » Medical Questions » Positive MMS experience - support needed...

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Author Topic: Positive MMS experience - support needed...
aliyalex
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I've been on MMS for a month now. I started with 2 drops twice, an hour apart and had diarrhea when I added just one drop for 2 times then I went up to my recommended dose of 6 BID without intestinal reactions.

I have however been experiencing heat at night, painful joints, slight weakness for the whole month. I finally got to 6 last night and will not be increasing.

My question is, did the symptoms finally lessen? It is hard not to fear relapse. I keep waiting for the feeling better part to happen. I never made it through bad herxes on abx to feel better.

Thank you very much for support. Fear only mmakes everything worse, in my experience.

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D Bergy
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My wife is using it once every three or four days at or near fifteen drops a dose. This allows the dead matter to clear out in between. If you are continually killing it you really cannot feel better until you allow your system to clear out. Or until you have much less to kill. Who knows how long that will be?

In my opinion it is best to take it as long as it is tolerable, and then just quit taking it until you are feeling better. It is not really possible for the bacteria to adapt to it given the nature of how it works, so you can stop and start without making the bacteria resistant.

Some people do not detox and keep recycling the toxins, and it sounds like you may be one of those people. I do not have a lot of expertise in the detox part since it has not been an issue for my wife. She has used Burbur on occasion, but I really do not know how much it helps.

Hope you get better soon.

D Bergy

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aliyalex
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Thanks for the info. You are more knowledgeable than you think.

Does she take one dose of 15 drops? Did she have to work up to it?

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D Bergy
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She had to work up to it. At first she could not even tolerate more than one drop. It took a few weeks before she could take larger amounts.

Now she can take a full fifteen drops. She only takes one dose. It takes a day to clear the joint pain it causes. It varies in what joints hurt from one time to the next, and I really do not know why. I think it is safe to say bacteria is present in these joints.

D Bergy

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aliyalex
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My massage therapist tol me that we have a lot of lymph in joints and that is why the die off makes the joints hurt.

You said it takes a day for the joints to clear, does she stop for a day? I take my 12 drops a day, everyday and mt joints have been killing the whole month I have been on it.

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D Bergy
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She takes one dose every three or four days. By the end of the next day she is feeling little or no joint pain. Once in a while it will last longer, but hardly ever. It is too hard on her doing it every day. Mostly because it upsets her stomach if she uses it all of the time. I can drink it without any problems but she is more sensitive to it.

We thinking of using the Rife machine in between, but have not started yet. She used both MMS and the Rife machine a few days ago, and that took a couple of days to recover from.

There never seems to be any end to the Lyme to be killed.

D Bergy

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map1131
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Looks like you need to back off and pulse this stuff Aliyalex. Giving the body a chance to detox the bad stuff sounds familiar?

Using this stuff from ART appt?

Take care.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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maureen2174
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I haven't tried MMS yet because I am on mepron/zith and am afraid of inactivating these medicines with MMS. However, I do have it so when I am ready to use it, it is there.

I have read that a lot of people are taking it 2x a week and using the other days to detox. I have heard to take the one dose and then an hour later take another dose (do it at night) and then the following three days, detox.

Please keep us updated, once you slow it down a bit, if it helps.

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aliyalex
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This makes perfect sense. I get so impatient. Last night I cried from the joint pain 3 times in the night.

Sometimes it takes a sledgehammer for me to get it. And sometimes some kindly notes on lymenet. I guess I will skip tonight. Thanks.

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aliyalex
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OK, I skipped 2 nights and still my joints are killing. I have less spasticity in my hands, which was new, but the joints hurt terribly. Now I don't now whether to resume tonight with MMS or not.

I may restart with a lower dose. But that isn't pulsing. Any thoughts?

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D Bergy
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I give my wife Turmeric capsules 1000mg a day and Ginger capsules 500mg a day. This helps to control the inflammation and joint pain and thins the blood slightly.

Normally she does not need it for pain, but around the full moon it seems a little more pronounced. I have no idea why.

I would wait another day or two just to see what happens. It would be nice to know if the pain is the result of toxins from die off, or the disease itself. Until you have determined that, it is hard to know how to proceed.

D Bergy

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map1131
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aliyalex, I agree with D Bergy. Back off and do some major detoxing. This full moon last week was a very rough one for me. Just got back from NY City 5 day vacation week before. So did I pick up some unknown bacteria or virus? Full moon? Or major herx from using rife to kill off unknown virus or bacteria?

I know how sometimes doing life can suck progress right out of you. Take care lady.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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Larkspur
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NYC always makes me feel worse - I think it's the pollution

--------------------
"We must be willing to get rid of
the life we've planned, so as to have the life that is waiting for us" - e.m. forster

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aliyalex
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OK. First, thanks for the feedback. By the time I got it, tho I had already restarted 3 drops BID, an hour apart for 2 nights.

It makes sense to take more time off. My joins are not getting better and I think I must have the genetic deficiency that makes you not detox well. I have been taking apple cider vinegar and honey for 4 days, laying on my far infrared mat, taking cholestyramine and 90 chlorella per day.

OK. Maybe I will give it more time to clear as you two have said. Thanks. Oh, and I doubt it is the illness as it started right after I started MMS.

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map1131
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Lark, that's exactly how I felt after I got home from NY City. Detox, detox, detox.

Nothing against NYC, for anyone living there. I loved NYC. I'll go back. Didn't have time or energy to see everything I want to see and do in the Big Apple.

We stayed Times Square, 42 floor, beautiful view. Lights, lights and more lights, everywhere you looked.

I had horrible IBS symptoms the entire time I was there. Spent way too much time in bathrooms. Always made sure there was a bathroom in sight.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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