I had been in treatment with oral and IV abx for 2 years (minimal improvement)and the last abx I took was levaquin which seems to have fried my central nervous system because I can no longer tolerate abx. I've done herbs in the past and am now seeing a chinese doctor who treats with chinese medicine and acupuncture....but I'm not doing well and even seem to be slipping backward. Does anyone have any thoughts on what I can do next. I'm very scared. Thank you.
Posts: 90 | From massachusetts | Registered: Aug 2006
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posted
Hi, I am sorry to hear you are not well. Have you tried Fluconazole? That is treatment for candida, so it is not an abx, BUT my LLMD claims it is one of the best treatments for Lyme! Esp. Neurolyme, it goes directly to the brain. It sort of cuts something so the borrelia can not multiyply or whatever....
I think you should try this if you have not already.
Hope you are better soon!
Posts: 347 | From sweden | Registered: Feb 2008
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The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Anything besides antibiotics is considered experimental, but if you are in the mood to experiment, there are some good suggestions in this post:
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Scottie, have you considered consulting with an ART practitioner or a good kinesiologist (muscle tester) to determine what herbs/ treatments may be beneficial for you at this time?
It seems like most of the people here who have success stories with alternative treatments also had some help from a `muscle testing' practitioner.
This might be something to consider to get you out of the `confusion' state and on the right track with treatment.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Scottie,
I had a similar circumstance happen to me years ago, which prevented me from taking antibiotics, supplements, etc. I had to see a drug allergist at Brigham and Women's Hospital in Boston--one of the few in the country. She determined that my body was pushed into an autoimmune state from a drug cockatail that I took. It caused burning sensations throughout my body, and later, seizure activity.
After countless doctors and alternative protocols, I finally saw a llmd who seemed to understand what happened to me. I had to go on steroids plus low dose pulsed antibiotics via IV to recover more. I had a vasculitis-like injury and it has taken me many years to achieve the health I currently have.
I know the views on steroids here, but it was my last resort. I was tested by the neuro in NYC and now take smaller doses of IVIG as well for nerve damage.
You might want to get assessed for an autoimmune type injury or state. My local llmd says she has seen other patients go into autoimmune from drugs themselves.
Since you are from MA like myself and if you would like to know the name of the excellent drug allergist I see, please e-mail me.
Best. Artist
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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ByronSBell 2007
Unregistered
posted
Why ABX did you take by IV and how much?
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Hi Byron. I don't know if you are asking me or Scottie, but in my case, I can only tolerate IV antibiotics. My drug allergist said the vein is less reactive than the gut. When I would try orals, the burning would resume throughout my body. Not good for me, and a precursor for seizure activity.
I took IV doxy because I could tolerate titrated doses and because it would combat the lyme, Erlichia, mycoplasma pneumoniae I had.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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posted
This message is for Artist. Sorry the PM is not working! Can you email me more information about your drug allergist? I am allergic to sulfas, zithromax, all picc line plastics and dressing adhesives, and now diflucan. Right now my LLMD has taken me off abx for two weeks while I am fighting thrush. Oh the good times! My LLMD wants me to see Dr. J in SC as he has way more experience with the "difficult cases." Any direction would be helpful. My email is [email protected].
Thanks!
-------------------- Mountaingirl
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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ralph
Unregistered
posted
For any type of allergies, access www.naet.com NAET is an allergy elimination technique that works for many types of allergies. IME about 80% of the time it actually eliminates the allergy.
And mountaingirl if you are interested in alt treatment in your state, I personally know a nurse / Naturopathic doctor in Parkersburg. Her daughter got lyme about 18 years ago and Bonnie was told that it did not exist in WV. She proved the "authorities" very wrong with her research and found some very effective ways to treat her daughter. So post if you would like to meet her. I have known and worked off and on with her for about 6 years.
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
I am leery of the Salt-C thing. And I use my fair share of unapproved experimental treatments. I do not know of anyone who has had exceptional results with this, and it has harmed a few people.
I would use Salt-C as a treatment of last resort. But that is just my personal opinion.
My wife and myself use Miracle Mineral Supplement (MMS), and I think it is far safer than Salt-C. Although neither has been tested thoroughly. If your stomach is trashed from antibiotics, I would not recommend MMS. It can be hard on the stomach.
There are lots of alternative methods, but these are the only ones I am familiar with. Pick one you are comfortable with from all of the good posts, and ideas.
D Bergy
Posts: 2919 | From Minnesota | Registered: Aug 2006
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
You could try essential oils. There are posts archived here by Farah. Hardynaka also rubbed essential oils on her skin.
I'm just dipping my toes into essential oils, so to speak, slowly, trying to get more information about safety. They seem to give me good results.
Posts: 1226 | From USA | Registered: May 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
There are herbal protocols - Cowden, Buhner, Zhang, etc.
Some people have found that they are useful.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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