posted
Just when I was feeling great, now this has hit.
I started a very small dose of Ceftin/Zith around the end of February. Twelve days later I had what we believe was a ruptured ovarian cyst. At the time I had kidney pain and bladder sensitivity, but it all went away within about a week.
The monday after Easter I went up to the full dose of Ceftin/Zith and around the middle of my cycle I had the same ovarian/flank pain again with the accompanying bladder sensitivity. I thought it was just another cyst acting up and that it would go away.
Well, it hasn't gone away. I've seen my obgyn and she ran a urinalysis and everything came back fine--she thinks it's the lyme. My LLMD also thinks it's the lyme and is convinced we can knock it out with treatment. I asked him if he's seen this in other lyme patients and he said that he's seen it many many times and that it's extremely common in lyme patients. He said that medicine can usually knock it out in about six weeks, but that he did have one case that was more difficult and it took them about four months to knock it out.
I trust this doctor a great deal, it's just hard to focus on the fact that this will get better when my bladder and my sides are screaming at me. Has anyone here dealt with this and got rid of it? I did a search and found that CaliforniaLyme had had success but I know she's not here anymore. Anyone else? I need to know that I'm not going to be stuck with interstitial cystitis for the rest of my life.
I can't live without tomatoes!
Posts: 237 | From Rhode Island | Registered: Jan 2008
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posted
I had lots of bladder issues over the years (before getting diagnosed with lyme). It would seem like a UTI, but it wasn't. It didn't get to the point that it happened all the time, just every now and then my bladder would flare. I just had it happen again after being on meds for a year. However, I just added bactrim to treat bart. and I have heard that pelvic/bladder problems can be bart.
I didn't have it the whole year I was on meds, I actually even realized that the other day and then bam, got it again a few days later, but it only lasted for about 5 hours and now I am fine again.
Hope you get some relief. I know how much it sucks to have that symptom. Do you have any pelvic pain too?
Posts: 871 | From NJ | Registered: Mar 2007
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posted
Thanks for the reply Maureen. I'm glad to hear that there are others who have a situation even somewhat similar to mine and were able to address it. Overall I've improved from a few days ago but it's still an issue. Last Tuesday my whole pelvic region was very painful, but we had testing done on that as well and everything came back fine.
I just read online somewhere that the most common place they were able to harvest lyme from mice was from their bladder--not in the urine but from actual bladder tissue. So it makes sense to me that if I'm knocking out the lyme my bladder wouldn't be too happy about it right now.
Thus far I haven't been diagnosed with bart--I do have a positive babesia test and I just started a short course of Mepron yesterday. I can't say that I've had any bart symptoms but who knows maybe this is one.
I guess for the time being I'm going to have to at least look into following some sort of IC diet until the meds can kick the lyme. I had iced tea and chocolate yesterday which are supposed to be big no-no's. Posts: 237 | From Rhode Island | Registered: Jan 2008
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posted
Sorry--I missed your reply Lymetoo--ugh, I know tomatoes are a big no-no...and I had those last night as well. No wonder I'm in such a state today.
I just love tomatoes though. I grow them for heaven's sake! Last year I had around sixty tomato plants.
The pain is like a UTI, but without the burning. My bladder and my kidneys to some extent just feel very tender and I feel as though I have to go all the time.
Thanks for the links. I'll be sure to look at them!
Posts: 237 | From Rhode Island | Registered: Jan 2008
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I definitely had pain in the pelvic region, now it seems more like in the lower kidneys area.
I did have a pelvic ultrasound done when this first started and they said there was a lot of fluid and that I most likely had had a ruptured ovarian cyst.
My obgyn did a bacterial culture and said it didn't look like I had any yeast issues. A few days previously I had treated myself for what I thought was yeast, now I have no idea if that was what it really was or not.
Can the pelvic floor muscles just be inflamed from treating the lyme? I keep thinking that this is all resulting from the lyme die-off and that it will eventually resolve. I hope so. And for now I am avoiding tea (not really a coffee drinker), soda, multivitamins, chocolate (not big on chocolate but I had some yesterday--it just figures) and tomatoes/tomato products.
I had made a mildly spicy chili shortly before this all started--I wondered if that triggered it.
Posts: 237 | From Rhode Island | Registered: Jan 2008
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posted
I get that too. I have pain in my ovary area (usually worse on left side, so not appendix!) and lower back with bladder sensitivity. I am not sure if it is food related or cycle related or both. I had a pelvic ultrasound and urine check, but both normal. I am not on any meds as of now. It usually happens for a few days and then goes away for a while and then back again, sometimes around mid cycle, but not always consistent. I am thinking now that it is IBS or some sort of other stomach issue??
[ 13. April 2008, 08:20 PM: Message edited by: ljaz ]
Posts: 35 | From MA | Registered: Feb 2008
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
ljaz- good point that you brought up about the stomach, often what i think is my bladder is actually my bowel acting up. Once i have a BM the burning pains subside. the nerves are all connected. ugh.
The pelvic floor is such an interesting structure. I do think it can get irritated very easily by the lyme dyeoff, especially if the bladder is inflamed.
I found what i thought was lower kidney pain for me was actually the top of my pelvis. It hurt so bad when the bladder stuff all started.
It wasnt until i went to physical therapy that I found out it was the top of my pelvis not my kidney.
The chili could have irritated the already inflamed bladder, for sure!!
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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quote:Originally posted by cantgiveupyet: The chili could have irritated the already inflamed bladder, for sure!
YUP
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I also seem to have IC. Sometimes I have UTI pain/burning, but don't have UTI. I also pee and then have to pee again a second later because the first time didn't get it all out. And then sometimes when I feel like I need to go, nothing comes out... or can't.
Or sometimes I have frequent urination when I didn't even drink enough to cause it.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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bettyg
Unregistered
posted
DISTURBED, you sound like me; i double void; sometimes even TRIPLE void!
i don't have IC, was dx last year with bladder SPASMS!
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posted
Disturbedme, I have the frequent urination thing too. I have to go 3+ times a night. My dr. said it was just overative bladder. Not sure if it is just a result of giving birth twice (not listed in the "Joys of Motherhood"!!!) or lyme related.
Posts: 35 | From MA | Registered: Feb 2008
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posted
Have you tried meds for overactive bladder. I think if those meds don't work then you may have IC. I haven't tried the meds yet.
Posts: 35 | From MA | Registered: Feb 2008
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I seem to have had dueling lyme and candida in the bladder for about 20 years.
Lyme treatment, specifically penicillin IM, got rid of my IC entirely.
Then it came back with a vengence, until I did quite a bit of candida treatment. Then it went away again, and I was comfortable for the first time in my adult life.
Then I went on a major sugar and coffee binge and it came back. The combination yeast and acid in the bladder isn't working for me.
But I do have confidence that I can get comfortable again when I treat the yeast systemically, deal with my coffee addiction, and switch to green tea.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Self-Help Tip -- Who would have thought that green tea, a drink so highly recommended for good health, is notorious for irritating an IC bladder. Even 1/2 cup a day can create intense bladder symptoms and pain.
Posts: 35 | From MA | Registered: Feb 2008
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posted
How can you tell if you have candida in the bladder? I really don't know if I'm having pain related to lyme problems or candida problems...either seems likely at this point, but it's definitely something. This info is probably not helpful, but I can say you're not alone. Four years ago (pre-lyme) I was told I had IC. It was awful, but after 6 months it just went away. thank God!!!! Now I'm running to the bathroom several times a night and feeling constant pain again. My lyme is almost gone tho. Disappointing.
-------------------- 09/29/07: bitten since 05/01: omnicef+biaxin+plaquenil 350 cats claw + knotwood thruout. Posts: 227 | From Northern CA (bitten in Illinois) | Registered: Jan 2008
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
backintherain- Have you ever had your pelvic floor muscles evaluated?
IF they are tight they can cause a ton of bladder symptoms.
Mine are super tight right now, i just got evaluated, and like i suspected the pain im feeling is not coming from the bladder, yet when i pee, i have burning, frequency and im up during the night going. THis morning i felt like i had to go real bad and not much came out(a sign for me its my pelvic floor)
I always try to mention this in my posts because this is a somewhat new diagnosis, many dr dont know about it, and it can be caused by TBD's. for sure.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
backintherain--can't say as I "know" this for sure, but in my various bits of research I've read that sometimes as people get better from lyme they start to have some of their original symptoms return, and then they disappear eventually as they make a full recovery.
So I hope this is the case for you!
Cantgiveupyet--that's interesting. I'll have to look into that. Thanks for sharing! Posts: 237 | From Rhode Island | Registered: Jan 2008
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