Ototoxicity--The Hidden Menace; Part I: Lives in Upheaval
� November 2003 by Neil Bauman, Ph.D.
Excerpts:
What Is Ototoxicity?
To many doctors, ototoxicity just means hearing loss or tinnitus. Others consider only drug side effects that affect the inner ear as being ototoxic. However, Stedman's Medical Dictionary defines ototoxicity as the "property of being injurious to the ear."
Therefore, any side effect of a drug that damages our ears in any way is ototoxic whether it damages the outer, middle or inner ear.
. . . hearing loss . . . tinnitus, dizziness, vertigo and numerous other cochlear and vestibular (balance) problems . . .
There are at least 743 drugs that are known to be ototoxic. Here are just 84 of them:
. . . BENZODIAZEPINES such as Diazepam (Valium) . . . .
(Vicodin) Prescription Painkillers Linked to Hearing Loss
Excerpt:
. . . It is the combination of acetaminophen and hydrocodone that seems to cause hearing loss, though scientists don't yet know how. . . . (end quote)
====================
(poster's voice here) There are recent articles linking acetaminophen, itself, with hearing loss. I thought I saved those to my file but can't find them. I will look later.
However, since acetaminophen is toxic to the liver, it makes sense that it would also be toxic to the ears as the ears are the very first body system to even detect toxins.
Excerpt: . . . "I was taking Tylenol like I was supposed to, by the label," he said. A few days later the then 37-year-old Benedi was in a coma and in desperate need of a liver transplant. . . .
======================
As well, anything hard on the kidneys may also be hard on the ear tissue. The connection is not made in this article but it sure seems to call for caution:
Kidney Peril Found in the Pain Reliever Ibuprofen - The New York Times - April 16, 1990 -
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Keebler
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- Talking L-Glutamine? It can convert to glutamic acid in the brain and that is not good for those with neurological disease.
Excessive glutamic acid can also lead to tinnitus and other vestibular problems. This article does not say so, specifically, but when the NMDA receptors go haywire (as with excessive glutamic acid in the brain), tinnitus usually follows.
AMINO ACID SUPPLEMENTS I: GLUTAMINE - with Reference to the Related Compound Glutamate
-by Subhuti Dharmananda, Ph.D.
Excerpt, half way down the article:
. . .
Glutamate in Neurological Diseases
The other concern about glutamate is related to its essential role as a neurotransmitter. The levels of glutamate in the central nervous system (brain and spinal cord) are highly regulated, since the neurons have sensitive receptors for the compound.
In some neurological diseases, it is found that glutamate levels in the central nervous system become unusually high at sites of pathology. This can occur, for example, if the rate of degradation of glutamate is slowed by an impairment of the enzymes that are involved.
Also, glutamate is excreted by immune cells that take part in inflammatory processes; the result is high local concentrations at the neurons in progressive neurological diseases such as MS and ALS.
Glutamate levels in the central nervous system can also increase when the blood brain barrier is substantially weakened, as occurs after neurological surgery.
The excess glutamate at the neuron acts as a poison; at high enough levels, the nerves exposed to glutamate can be completely and permanently damaged, so that they are no longer capable of transmitting signals.
Thus, while glutamate is a major component of the body, and an essential part of the nervous system, high levels localized in the nerve cells can be quite toxic, and this is readily demonstrated in animal models.
Laboratory research has revealed that in the progressive, debilitating disease ALS, one of the many processes involved in disease progression appears to be damage of nerve cells by accumulation of glutamate.
In relation to multiple sclerosis, changes in control of glutamate homeostasis in the central nervous system might contribute to demyelination of the white matter of the brain (19).
Based on preliminary animal studies, it has been suggested that glutamate dumped by immune cells can exacerbate the nerve damage (20).
One of the means by which a stroke (causing blockage of blood circulation to the brain) results in brain damage is through an increase in glutamate levels in the brain cells (of course, oxygen deprivation and other effects are also contributors). These findings point to local glutamate excess as an important factor in brain diseases.
** Since glutamine is converted to glutamate, supplementing glutamine at very high levels in persons who have such neurological disorders may be contraindicated. **
. . . . - Full article at link above. -
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Keebler
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-
Excerpt: . . . "I'm willing to say that 80 percent of people will not have problems," . . . .
By Elizabeth Landau, CNN April 23, 2010 8:07 a.m. EDT
Excerpt:
. . . But doctors say that for eyes unaccustomed to watching 3-D for hours every day, there are some dangers, including mild symptoms such as disorientation and, in rare cases, seizures. . . .
. . . More commonly, people may experience dizziness or other discomfort after watching something in 3-D, including a feature film.
Symptoms of nausea, headache and fatigue may result because 3-D causes the eyes to move in an unnatural way . . . .
. . . "I'm willing to say that 80 percent of people will not have problems," . . . .
As for long-term effects of watching 3-D television instead of regular television, no one knows for sure because it's too new.
Park is concerned about serious consequences for children who watch 3-D television for long periods of time -- "a continuous abnormal stimulus may possibly have long-term effects that are yet to be studied," she said.
WHAT IT DOES: Ginger root is pungent in taste, and warming, and mildly tonic in action. It improves digestion, reduces nausea and mucus, settles the stomach, and reduces inflammation.
SAFETY ISSUES: Ginger may increase absorption of pharmceuticals, and may irritate the stomach in sensitive individuals or those with severe acid reflux problems.
STARTING DOSAGE:
* Dried powder: 500-1500 mg one to three times per day
* Tea: drink freely . . .
* Because of its digestive and anti-nausea actions, ginger can be used to treat dyspepsia, nausea and vomiting associated with pregnancy, vertigo, dizziness and motion sickness (Schmid et al., 1994; Visalyaputra et al., 1998).
. . . .
Ginger acts as a digestive aid as well as a peripheral blood circulation stimulant, so it is useful for increasing poor circulation. Its pungent essential oils aid digestion by stimulating the activity of digestive enzymes (Platel K et al., 1998).
However, despite its hot spicy taste, ginger inhibits the synthesis of the ``bad-guy'' inflammatory chemicals, prostaglandin and thromboxane (Kiuchi et al., 1992).
TCM doctors tell us that fresh ginger is better than dry ginger for easing nausea, mucus, indigestion and stomach pain, and for stopping diarrhea caused by poor digestion. Conversely, they tell us dry ginger is better for warming the body.
The anti-inflammatory actions of ginger, noted centuries ago by TAM doctors, are strong enough to reduce muscular discomfort and pain in osteoarthritis and rheumatoid arthritis (Srivastava et al., 1992). . . .
HOMEOPATHIC remedies (pellets under the tongue) are also helpful. Nux-vomica never worked so well for me, but others say it helps them. Tabucum and Cocculus, together, have kept my stomach contents from showering air travelers - and it can have an immediate effect. Boiron is the brand I used but there are a couple other good brands.
Nux-vomica
Tabacum 30 c
Cocculus Indicus 30 c
==================
Acupuncture can help - but also having an acupuncturist teach you how to do it yourself as needed - and also teaching you acupressure on the wrist points. It was never enough for me, though - not by a long shot.
When I fly, I take both Ginger Capsules for prevention and then, if there is a disturbance of my inner universe, the homeopathics as needed.
As for taking Ginger bedides to help when flying, it also helps reduce nausea and also is wonderful for a pain reducer and anti-inflammatory agent for all times. It may also help lessen herx effects. -
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Travel and Vestibular Disorders: Helpful Strategies to Consider in Planning a Trip (from VEDA) -
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ORL J Otorhinolaryngol Relat Spec. 2009;71(2):78-86. Epub 2009 Jan 10. M�ni�re's disease is a viral neuropathy.
Gacek RR.
Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School, Worcester, MA 01655, USA. [email protected] Abstract
Morphological and clinical evidence supports a viral neuropathy in M�ni�re's disease (MD). Quantitative examination of 11 sectioned temporal bones (TBs) from 8 patients with a history of MD revealed a significant loss of vestibular ganglion cells in both the endolymph hydropic (EH) and non-EH ears. Transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 73 of 86 patients with vestibular neuronitis (85%) and 32 of 35 patients with MD (91%). Copyright 2009 S. Karger AG, Basel.
PMID: 19142031 [PubMed - indexed for MEDLINE]
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ORL J Otorhinolaryngol Relat Spec. 2008;70(1):6-14; discussion 14-5. Epub 2008 Feb 1. Evidence for a viral neuropathy in recurrent vertigo.
Gacek RR.
Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School, Worcester, MA 01655, USA. [email protected] Abstract
The concept that reactivation of latent neurotropic viruses (i.e. Herpesviridae group) in the vestibular ganglion is responsible for recurrent vestibulopathies is presented. A similar histopathologic degeneration of vestibular ganglion cells in vestibular neuronitis (VN), M�ni�re's disease and benign paroxysmal positional vertigo is presented to support this concept. The clinical response (relief of vertigo) to the administration of antiviral medication in these syndromes provides practical evidence of a viral neuropathy in patients with recurrent vertigo. Relief of vertigo after this treatment was 90% in VN, M�ni�re's disease and VN. The relief of positional vertigo (benign paroxysmal positional vertigo) was 66%. (c) 2008 S. Karger AG, Basel
PMID: 18235200 [PubMed - indexed for MEDLINE]
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Keebler
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- Marrit,
Thanks for finding these. No wonder that steroids often prescribed by ear doctors (unaware of chronic infections) often make things so much worse.
From the Herpesviridae group - HHV-6 & HHV-7 - are two that some patients with lyme seem to also have and a good place to start with testing. For a start:
========================
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
Human Herpesvirus 6 (HHV-6) is an immunosuppressive and neurotropic virus that can cause encephalitis and seizures during a primary infection or when reactivated from latency in immunosuppressed patients.
New research suggests that HHV-6 may play a role in several chronic neurological conditions including MS, mesial temporal lobe epilepsy, status epilepticus and chronic fatigue syndrome.
There is an urgent need for more sensitive diagnostic assays and for studies that can prove or disprove the important disease associations that have been suggested. HHV-6 was discovered in 1986 in AIDS patients with cancer and lymphoproliferative disorders...
There are two distinct variants of HHV-6. HHV-6A is the strain most likely to be found in MS, CFS and AIDS and cancer patients.
HHV-6B causes roseola, febrile illnesses and encephalitis in infants and reactivates in transplant patients, causing complications such as encephalitis, pneumonitis and liver failure. HHV-6B infects close to 100% of children by the age of two, causing mild flu-like symptoms and rash in some, but occasionally progresses to high fever, encephalitis and seizures.
In most cases, the virus goes into latency. However, in patients with impaired immune function, the virus may persist in its active state at low levels for years. . . .
. . . Unfortunately, chronic HHV-6 infections are notoriously difficult to detect with current diagnostic tests. . . .
. . . Overview on HHV-6 testing. Nearly 100% of us have been infected with the HHV-6 virus by early childhood and have antibodies to it, and at least a 30% of us have small but detectable levels of latent virus in our blood1 2, so the relevant questions are notwhether you have the virus, but rather how much virus do you have, and is it active or latent? . . .
lymie_in_md
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hhv-6 is totally underestimated!!!
Viruses fly under the radar because of all other treatments for other pathogens. And may cause most of the symtomps we experience. If lyme knocks down your immune system, what happens to all those viruses. Well they have a field day at your expense. The question one might ask, how much are symptoms due to lyme and how much are they due to viral explosion.
You know what, nobody knows! They are not even asking those question.
2 years ago I had an ART assessment. The doctor broke open his testing vials for all that is virulent. None of the coinfections and only a slight hint of BB showed up, but what did test was myco's, yeast and herpes simplex. He told me to just supplement with fish oil for the herpes viral infection.
I've now learned this infection maybe at the core of many physical issues. I've still despite everything I had done, had stiff legs and autoimmune issues. Although my energy was ok, I never felt quite perfect either.
Well I've been using a number of antivirals in combination and I've improved a good bit. And you have to understand, I already felt great! Anyways, my energy is now perfect and I'll know more when I get tested for autoimmune issues plus the leg stiffness is totally gone. And my body repairs even faster then before, which was acceptable. We'll see!
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Keebler
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- Besides actual sound (decibels) - VIBRATION through the body/bones can affect ears. That knowledge is nothing new to ear experts but the general public has not been on the receiving end of that knowledge.
Glad to see someone is thinking about it out there for the people who are working so hard to feed us: -----------
Assessment of annual exposure of private farmers to the whole body mechanical vibration on selected family farms of animal production profile
[Article in Polish]
Solecki L.
Instytut Medycyny Wsi im. W. Chodźki, Zakład Fizycznych Szkodliwości Zawodowych, Lublin
Excerpts:
BACKGROUND: Besides noise, mechanical vibration of a general effect (whole body vibration), is an important physical risk factor that occurrs in the farmers' work environment. . . .
. . . CONCLUSIONS: Considering the fact that mechanical shocks occur in agricultural vehicles (mean maximum accelerations values registered: 0.86-0.99 m/s2; standard exceeding), and the threshold level of vibration exceeds the required values,
adequate steps should be undertaken to protect private farmers against the risk resulting from exposure to mechanical vibration while performing their work. -
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Keebler
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- Regarding SNORING coming from loved ones (or even in the next apartment), here are some things to consider:
Topic: Earplugs that really work (?) -
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Keebler
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- Clearing clogged ears.
While many do hold their nose and blow to try to pop ears, my ear doctors have told me not to hold my nose and blow. It can damage ears.
Holding nose and swallowing can be helpful, though, and does not put the kind of pressure on the ears as blowing does. Yawning can help.
Also never try to block a sneeze by holding the nose while sneezing. Hold the nose can, sometimes, help to stop a sneeze but once one starts, let it go naturally.
What else can help ears to clear? SINGING. Yes, singing can help. Humming, too. It's maddening, though, with blocked ears so don't torture yourself, just give it a little vibration.
The ears really take a hit with lyme. Liver congestion also can clog ears. Really. (I saw that raised eyebrow !).
Ginger Capsules can help. Avoiding gluten, dairy, corn and soy can also help. Magnesium and Turmeric can help reduce inflammation. Allicin/Garlic can also help. Wasabi and Chinese mustard, too (with a meal, that is).
Stinging Nettle helps (as it helps reduce elevated cytokines that cause inflammation) and Quercetin also helps with upper respiratory clearing.
On-going liver support is essential for the ears. You might also benefit from gentle cranial-sacral therapy that addresses the eustachian tubes. (Never any quick neck twisting, though.)
Some yoga poses are also helpful to move lymph and, thereby, help open up the eustachian tubes. A warm bath, too.
Be sure you are not around mold, scented products or chemicals. The chemical finish on new fabrics, carpets, and dry cleaning can really mess up liver and ears.
Using a NETI POT with warm water and a little sea salt can help.
Avoid nasal sprays as they may provide a strong blast of clearing but, actually, can perpetuate the need to continue on something that does not really address the underlying problem.
A Neti Pot is best but if you feel you must use some sort of nasal spray:
Keebler
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- HEARING DAMAGE ALERT: When on antibiotics (and some other drugs), the noise level (called decibel level, abbreviated "db") at which hearing or balance damage can occur is far lower than usual.
EAR PLUGS &/or EAR MUFFS (rated for db level of at least 29) should be worn even around a hairdryer, vacuum, blenders, lawn equipment, in traffic.
Loud concerts should be avoided, even with hearing protection because a lot of vibration in transmitted through the body, via bones. The open nose and sinuses also transport sound.
"House concerts" or quieter venues may be best for now. Just Google the term to find a whole new world of intimate musical events.
AVOID in-the-ear "PODS" - even at low volume, these can damage ear nerves, especially when on abx (antibiotics) and for up a year after being on abx, the ears can be more susceptible to damage from lower db levels.
Take care of your ears. They do much more for us that just help us hear. EVERYthing we do needs our inner ear to help us get that done, even just talking and walking.
More detail can be found here: ----------------------------
There are at least 743 drugs that are known to be ototoxic. Here are just 84 of them:
You can look inside this book and read customer reviews here:
Ototoxic Drugs Exposed: Prescription Drugs and Other Chemicals That Can (and Do) Damage Our Ears
- by Neil G. Bauman
======================
While many drugs or OTC products are not required, when drugs that can be hard on our ears are required to treat serious infection (as with lyme + co.) be sure to refer back to the list on page one of this thread. LIVER SUPPORT can make a difference.
Keebler
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- Everyone be very careful on July 4. Both infection and medicines lower the decibel (dB) level at which sound can permanently damage ears.
Even when around hairdryer, ear plugs should be worn. Vacuums, blenders, yard equipment, etc. and fire works can still damage ears even if ear plugs are worn, though as ear plugs simply cannot block out all the sound/vibration.
Much of it travels through bone, through our nasal cavity, etc.
Ear plugs and dB rated muffs can help but are still are no guarantee with ears that also have to battle infection and medicines.
For even up to a year after some antibiotics, the ears are still more susceptible to damage from lower levels than normal. -
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Keebler, I read the above on glutamate. How would one lower glutamate levels in the brain I wonder?? I am very careful not to eat MSG and anything that is artificially flavored. I have read that even the all natural products will have an MSG-like product in it, usually called yeast extract or natural flavoring. I try to avoid this as well. I guess we can't do anything else about the imbalance.
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Keebler
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- We still need some - from foods. Just eat a good diet and avoid supplements containing that if concerned.
Still, some supplement formulas (such as protein powders) contain some naturally as food and, if the right balance, that can be okay.
If you feel jittery, irritated or anxious, that's a sign of too much. If you Google "The Biochemistry of Lyme" from Townsend Letters you will find a good article that (I think) tells you more. Not sure, though. -
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Topic: FIREWORKS: Noise damage more likely with certain antibiotics; Toxic Smoke -
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By Kristina Fiore, Staff Writer, MedPage Today - Published: July 19, 2010
Excerpts:
. . . Using cell phones for many years may increase the risk of tinnitus, researchers say.
In a small case-control study, patients who reported using cellphones for four or more years had almost a twofold increased risk of ringing in the ears, Hans-Peter Hutter, MD, of the Medical University of Vienna, and colleagues reported in Occupational and Environmental Medicine. . . .
. . ."High intensity and long duration of mobile phone use might be associated with tinnitus," they wrote. "This possibility should be explored further by assessing mobile phone usage history in studies of tinnitus etiology in the future."
Researchers say that the prevalence of tinnitus is increasing -- it stands at about 10% to 15% of the population in developed nations -- but its causes are not well known. Anecdotal evidence has linked mobile phone use with tinnitus, but there have been no systematic investigations.
So the researchers conducted a case-control study of 100 tinnitus patients at the Medical University of Vienna in Austria, who were matched with controls. . . .
. . . When compared with patients who never used cell phones, risk of tinnitus was even greater for those who had their phones for four years or more (OR 2.58, 95% CI 1.08 to 6.19). . . .
. . . They added that calcium imbalance in the neural acoustic pathway and activation of nitric oxide synthase could be factors in tinnitus etiology.
Hutter explained that calcium imbalance "could result in a disturbance of gene activation within the cell because calcium has a second messenger," and nitric oxide synthase "has a central role in regulating protein kinases."
But he cautioned that the "mechanisms of action of low-level exposure to microwaves are very speculative and only few studies provide some indications of potential cellular processes."
The researchers added that cell phones could cause tinnitus through other pathways as well, and further research needs to be done before drawing any conclusions about the relationship.
----- The study was supported by the Institute of Environmental Health in Vienna and by the Medical University of Vienna.
Primary source: Occupational and Environmental Medicine Source reference: Hutter HP, et al "Tinnitus and mobile phone use" Occup Environ Med 2010; DOI: 10.1136/oem.2009.048116. -
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Keebler
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- ACOUSTIC SHOCK from phones - damage to the ear OR to the nervous system
** "Acoustic shock is not the same as noise-induced hearing loss and is believed to occur at sound pressure levels below those which present an immediate risk to hearing damage. **
Two thirds of UK call centres fail to protect their workers against hearing damage from noise, a report warns.
Experts will tell an acoustic safety conference in Glasgow many of the 900,000 call centre staff are at risk.
They are set to say increasing numbers of injuries and illnesses are being caused by acoustic shock and other noise related hazards.
Over 700 people have so far suffered acoustic shock, with the compensation paid out so far totalling ฃ2.5m.
It can be a debilitating occurrence for a call centre worker Chris Atwell, Acoustic Safety Programme
Around 300 further cases are pending, according to the Acoustic Safety Programme, an independent body which aims to protect the hearing of call centre workers.
'Permanent damage'
* Acoustic shocks are defined as
"any temporary or permanent disturbance of the functioning of the ear, or of the nervous system, which may be caused to the user of a telephone earphone by a sudden sharp rise in the acoustic pressure produced by it".
* The sound could be a whistle, a bleep - or any unexpected noise.
Experts suggest there are many more people who have experienced acoustic shock but do not realise it.
It warns that, while some organisations are acting to safeguard the hearing of their staff, the vast majority are not.
Call centres can introduce equipment such as headphones which extract any potential causes of acoustic shock to protect the worker's hearing.
There should also be measures such as raising awareness of the problem and good incident reporting that the Health and Safety Executive recommend should be in place.
Chris Atwell, operations director for the Acoustic Safety Programme, said: ``It can be a debilitating occurrence for a call centre worker.
"They can develop permanent damage to their hearing."
Dr Mark Downs, executive director of technology and enterprise for the Royal National Institute for the Deaf, said:
** "Acoustic shock is not the same as noise-induced hearing loss and is believed to occur at sound pressure levels below those which present an immediate risk to hearing damage. **
"It is still a relatively un-researched condition and RNID welcomes public debate on the issue."
ฉ BBC MMVI -
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Keebler
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- LOWER SOUND LEVELS CAN DAMAGE EARS WHEN ON CERTAIN MEDICINES
Remember: when on antibiotics (and many other medicines), the ears are much more susceptible to damage from sound, at levels lower than typical.
Be sure to wear ear plugs even when around a hair dryer, vacuum, blender, garden and lawn tools, etc.
Professional ear muffs with a decibel rating to about 29 dB is best when around power tools or lawn equipment, etc. But, even then sound can still damage ears if it's too intense.
Sound travels through our bones - and from our open nasal passages - so avoid loud sounds and intense or pulsating vibrations as much as possible. Good advice for everyone, really, but especially when on medications that can put the ears at greater risk.
In his book "Ototoxic Drugs", Neil Bauman explains that for even a full year after stopping some drugs, the ears can be more easily damaged by lower sounds than usual.
That is an excellent book that explains so much. Links are about 7 posts up, on this page. -
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Keebler
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- GINGER (as well as magnesium) is one of the best things to help vertigo and nausea. More about that: -------------------
This book goes into detail not available on any site such as the concept of the total toxin load (but does not get at all into liver support or detox). It's an excellent book for every family.
You can look inside this book and read customer reviews here:
Ototoxic Drugs Exposed: Prescription Drugs and Other Chemicals That Can (and Do) Damage Our Ears
- by Neil G. Bauman -
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Keebler
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- Detailed in posts above, liver support is vital as support to our ears, too. B-6 is also mentioned as a possible ear protector. Adding to that,
VINPOCETINE may have some otoprotective properties. ------------------------
A Single-Nutrient Solution for Crystal Clear Hearing
Excerpt:
. . . The researchers' conclusion was crystal clear: Elevated homocysteine and decreased serum levels of folic acid are both strong indicators of your risk of age-related hearing trouble. So it's easy to see why boosting your intake of this crucial vitamin is so vitally important. . . . -
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Keebler
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- Got a cell phone? Please watch this lecture. Shows stunning MRI/CT images of the affected area in the ears, jaw and brain.
She did not speak about the ears - but there are other researchers studying how cell phones affect hearing. THIS lecture, though, SHOWS how tissue is affected. The images are compelling evidence that we need to learn more before holding a cell phone to our ears for hours a day.
On BookTV last weekend (and will be again on Oct. 31). Dr. Davis told of a young woman who had an ongoing severe headache and it turned out to be caused by her cell phone.
The lecture had some amazing images (MRI or CT scan, or similar). The proof is in the images - the heat/radiation really invades the blood brain barrier, and targets soft tissue of the brain, ears and jaw.
Even when not turned on, where a cell phone lays against the body can damage tissue several inches into the body.
"Lyme disease also was a top suspect due to the fact that neurological infections such as Lyme infection of the nervous system (neuroborreliosis) often lead to musical hallucinations.
Dr. Nicolai Nielson, another board certified psychiatrist, stated in a personal communication, "I have seen many patients with this musical viscosity or musical intrusiveness as it is referred to. It is amazing how the patients think everyone else experiences this."
He adds, "It is seen in central nervous system Lyme disease as frequently as it is seen in head injury or in similar syndromes such as temporal lobe epilepsy." -
[ 01-10-2011, 04:08 PM: Message edited by: Keebler ]
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Keebler
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- From TerryK;
Talks about mitochondiral disease and mentions hyperacusis.
Identifying Environmental Illness and Mold Exposure in Patients with Persistent Lyme Disease.
Lisa L. Nagy, MD Video $15.
[She spoke at the recent ILADS conference in Toronto. She is NOT a LLMD.
However, she has excellent information for all who have any kind of chronic infections that seem to cause problems with sensitivities. She overcame severe health issues caused by mold and other chemical sensitivities.]
Her Web Site -
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Keebler
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- VISIONAL DYSFUNCTION: Notes from video stream on 12-17-11. His use of slides helped my note taking, even if I can't further explain it - so see additional links.
================================================
He is NOT a LLMD (in that he does not treat lyme, per se), however he is lyme literate in his understanding of how tick-borne disease (TBD) can affect vision, balance and the brain.
His presentation at the ILADS conference will help many lyme patients, no doubt.
CFIDS Journal Fall 2001 Visual Dysfunction in CFS By William V. Padula, O.D., FAAO, FNOR yoked-prism glasses
Do a Google search for: ``yoked-prism glasses''
His office may know of lyme-literate doctors in your area. While there are others who may not be lyme literate who work with the yoked-prism glasses, it would be best to find one who gets the whole picture.
I have no idea if any insurances cover this. However, I think Rotary clubs might be an organization that would consider a grant as they often support vision projects. -
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Keebler
Honored Contributor (25K+ posts)
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posted
- HEARING LOOP ----------------------
The New York Times Science section - October 23, 2011
The composer Richard Einhorn had despaired of truly enjoying a concert or Broadway show before encountering a hearing loop.
A HEARING AID THAT CUTS OUT ALL THE CLATTER
By JOHN TIERNEY
After he lost much of his hearing last year at age 57, the composer Richard Einhorn despaired of ever really enjoying a concert or musical again.
Even using special headsets supplied by the Metropolitan Opera and Broadway theaters, he found himself frustrated by the sound quality, static and interference.
Then, in June, he went to the Kennedy Center in Washington, where his ``Voices of Light'' oratorio had once been performed with the National Symphony Orchestra, for a performance of the musical ``Wicked.''
There were no special headphones. This time, the words and music were transmitted to a wireless receiver in Mr. Einhorn's hearing aid using a technology that is just starting to make its way into public places in America: a hearing loop.
``There I was at `Wicked' weeping uncontrollably -- and I don't even like musicals,'' he said. ``For the first time since I lost most of my hearing, live music was perfectly clear, perfectly clean and incredibly rich.''
His reaction is a common one. The technology, which has been widely adopted in Northern Europe, has the potential to transform the lives of tens of millions of Americans, according to national advocacy groups.
As loops are installed in stores, banks, museums, subway stations and other public spaces, people who have felt excluded are suddenly back in the conversation.
A hearing loop, typically installed on the floor around the periphery of a room, . . .
HEARING LOOP.org -
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Keebler
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- While in-the-ear pods are never advised, and even on the ear phones can damage ears, with the sound not turned up there are times when headphones really help.
Most TV sets now are just nearly impossible to hear - headphones can reduce the frustration.
. . . . Independent left and right control, allowing users to balance the sound to individual preferences. . . .
. . . Closed dynamic headphones with 17' cable to attach to a TV or other audio source.
Cable includes in-line volume and balance control. . . .
==================
Oops. See update below. -
[ 04-06-2012, 08:12 PM: Message edited by: Keebler ]
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Keebler
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- Update on headphones.
That particular headphone (Sennheiser HD 65 TV) sent tinnitus to the moon. I just received it yesterday.
I have to send it back and get a replacement for same model that I used for years (before it broke).
The Sennheiser HD 580 was just fine and did not zoom tinnitus for me with TV use. They've changed nothing about that pair I just thought the new TV ones might be better and they were cheaper.
But for those who may need one ear louder than the other, the 580 will not do that.
IF tinnitus is not an issue, they may also be fine but, today, the Sennheiser technician did explain to me why this happened. Something about electrical impedance being different in the TV pair.
But I'm the first person to report the effect.
I have to say that the vendor, www.crutchfield.com has been splendid about the return and sending on ahead my new headphones. -
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Keebler
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posted
- NEW LINK. VEDA just revised their website: ----------------------------------------------
Vestibular Symptoms -
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Keebler
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- The health of the liver is tied to the ears. Acetaminophen blocks the liver's ability to produce glutathione. That can lead to so many other problems, especially with the ears.
Just one of dozens of articles on the topic of hearing loss from pain meds.
Analgesics contribute to hearing loss, study finds
Los Angeles Times - March 2, 2010
Excerpt:
. . . New research suggests that regular use of aspirin, acetaminophen and other analgesics can substantially increase the risk of hearing loss, especially in men younger than 50.
Researchers report in the American Journal of Medicine that
use of acetaminophen more than twice a week by such men doubles the risk of hearing loss,
use of ibuprofen and related non-steroidal anti-inflammatory drugs (NSAIDs) increases the risk by nearly two-thirds,
and regular use of aspirin increases it by about a third. . . . -
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Keebler
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I know that celery seed is used in gout, but not sure what else. Pasqueflower is to calm the nervous system I think. And I guess the sida acuta is to treat infections.
Bea Seibert -
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dbpei
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Keebler, I am so sorry that you likely have SCD. It is bad enough living with lyme symptoms and the horrible side effects of treatment, but the severe hyperacusis on top of that must be so difficult to cope with.
You are a big source of support for so many on this forum. I don't know where you are in your treatment, but would it be possible for you to have surgery at some point to treat this?
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Keebler
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- dbpei,
Thanks for your kind thoughts. "Treatment" for lyme, et.al. is a rather elusive and tricky area, as it is for most. Surgery is certainly not an available (or safe option) for my body at this time.
Still, just working the puzzle. Success can often be achieved in various ways. -
[ 05-07-2012, 01:47 PM: Message edited by: Keebler ]
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Keebler
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HERXHEIMER help and also some KIDNEY SUPPORT links. -
[ 08-21-2012, 04:42 PM: Message edited by: Keebler ]
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Haley
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Thank you Keebler!!! I will go through this link. I'm so bummed that I got tinnitus.
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Keebler
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- A post at another thread reminded me of what several non-lyme-literate audiologists kept insisting, much to my peril.
Re: HYPERACUSIS
As a poster conveyed: " you want to stimulate your ears with some sound when you have hyperacusis (according to my audiologist. (end quote)
I strongly - strongly - disagree if someone has lyme &/or adrenal fatigue.
The audiologists I've seen have insisted upon that old rule, too. But it's not true for those with lyme.
This is why ONLY LL audiologists are adequate for those with lyme.
That point is NOT for those those with infection in the ear nerves, inflammation in the ear tissue and for adrenal stress to the point of danger from too much stimulation.
REST is required for the ears, the nervous systems and adrenal system. Only the most gentle kinds of music that are enjoyable. Never push it beyond what the ears - AND the whole body - say is okay.
It's often not really about the ears but about the stress on a fried and tired and nearly defunct adrenal system. Or the sympathetic nervous system.
If the BRAIN just can't manage sound, it just can't. It's not just the ears involved with sound for those with lyme.
If & when silence is needed, listen to your body. Silence can be healing, too. And it may well be required for those with ear issues and lyme far more than any non-lyme-literate audiologist realizes.
Now, of course, when it is enjoyable, do expand the range of music composition and styles. But I know of no one who would not do that, anyway.
No one WANTS to avoid good sound or being with others.
But for those with hyperacusis who have to avoid some or much sound (for whatever amounts of time), remember that might be the only way to get better -
- along with attention to all aspects of treatment for lyme & co., of course. -
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Keebler
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ELEVATORS - what helps for those with vestibular challenges
Thanks to Hambone for raising the question about something that can really derail anyone with any kind of inner ear stuff going on. -
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