Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymer Family >>>>>,
I am trying generic Bactrim for an after flu infection.
Full dose seems to be giving me a viscious headache.
I tried going down to a 1/4 dose,still had it. So I haven't taken it for a couple days.
A sinus med often given w/ it,suddenly seems to be my enemy[and I've never had trouble w/ it before].
Some months back we tried bactrim too and nothing serious then.
Now my borderline high BP is getting crazy if I take the Generic Bactrim and the sinus med I see 'stars' w/ a worsening headache.[it is frequently suggested for use w/ Bactrim type meds].
Am wondering if I am herxing again? not sure. I will try 1/4 dose of Bactrim again prolly Monday? If Tx Coord is home.
We've been under lots of stress,looking for work for Tx Coord, and housing ... losing our Church job and so on.Ans serious car problems too.
Could the stresses and Meds combo cause a herx reaction I might'nt normally get?
I do have LD/Bartonella/Maladaptive stress disorder.
I have been taking *Cats Claw*,B-12[methylco'], acidophilus,and generic tylenol, w/ a couple sinus tabs a day.
When Taking the bactrim I have stopped the CC. I occasionally have a bit of juice w/ tonic water[w/ quinine in it].
Pharamacist didn't think these products would clash.
The sinus/allergy meds are 'chlorphineramine maleate' which has never bothered me before.
I have noticed that they re ently changed the label warnings somewhat.
Supposed to be packing and sorting,and I feel so tired...that I'm just dragging...feeling like I'm losing ground.
Any thoughts, suggestions, or ideas? Not sure what to do from here out?
Thanks, from Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hellooo....helloo...hello?????
Anybody?
Goodness...I was hoping someone was still around.
Still dealing w/ the headache.....
It's only me...Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Silver...
Sorry to hear you are feeling worse and are under so much stress too.
To be honest, I have reread your post several times and I'm sorry to say it would be near impossible for me to guess what could be causing these problems... and I AM trying.
That may be why no one responded, as they may also think this is more complicated than they can deal with and a matter for a doctor to decipher.
If your BP is going up and you are having bad headaches.. I would certainly contact your health care professional for advise.
In my opinion.. and I am not a doctor, but I wouldn't keep taking the Bactrim with all these problems you are having.. even at low doses.
Your body is telling you something if it is acting so badly... so maybe listen to it and stop the meds till the doctor checks you out?
Wish I knew exactly what to say here to help.. but it is a complicated situation.
I do hope your headache gets MUCH better and you have a nice Easter holiday without the pain and other problems.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Tincup >>>>> Hello,
Thank you for responding! Sometimes words fail me...I can often get plenty of them out there...but it is hard to relate what I mean concisely.
I have just been super puzzled by the reaction I am having to the meds. And have wondered if others had had this happen.
Our kindly PCP 'Ducktor' is 'Steere camp', and that makes things more difficult.
At this time I cannot use Doxy' for awhile [serious rashes], Zithromax is extremely expensive,and I have a definite allergy to penicillin products[swelling throat brething issues].
Anyways, that is my dilemma. Thanks for the tho'ts on the Bactrim. I'll see if we can find out if Dr. figures this is the beginning of an allergy reaction.
I wondered if it was a herx? Because of the 'seeing stars' blood pressure issues. I have 'migraine issues' as well.
And if I were to go in for a BP reading when this happens it is usually high.
Of course it had to worsen over Easter/Spring Break time...
So...we'll try to get in touch w/ Duckter,and see if he has any safe, inexpensive, treatment suggestions [no insurance].
I know that far too many of us, are in the same boat, no insurance,odd reactions to meds,foods etc.
[[Sometomes I wonder if it'd help to write some really pathetic/silly/sad country lyrics...wouldn't really solve anything...but maybe I could make somebody laugh...or smile...
Y'all know...like: If'n I was a science student...My homework'ld eat the dog an' run away.
It would hide out in a barn somewhar and eat up all the hay...
An'some unsuspectin' somebody'd find my homework and say...
Call out the big guns theres a space alien on the stray...
Run down luck keeps a comin' this a way...]]
-Okay,see I can write silly poetry,but all too often,cannot speak or write succunctly and clearly...but I digress[ Oy,at one tiem I could spell words like succinctly].
Well I'm gonna go for now,before I make my response post any longer.
Love from SilversillyWolf...jus' headachey me at 5:00 a.m.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Can't offer much except to say that Bactrim has been the only drug that my husband could not get to a full dose on, and ultimately had to stop because of some kind of reaction (ultra-herxing or toxicity).
It was a real disappointment, because he was getting a good response from it before things got bad. We are actually hoping to try it again in the future, starting at a very low dose (only with LLMD's blessing, of course).
I know that sometimes different drugs can be metabolized by the same enzyme pathway, and this can cause either increased effects, or more of a load to detox. I hope someone more knowledgeable in these matters comes by soon to help.
Sure hope you're feeling a bit better this morning.
Wishing you the best, Viva
Posts: 532 | From southeast US | Registered: Oct 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Viva >>>>> Thanks for teh reply!
Sorry to hear your husband had Bactrim problems also.
Just a few months ago,Dr. prescribed it for me, for a sinus infection issue,and it worked great. It was just short term no more than about ten days.
This time I'm having all sorts of issues.And I beleive that Tincup is right.
Theres a lot of things happening,and stresses. I don't know if the flu and the stresses are triggering problems? If it is a bad herx? If it is tixic[er toxic] build up?
Spoke to my Mom,she has Wegners Disease and must take daily bactrim. My fatehr is allergic to the Sulfa class of medications.
It is so discouraging to have no insurance w/ everthing else going on.
Duckters and duck hopsital aren't the best around here [my husband had a recent misdiagnosis,and had to have eye surgery after the mess up].
Trying to find relief,and the right side of my face is number than usual. Common issue for me.
Perhaps we can think of something else to treat w/ after talking w/ Dr. and pharamcy too,tommorrow.
I wish I could find an LLMD closer to us that was reliable. it is difficult not to be discouraged.
Find myself praying against the Neuro Lyme that's on my brain. The lesions toward the back look demylineating,like MS.
Actually I'm praying against all the LYme disease and Bart' issues w/ whatever else may be causing me to be ill.
Well now I think I'm startin' to just jabber along...so I'll go back and rest abit.
Usually when we ask questions here,someone comes along who has experienced something simular.
So maybe I'll get some answers? Or, if someone else is having bactrim reactions like Vivas husband did too,we can compare notes.
Thanks again, Silverwolf off to my den to rest!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Keep after that sinus infection. I still have mine after surgery and 8 months.
The only OTC sinus med I can tolerate is the Mucinex. It's the only one that won't make my heart race.
I hope you feel better soon!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Lymetoo >>>>> Hellooo, Thanks for the reply and info'.
I'll check into Mucinex,I can't belive this darn bug/infection is still getting to me.
But,then again,it has always taken me longer than most folk to get healed up...
Hmmm, I need to be packing and sorting,and I sorta feel like anemic overcooked asparagus might look.
I gotta get to sleepy land,hopefully w/o the weird vivid dreams I've had lately.
Thanks again for the replies and putting up w/ my weird 'poetic' lyrics too.
Love from Silverwolf of sniffles n sneezes.
Jus' an edit: I appreciate y'alls humor and kindness!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
i sent you a pm; check your inbox ok!
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< BettyG >>>>> Hello and Thank You!
Good info' and I'll show this to TxC' too.
He's a bit frustrated right now w/ the local 'indigent services' we were sent to for monetary help w/ eye surgery/office visits etc.
They wont help us becuase we didn't give them a full ten days notice of his medically neccesary surgery.
When we found out we barely had a weeks notice,he had to have surgery or lose the eyeball.
So of course we are appealing,so far the eye clinic/surgery dept. for the U' is being helpful.
This info' from the PM will hopefully be a big help.
I'll try to check back in as we check on some of the helpful info.
I'll BBL okay. Appreciate the help muchly!
Love Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I took 2 Z-paks this past month. It was generic brand and was much cheaper. Is this the same as zithromax?
Posts: 31 | From Central Texas | Registered: Sep 2007
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posted
Some sinus medicine-especially if it contains pseudiphedrine (sp) can increase your blood pressure. Try flushing out your sinus's-google sinus irrigation for how too's
Posts: 561 | From eastcoast | Registered: Aug 2006
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bettyg
Unregistered
posted
silver, yes, I thought that would be VALUABLE INFO to you both on fighting ALL the fights coming up now and in future.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hey silver when I use to get severe herxs I would get cold symptoms also .It was part of herx another thing I would watch is taking tylenol it overloads liver take a pain killer with asprin in it instead. When liver overloaded herx goes up in effect. Via cold symptoms. Hang in there.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< ILymbo2,Shoney,Treepatrol,all responders >>>>> Helloo,and thanks for the replies!
Psuedoephidrine has been on my NO NO NO list for a long time. Doesn't help,and makes me feel really cruddy.That is definetleya timely reminder.
So many sinus/allergy meds can raise blood pressure. And I am allergic to Coracidin[sp?],among other meds. As well as Ornade and so on.
If I could get rid of the 'slime' that I keep coughing and sneezing up,and stop aching...I might at least feel like a vegatable [haven't felt quite human in too long].
Still fighting the headaches,not sure they ever completely go away...
I occasionally use baby aspirin,and alternate it w/ generic tylenol,about 4and 1/2 hours in between.
HAve to be careful,or the inside of my mouth gets raw,w/ little sores. I don't use Ibuprofen,as my stomach wont handle it.
Trying a bit of lemon/lyme fresh squeezed in water. Tho' I have to be very careful w/ citrus too.
I haven't tried anymore Bactrim, and we cannot get generic Zithromax here. The Zithro' is ridiculously expensive also.
Thanks each replier so much,for your tho'ts and info'.I am trying to keep my chin where it belongs,as well as teh rest of my face LOL.
Just the Silverwolf who appreciates y'all!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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