posted
I was just reading the post about Michael J Fox and Parkinson's mimicking Lyme. One thing I saw on mentioned on there about excessive sweating.
It made me wonder, how many of you all have excessive sweating? OR do any of you have little to no sweating?
The reason I ask is that a week or so ago, my mom and I were talking about my daughter and the conversation made me realize that my daughter had mentioned how she never sweats. I thought back and realized she is mostly right.... she will get all hot and overheated and dizzy, seems to have trouble cooling herself down - but I never see her really sweaty even in the dead of summer.
I can only think of one time she actually sweated...and then it was down the middle of her back, not in her armpit area which was weird. And that was a 100 degree day in July when she had to wear a shirt and suit jacket attire for a show.
Then I mentioned it to my mother in law, who nonchalantly said 'oh, yea I never sweated either, until just a year or two ago when the doctor's realized I had a thyroid problem and got me on the right medicine. Now, I sweat normally for the first time in my life"
I just wondered what other people's experience with the sweating is... or maybe it has nothing to do with Lyme at all? I dunno Posts: 19 | From Chicago | Registered: Mar 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am in the "increased" sweating category.
Prior to diagnosis, my neighbor (who also has Lyme)
And I were talking about how much we were sweating during the summer here.
In additon to sweating a lot, we also spoke about how the smell of our sweat had changed.
We both had changed deoderants several times in a couple of weeks.
There are many members here who don't sweat.
Any other symptoms?
Maybe worth getting a WB via Igenex just to be sure.
Also having a thyroid panel run.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Alv
Unregistered
posted
I was bitt in colleg and since than I never sweat even though is summer Yes I had lyme for many years and I think that is where it started and my thyroid dysfaunction started than .
So do not be surprised if you find it as a start .My lyme was dormant .But when I had a virus I will get more sick than others.now I know why .
get an igenex test and keep an eye on her.It might take 1 co-infectiosn for the bugs to start multiplying .
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I am always clammy and sweaty.
Posts: 3905 | From USA | Registered: May 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I was bitten at age 5. I could not sweat for many decades. If you can't sweat, you don't cool off very well which means you feel hot when others don't.
Babesia treatment has made a HUGE difference for me. I can now sweat!!! First time in many many years. In addition, we used to keep our house temps very low. People who came to visit would wear coats or at the least sweaters.
In the summer, I could not go out in the afternoon because heat would dump my blood pressure and make me feel really sick and I always felt so HOT!!!
Now, instead of keeping our household temps at 64 in the morning, we keep it at around 68. HUGE improvement.
It took decades for me to get this bad. I would check your daughter for babs because if she has a similar situation to mine, it could continue to get worse. My tests basically showed negative except for one experiemental test that stated we should look at babs.
As soon as I went off babs meds (6 1/2 months on mepron and zith) I started to relapse so we know we have to treat again after I'm done with bartonella treatment.
In any case, I now sweat!!! I can be in normal temps!! So much healthier and allows me to be able to function a bit more normally although I'm still quite fatigued. I hope that will improve greatly once I get the babs and bart out of the way.
Good luck to your daughter.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Thanks Not that I am glad you are having the sweating or non-sweating issue, but I am glad to hear that others do have the same issues.
I am not going to spend any money on the Ingenix test until I absolutely need to. No sense in wasting any money until we need it to get additional treatment.
I am already convinced she has Lyme, and her Pediatrician agrees with me. (I believe his reasoning for being so willing to work with us is because his sibling had Lyme just a few years ago.)
She did have a positive ELISA and one band (41) on IgG.
That was enough to convince both her pediatrician and me that she really had Lyme.
Her thyroid tested normal on her last blood test.
The only two things odd on her last blood test were a high platelet count, and a high calcium level (which made sense because she has Osteopenia)
I read on this board that taking antibiotics before drawing the blood for a WB test can affect the results.
I then mentioned it to her Pediatrician, because she HAD been on antibiotics for a few days before they drew the blood.
He said we may run another WB later one, but said let's wait to make sure we do not need to run any other tests because he knows my daughter has a horrible fear of needles and doesn't want to subject her to any more than necessary.
If he does decide to test her again, I will at that time suggest either Igenix or Fry (and I will ask that it be drawn on a Monday and shipped express delivery).
I guess, more than anything, just hearing you guys say "yea that happens to me too" just helps me to feel we are on the right track and when I share it with my daughter, it helps her to feel less like she is complaining about every little ache and pain. I guess it validates her feelings.
Posts: 19 | From Chicago | Registered: Mar 2008
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Peacesoul
Unregistered
posted
My entire life I've never been someone who would sweat. I would work out in the gym for 2 hrs and not even break a bead of sweat. I would roller blade in the summer in the sun and never sweat. I always thought this was odd.
I got off abx 3 weeks ago and I've not stopped sweating since. But it's minimal. It doesn't drip (cept when I have a night sweat), but it's more a mist on my skin and extreme heat.
I think some people just do and don't sweat. I don't think it has anything to do with lyme.
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
misika wrote:
quote:I am not going to spend any money on the Ingenix test until I absolutely need to. No sense in wasting any money until we need it to get additional treatment.
You could be wasting a lot of money by not having her evaluated by someone who is well acquainted with co-infections. The majority of people who are unable to get rid of lyme have co-infections. I've read that co-infections must be treated in order to get rid of lyme.
Many of the co-infections are diagnosed clinically because the tests are not very reliable. In my non-doctor opinion, I'd get your daughter evaluated and treated if necessary for any of the co-infections. There are BIG advantages in being treated by an ILADS LLMD.
Your daughter may be able to get rid of the infection while she is young but if she is inadequately treated now, she may never be able to recover from the devastating health effects of whatever TBI's that she has.
Peacesoul - I don't know what relationship sweating has to lyme but as I've stated above, my inability to sweat was very clearly related to babesia. Also, many people who have excess sweating have babesia.
Doesen't make a lot of sense to me that your life long patterns would suddenly change in response to treatment for no reason. It *could* be a coincidence but seems unlikely. What I've seen in myself and in others is that treating one infection may cause another to surface. Are you sure you don't have babesia?
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Peacesoul
Unregistered
posted
Hi Terry, my LLMD does not believe I have babs because I never had night or day sweats.
Of course this is all just a guess, like everything else with lyme. Never got tested for the co infections because of the unreliable testing.
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
PeaceSoul - I didn't have day or night sweats either because I didn't sweat until we started treating babs.
You wrote: I got off abx 3 weeks ago and I've not stopped sweating since. But it's minimal. It doesn't drip (cept when I have a night sweat), but it's more a mist on my skin and extreme heat.
You say you have night sweat but later you say your LLMD didn't suspect babs because you didn't have night sweats. Sounds like night sweats are new and should be considered for a possible babs infection.
Like you, I now have dampness. Mine was occuring all day long since going off babs meds. This prompted my LLMD to put me on 1 malarone a day until we get through the bart treatment and can go back on babesia. Since starting the malarone, I have dampness that mostly occurs at night and in the morning now.
If you aren't getting substanially better with your treatment, I'd consider asking for a trial of babs meds to see if there is a response.
Terry I'm not a doctor.
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I used to sweat profusely working outside in the summer, my doctor said that's common with babesia. He also said when you STOP sweating, that's even worse because your body has shut down in a way.
Posts: 22 | From No Va | Registered: Mar 2008
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Not that I am glad you are having the sweating or non-sweating issue, but I am glad to hear that others do have the same issues.
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