Genetic testing in the past did not show hubby to have any of the Lyme biotoxin susceptible haplotypes identified by Dr S. in the article.
So hubby either has a really really bad Lyme infection or an undiagnosed mold problem.
Will talk to LLMD at appointment tomorrow to try to make more sense of his C4a results.
Has anyone actually seen their numbers fall with treatment -- either antibiotics or questran ???
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hello Bea,
My C4a was 4,173
and the C3a was way over 13,000
I do have one of the dreaded genotypes.
I havent retested.
Please let us know what your husband's LLMD has to say about this.
Ive been thinking of both of you.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
bea, i'd never heard of this before but wishing you good luck and getting somewhere tomorrow on your appt. also to say we have missed you and that you/Steve have been in our prayers! Bettyg
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My C4a was 1828. which is top of the range, but certainly not as high as your hubby.
I have the same doubts about this testing as the CD-57, because we all seem to have a different mix of germs and varying amounts of treatment, so how can the results of these tests discriminate between the causes? And predict who needs more treatment, and what kind of treatment?
They might mean something, but has anyone really figured out what that is?
Furthermore, two CD-57 tests were done on me six months apart. One low, one high. But no difference in symptoms or meds. The only change was in the lab that did it.
Posts: 8430 | From Not available | Registered: Oct 2000
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A year ago when my lyme disease was aggressively treated with flagyl and ketek my c4a was around 1000. After scaling back on the lyme treatment, it increased to the 22,250. So in my case less treatment meant an increase in the C4a level.
I just had blood drawn this for the C4a test and am curious to see whether it has declined.
[ 01. April 2008, 03:07 PM: Message edited by: Walnut ]
Posts: 187 | From Washington, DC | Registered: Dec 2004
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posted
Did not have much time with the doc -- most of the time spent with the PA this month. Next month finally have an appointment with the doc only -- already have a whole list of questions all ready for that appointment.
About all the doc said about the C4a results was that he felt it was caused by Lyme -- he didn't feel hubby would be as sick as he is if mold was the main problem.
The main focus of this appointment was Babesia -- the one infection we thought might actually be gone. Will post more about that in another thread.
Lou -- I don't know how much faith to put in this number either. It seems like the only tests that indicate Lyme with hubby are the non-standard tests. But nothing else other than tickborne illnesses ever shows up.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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