posted
I was wondering if anyone that had trouble walking,,with a cane or walker,has ever come bsck to regain strength and range of motion in muscles to be able to walk again,,if so ,how long,,and what abx's? Suffering here for 8 months,,legs weak,,can't sit up in bad either.
Posts: 71 | From Mass | Registered: Apr 2008
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
I know someone who spent four years with an MS diagnosis, including six months in a wheelchair. Then she was diagnosed with lyme, took antibiotics, and improved tremendously. She still has foot drop and wears a little plastic brace. Otherwise she is walking fine and finishing up a new degree.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes, I did.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I used
Tetracycline 750mg x 2 Biaxen/Plaquenil 500mg x 2 and 200mg x 2 IV Vancomycin 1.25 g in saline solution Penicillin 1000mg x 2 Bactrim about 1gram x 1 Levaquin 500mg x 1
The IV and Tetracycline likely had the biggest impact. I can still walk, but my illness is obviously not cured yet. I'll get it though, I always win in the end.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
that's encouraging to hear,,but hard to believe at this point!
Posts: 71 | From Mass | Registered: Apr 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
How bad *** are you? Motivated? Strong willed? Hehe, if you've got some serious frustration with this illness, direct it into your recovery. A strong, yet patient, persistent, and perserving (Three P's awesome) attitude combined with a competent doctor -- then you'll manage to beat it back.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
being an athlete,I was always up to making my body do what it wasn't suppose to do,that's why this is so frustrating,I'm training harder then I ever had,,and no results.How bad am I? well walking and holding on using a cane
Posts: 71 | From Mass | Registered: Apr 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Here's the key. Don't push so hard. Remember the slogan "easy does it?" -- it works with Lyme disease when it comes to rehabilitation. You can't rehabilitate faster than the treatment allows. When as ill as you are, your main weapons just like when you were an athlete: your diet, your mind and supplements. Though I must admit the mind doesn't work so well when Lyme is involved, but usually most people can write things down, which helps. I keep a blog that I use to generate drive. I read it over the next day and it's as though someone else wrote it.
Focus on eating as well as you can, and remember that detox, water, and supplements can be very effective tools. Just make sure to ask Dr. D. I know he doesn't want you using a multi-mineral, but he'll ok most things if you ask him. Immune stimulants, detox supplements, probiotics, etc. Use what you can afford. Everyone here will be of great help.
Use one tool at a time until you're comfortable with it. When you're sick and can't do much, get yourself some of those 2lb handweights. I would sit on my couch and do gentle lateral raises. Lifting the weight in front of me, then to the side to strength my shoulders. I would do curls. Before I knew it I was doing hundreds of reps as the illness receded.
Go easy, one small step at a time. Remember once you make progress, don't expect to keep it just because you see it. The key isn't to get giddy over any progress, because it comes in fits and starts. The progress is measured in months and years, not days or weeks like it was when you were healthy.
You'll beat it, but you can't listen to anyone who tells you otherwise. I know folks who have beaten this illness, so if they can do it, I can do it.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
I would say that I was a wannabee athlete since I was about 16. I ran every day, went to the gym, kayaked, camped, hiked. I never was, "athletics are my life!" or got real buff, though I would have like sculpted muscles.
I believed that the prescription for all physical ills was exercise. I would run through the flu, colds, etc.
So I kept pushing myself, as best I could, but in the end, in my case, it was working against me.
I had been having atypical seizures, that weren't diagnosed at the time, that were brought on my activity, concentration, etc. Once I clued in, I stopped trying to work, and rested, had plenty of liquids.
By last March I was bedbound as a result of the progression of the disease. I am considerably more able now, due to treatment and anticonvulsant medications, and now I float around the hot pool on 2 noodles. My brain and my body are in continual dialogue.
All this to say, please listen to your body. Your body knows what it needs. If you're saying, "I need rest". Rest. The rest will come.
Best wishes,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
Finally I see there are others out there with my symptoms and concerns!
How long do these recoveries take? I know it is different for all but a few examples would me most encouraging! All I can find are wonderful recovery stories in a matter of months and usually with a positive test to back them up.
I only tested positive for Anaplasmosis (Erlichia) Tried many abx but symptoms continue and progress. God bless! SuzyQ
Posts: 15 | From Menomonie, Wisconsin | Registered: Jun 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I am another case that was bedridden and unable to walk by the time of diagnosis of lyme. They thought it was a stroke after they had given me epidural steroid injections but in hindsight, that appears to be the factor that sent my neurological symptoms spiraling out of control.
With treatment for lyme, bart and babs, I went from being carried to the bathroom, to wheelchair, to walker to cane to now. I still have trouble getting up a flight of stairs without using hand rails to really really pull myself since my hands are stronger than my legs I guess, but it's getting better.
This was all done with orals, although I've had some recent set backs (still walking though) and being referred to a more well known LLMD that I see tomorrow.
But with this said, I know FIRST HAND, that yes, it's a LOT of hard work, but you CAN walk again. Good luck to you and keep us posted on how you are doing.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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