I haven't touched base in awhile so wanted to stop in and say hi in the hopes many of you have found answers to what ails you.
Overall, I'm doing pretty well. I have a lyme doctor in tampa who handles everything for me from a medical side, and then I also see a nutrionist kinesiology guy also in Tampa who has helped me out greatly with muscle testing, natural supplements, and diet.
I have now been off abx for 8 months, which is the longest I've been without them since I was diagnosed 5 years ago. I feel like I am just now starting to have a little symptom relapse, but my llmd told me not to get down about that, as we're in unchartered territory. My hope is that the length of time I can be without abx will keep increasing until one day I don't have to take them at all.
When I relapse, the first thing I tend to notice is some neuro stuff - namely an uncomfortable pin prick sensation that can occur anywhere on my body. It's like a quick little zap that can happen anywhere and it feels like a little pin prick. Do any of you experience this?
While it can occur anywhere on my body, it tends to create a hyperactivity zone in my feet, where my feet kind of feel like they're vibrating and sometimes feel on fire.
For any of you that can relate, what do you do for this that helps? If you were me now, what would be your course of action? Perhaps a 2-week course of abx? What abx would you recommend for this neuro stuff?
Thanks again, and God Bless.
Marc
Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My LLMD in Missouri said that if my symptoms came back I would have to go back on ABX. That said, have you tried Nutramedix cumanda, etc.? It seems the Cowden protocol is popular as a followup to prevent relapses with the doctors on the East Coast. Many people on the board have expressed positive things, too. Check it out.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Do you have bart? It almost sounds like a bart/lyme relapse.
When I took levaquin for bart, the burning, tingling sensations in my feet decrease significantly.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
CherylSue or anyone else with knowledge of the Cowden protocall,
Thank you SO much for posting and introducing me to the Cowden protocall in this thread. I have been looking for a natural way to treat lyme without taking more harmful abx for quite some time.
I definitely think I want to try this, but have some questions to ask. Would it be possible for you, CherylSue, or anyone else with knowledge of this protocall to please send me a quick email at [email protected]
I tried to send a PM but evidently that is no longer permitted for some reason.
I look forward to hopefully continuing our dialogue in email. If anyone else has knowledge of this Cowden protocall, it would be great if you could take just a minute to send me a quick line.
Thank you.
Marc
Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003
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bettyg
Unregistered
posted
marc and others discussing cowden protocol,
go to www.publichealthalert.org and he was featured recently in there! don't remember which month but recently.
if you go to SEEKING DR., look for posts from JAZZY GAL, who is Dawn Irons, EDITOR OF PHA! For each month, she shows the entire contents in a table of contents so you know what to expect to read! IT'S FREE!! YOU CAN ORDER COPIES AND GIVE TO YOUR LLMDS/OTHER DRS. TOO!!
free papers; you pay for postage!! ************************************
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posted
I had this symptom and was told by Dr B to up the magnesium.It worked for me!
Posts: 82 | From east hampton ny | Registered: Jun 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Yes, Yes, Yes...I can totally relate to those pin prick sensations you are discussing. For me, it feels like shocks and I get them most often in my toes but it can be anywhere.
My LLMD said that it sounded like Bart to him which he already had me on treatment for, so perhaps herxing from it.
This isn't to say that's what is wrong with you. I'm not a doctor, but was just saying that in my case, my doctor said it sounded like bart.
So for that, I'm on 500 mg of Levequin a day and he also has me taking Ionic Fizz which is a magnesium product. Between the two, hopefully this will stop that sensation.
Too early to tell whether it will work or not. Do let me know if you find something that works since it's not only anoying, it just isn't comfortable. Ugh.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Thank you very much for the replies. This week I'll decide on either starting abx for possible bart or investing in the Cowden protocall. Does the Cowden protocall work on co-infections as well?
Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003
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