disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
This is driving me crazy.
I woke up this morning, drank only a little bit of water to take my pills and now I've been peeing constantly -- every 10 to 15 minutes or so.
When I first got sick this happened as well. It was one of my first symptoms.
I don't have a UTI -- if I did this means I've had it for over a year and a half now. So I know that's not the problem.
Why is this happening??? Anyone else have this symptom? I suppose maybe my body is trying to get rid of toxins, so I'm having to pee more? This is just a speculation.
Anyone have any thoughts or have this as well? It would make sense to me if I drank a lot, but I really only drank two sips of water.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
If not an infection (burning, pain), then it's the ol' irritable bladder issue. It did get much better with bartonella treatment. But it took over a year, with my daughter.
Posts: 2903 | From AZ | Registered: Feb 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I have this, as a matter of fact, last time I was at the Doctor, he noticed that I used the restroom 3 times, and asked about it.
He did a urine test, no bladder infection. Just a Lyme/Co thing I guess.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Wow ... I can tell I'm feeling better ... even if the symptoms are coming back again since I'm off my Neurotin for 3 days. ... I'm thinking enough to interact here.
Anyway ... very often an increase in urination (and even bed wetting) is due to allergies and food intolerances.
Every time I have an increase in it (and usually to an extreme), it is because I've eaten something I'm intolerant or allergic to. (I have/had many intolerances, so I won't list them.) Or, sometimes I just have simple environmental allergies.
My youngest was bed wetting when he was younger. We found he was allergic to red dye, so we removed it from his diet, and his bedwetting stopped.
My niece is allergic to milk, and stops bed wetting and frequent urination when she removes it from her diet.
Also, sometimes, your body can be responding to Lyme or other problems like an allergy. But, even if you have Lyme, try removing things from your diet one at a time, and see if anything helps. You may be very surprised.
Posts: 65 | From Burbank, CA (recent) from Midwest | Registered: Apr 2007
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posted
"Irritable Bladder" is a cop-out diagnosis. Interstitial Cystitis is a "more common than you think" cause of frequent urination and bladder pain.
It can be H*** on earth. I do believe my IC was caused by Lyme bacteria camping out in the bladder.
It's 80-90% better since I finished Lyme treatment.
Either way, treatment for Lyme & Co will most likely resolve it. Could be you are herxing.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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disturbedme
Frequent Contributor (1K+ posts)
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posted
Lymetoo - not sure if I'm herxing exactly, but my period did just start and that always makes my symptoms worse. So that may be it as well.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Not sure if this helps, but I too just developed this symptoms. Going every 20 minutes.
Posts: 370 | From NJ | Registered: Dec 2007
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posted
One day, while still teaching elementary school [if you can imagine], I counted how many times I went to the bathroom.
Final count was 38.
It ended my teaching career. Didn't even know I had Lyme. I was told I had Fibromyalgia about 15 yrs before I was forced into retirement.
Twas Lyme all along.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I agree with lymetoo. I have IC, and it is terrible. Many are finding that they have Bart. and IC.
I had frequency at first and now I get burning pain if I dont watch my diet, the IC diet that is.
Like lymetoo when i was able to work, i counted my bathroom trips, one morning i went 24 times prior to lunch :-( I would go to the bathroom and on the way back have to go again.
Keep drinking and go as soon as you feel the urge.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Hey Disturbed,
That was my daughters first symptom too...I had forgotten about that.
But we took her to Dupont Childrens Hospital and they told us to keep a urine log. It was every 30 minutes. Then came insomnia, hip pain and finally, GI attack. She had Lyme and bart.
Hang in there.
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
About the water. I found that if I sipped water all day while teaching, it actually eased the pain somewhat.
SIP is the key word. Only a little at a time. It will help dilute the urine in the bladder.
Now if you're at home....drink away!!! It will dilute the urine even more!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
treatment for Bart w/Rifampin helped me hold 4 to 6 hours. Sill on it, my 6th month.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
dmc - Yes, I have been treated with Rifampin. Only four months of treatment, but Rifampin was a great drug. Got me up to 70%.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
also, one more thing, right now you really want to avoid any thing that will upset the bladder more. such as citrus and spicy foods, and caffeine of course
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Boomerang
Frequent Contributor (1K+ posts)
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posted
Wow...didn't realize this was a bart issue.
Hubby has the same problem...seems he's always "on the go".!
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
YES!! Follow the diet if you just can't stand it!!!
See the links above for the foods to avoid.
No tomatoes, no cranberry juice, etc. Citric acid is usually trouble too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kelmo
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posted
quote: "Irritable Bladder" is a cop-out diagnosis. Interstitial Cystitis is a "more common than you think" cause of frequent urination and bladder pain.
Sorry, lymetoo, I used the wrong words. I can never remember the other words that have the initials IC...I wasn't giving a garbage pail diagnosis. It's just the only way I can think to describe it.
And, for whatever it's worth, my daughter's bladder issue, whether it was retention, or frequent urination, was worse around her period.
There were times we were on the verge of going to the hospital to get some relief.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
I hate this symptom! Half the time I can't even go anyway.
I have also a prob where during the day I think the frequency is (kind of) normal, but as soon as I try to nap or go to sleep at night I feel like I have to go every 10 minutes.
Drives me insane!
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
same problem feelfit going ALL THE TIME. could be a neuro-lyme thing to a endocrine problem (pitutuary problem, aldosterone, cortisol, etc) I pee all day long i hate it.
Posts: 217 | From Everywhere | Registered: Nov 2006
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quote:Originally posted by Larkspur: I hate this symptom! Half the time I can't even go anyway.
I have also a prob where during the day I think the frequency is (kind of) normal, but as soon as I try to nap or go to sleep at night I feel like I have to go every 10 minutes.
Drives me insane!
Very typical of IC. You are distracted from the pain during the day [maybe] but at night there is nothing to distract you.
Kelmo....I was "blaming" your doctor. I hate those "irritable bladder" commercials. They make it seem like it's just a little problem. Take a this pill and you'll be fine!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
im in a bladder flare right now, its been so long since it was this irritated. ugh. tried a new supplement and ate a sweet potato..
Lymetoo- I hate those commercials too, especially that new one with the red and blue balloons that look like the bladder.
How about the one where the woman is afraid to go to the bathroom at work, and then has a talk in the bathroom....with some cartoon or something.
I also wanted to add that the bladder stuff can also activate pelvic floor dysfunction, which can also cause frequent urination.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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kelmo
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posted
quote: Kelmo....I was "blaming" your doctor.
I didn't get that term from my doctor, I got it from a list of lyme symptoms.
quote: Digestive and Excretory Systems
Diarrhea Constipation Irritable bladder (trouble starting, stopping) or Interstitial cystitis Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
If you hate that term...I hate "fibromyalgia" just as much. Posts: 2903 | From AZ | Registered: Feb 2006
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
hi disturbed,
i have this symptom too. it was one of my first lyme symptoms, in fact. hate it.
i'm wondering, when you pee do you pee out a lot each time? or just a little/hardly at all? because if it's the former, it could be a problem with hormone levels (anti-diuretic hormone, or ADH) rather than IC. i thought i had IC for the longest time, but really my symptoms were much more reminiscent of diabetes insipidus, or 'water diabetes' (NOT the same as regular diabetes at all - completely different illness), caused by low ADH levels.
i'm pretty sure lyme can cause low ADH levels.
or, you might be getting rid of toxins. i always pee out a ton of water every ten minutes when i herx.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Heather - Yeah, I usually pee out a lot of water when I pee frequently. Though sometimes it's only a little bit at a time. Most of the time though, it's a lot each time.
Though one of my other symptoms is peeing and then finishing but then right away, it'll feel like I didn't get rid of it all and have to pee a little more.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
oh, ps, when this happens make sure you're replenishing your electrolytes/minerals. i drink liquid minerals in water, but if you don't have those, a good quality salt (real salt or himalayan salt) mixed in water can help.
posted
this constant bladder irritation was the symptom that got me on the search for a diagnosis and led me to lyme disease. i have had a lot of improvement with IV rocephin for bladder irritation. my bladder capacity has gone up a lot and overall my bladder is way better! it's awesome. i have yet to treat for bart (supposed to start levaquin very soon and i'm very nervous about it).
anyhow, how do you know if you have pelvic floor dysfunction?
i had insomnia before the bladder irritation but the irritation compounds the insomnia as i can't fall asleep when my bladder is really irritated. since doing 4 months of rocephin i haven't had the irritation so bad that i can't fall asleep. it's great. i hear bart treatment can help the bladder. i'm hoping it helps mine.
i have all my other symptoms i started with unfortunately. i made great improvement then went off rocephin and feel like i have relapsed within a month so i think it is bartonella causing the relapse??? i also have a lot of yeast which can make you feel crappy too and irritate the bladder.
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
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posted
i forgot to ask -- does anyone's bladder get very irritated in high humidity? high humidity drives my bladder mad.
anyone have an idea of why that might be?
Posts: 255 | From where we don't have Lyme disease | Registered: Jan 2007
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klutzo
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Member # 5701
posted
I have a Lyme friend who was tested by her LLMD and did indeed have low anti-diuretic hormone as the cause of her frequent peeing. She was only going about 8 times per day, so she did not want to take drugs. I believe the drug for that is a nasal spray called Desmopressin, or something like that.
My problem is much worse than hers, about 20 times per day, and I got an entirely different reason for it from my Integrative doctor. She ran a hair analysis using public hair (ugh) and it came back with a long booklet explaining all of the imbalances they found.
One of the problems I had was a severe imbalance of too much calcium compared with magnesium, which the report said would create bladder spasms, and extreme urgency and frequency, drastically lowering bladder holding capacity. That hit the nail right on the head.
Surprisingly, my Magnesium was not too low. It was just high calcium in relation to it, and the report said I should take no Calcium supplements and not eat more than one serving of dairy products every two weeks.
This created big problems, since Lyme has also caused me to get osteopenia, for which I take Strontium, among other things, and you must also take calcium when taking Strontium, or you will lose bone instead of gaining it. I take the lowest amt. of calcium I think I can get away with.
Also, I am mostly lacto vegetarian, and dairy has been my main source of protein my whole life. I can't afford much flesh food, and I can't digest the fat in it, even with strong prescription enzymes. It also makes me gag... I am a natural born vegetarian.
So, I just keep on peeing all the time, and I did raise my magnesium dose even higher,though my red blood cell Mg was found to be above normal. It's a Catch-22.
I have read things about calcium being deposited in all the wrong places in Lymies, and about how we should not take calcium supps., so I wonder if an excess of calcium might not be the cause of the peeing problem for some of the rest of you as well.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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cantgiveupyet
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Member # 8165
posted
the humidity thing could be yeast. when i was first sick, on humid days i felt like a fungus, my whole pelvis was tight, bladder hurt etc.
Im in a bit of a relapse thing right now too, as you know. its tough.
as for pelvic floor dysfunction, a urogynocologist can check for this during an internal exam, they will palpatate the muscles and can see if their tight bands etc.
Usually an IC specialist can also do this.
That is great the you had so much bladder improvement, yeah for some progress :-)
Ive just had a revisit with this horrible irritation, i hope i can return to my normal baseline soon.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
crazybrian and all. I think you're right. The only time I didn't have to get up in the night to go was last fall while on Tegretol. First time that happened in decades! So in my case, I'd say it points to the neuro-Lyme overstimulation of impulses being controlled by the anti-seizure med.
Anyone else notice this change on any other anti-seizure drug?
Posts: 422 | From Luck home | Registered: Sep 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
mjo- Yes i do, neurontin has helped me the most. Its definently a nerve and muscle thing for me.
Im also helped by Zanaflex(muscle relaxer)
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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