posted
IVE BEEN SICK FOR 3 YRS AND WAS ON TETRA FOR 1 1/2 YRS AND IT DID HELP WITH MY BAD DIZZINESS BUT NOT MY NUMBNESS. ANYONE HAVE ANY IDEAS? DIANA
Posts: 256 | From Boston, mass | Registered: Jan 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Have you been tested or treated any co-infections?
As for neuro lyme, I believe IV rocephin is the drug of choice.
Posts: 1603 | From ny | Registered: Aug 2006
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Cobweb
Unregistered
posted
I did IV Rocephin for 8 months-help clear up my brain(thinking) some-but not numbness/tingling stuff.
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daise
Unregistered
posted
Diana,
I did IV Rocephen for 6 months immediately followed by LA Bicillin shots in the rear 3 times a week for ten months.
Both cross the blood/brain barrier well.
They greatly helped my neuro/cognitive stuff.
Look for an LLMD (Lyme-literate MD) who is also an ILADS doctor. In addtion they can also look for co-infections--that's very important.
Suggestion: Go to the top of this page, to the left menu. Choose "Support Groups" and call for LLMD suggestions.
Also, go to www.ilads.org, to the left menu, choose "Treatment Guidelines" and that will take you to Br. Burrascano's 33 pages of tips for 2005. Tons of good information.
posted
lexapro and roxy is doing something to a what feels like a clump of bugs in my right brain. Its tingling there now, instead of migrain.
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posted
did any of your neuro lyme symptoms include rocking (like in a boat) vertigo?
Posts: 16 | From Atlanta, GA | Registered: Mar 2008
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daise
Unregistered
posted
Hi CamB,
Welcome!
Yes, vertigo is a sign of Lyme.
You mentioned rocking like a boat. You might start a new thread so everyone can see "rocking like a boat."
I hope someone will see it--and perhaps respond--who has personal experience.
Also, in your first post to that thread you might mention all your signs and symptoms.
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Time was the best healer of my neuro symptoms, which included mild seizures, vertigo, a LOT of numbness, cognitive difficulties, sensory distortion and disorientation.
I've been on oral abx since starting treatment--ceftin for Lyme and Rocephin for Bart (plus artimisinin for Babs).
Also added acupuncture to the mix.
Most of my neuro symptoms are coimpletely gone, a couple are just bothersome now, and I still get periodic numbness in my foot.
But these things took me almost 2 years to reverse.
Hope this helps and I hope you're able to find some relief
Andie
Posts: 2549 | From never never land | Registered: May 2005
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
CamB - just saw your post. Yes, I definitely had that "rocking like a boat" vertigo/dizziness, especially when I started treatment. When I first started treatment with only Doxy, I got that. I still have it once in a while though. I've also been having room-spinning vertigo which is WORSE than the "rocking like a boat".
But I just wanted to let you know that I have/had this. I'll be sitting perfectly still and feels like I'm rocking/swaying back and forth.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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