posted
I have been in a wilderness for the past 18
months. From my recollections it started with
taking Ketek (for lyme) in the fall of 2006.
After taking it for a little while I started
having hot flashes and some mood changes. I
stopped taking
the Ketek because I was feeling worse with these
symptoms. I thought things would clear up but
they continually got worse I had feelings of
chills and couldn't become warm enough and I
would become ravenous with hunger. Later in Feb.
2007 I had a very strange thing happening I woke
up having trouble speaking and feeling
disoriented the neurologist said I had a TIA
from checking the brain MRI but my primary
doctor didn't think I
had a TIA. I felt left in the cold with both my
neurologist and primary. A few months went by
and I started having problems with sugar levels
going low and having a difficult time eating
because I would have some fluctuations in my
blood pressure and would have these feelings of
warmth all over. It seems to point to something
gone wrong with my hormones and that Ketek was
the trigger. But I don't know what to do about
it or how to get some help. I am now getting
some abnormal kidney blood work which is making
me more aggressive in finding out what is going
on. I would appreciate any input anyone has.
I've called on you since there could be someone
that has some knowledge or experience with this.
I have left out somethings due to space. Thank
you!
-------------------- Julie L. Upman Posts: 18 | From St. Petersburg, FL | Registered: Apr 2001
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Alv
Unregistered
posted
Ketek hits lyme -but not reaches the brain -well - I had the same thing when I started Ketek and stoped DOXY
bart was another reason -that start flourishing .I would keep that in mind.
If you have it in your head-ketek -from my eks -make me relapse.
So mayeb you need a combination --for somehting to reach the BRAIN!
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Ketek..I didn't think anyone prescribed that any more. My LLMD said it was the best drug for his patients at the time, but too many were having liver issues, so he pulled them all off.
He is having success with the old minocycline stand by.
With neuro issues, you might get tested for bartonella.
Posts: 2903 | From AZ | Registered: Feb 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
There was an article in Readers Digest last month, or the month before, about KETEK and how it could cause severe liver damage w/in 5 days. The article was about the antiquated condition of the FDA.
Maybe it messes with other organs (kineys) too?
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I started on Ketek two years ago, along with Omnicef, Plaquenil and supps.
I was on it for 8 months and I made amazing progress during that time.
i took milk thistle the entire time and had my liver functions monitored closely.
i know that research is constantly evolving, but i would not consider Reader's Digest to be a medical journal worthy of overruling what my LLMD recommends.
I would suggest you contact your LLMD about what is going on and proceed according to his suggestions.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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