posted
I am new to the Lyme community. I just found out this year that I have Lyme but, I live in Kentucky and treatment here is very slim.
The RA doctor I just saw did the WB test and doesn't feel it was strongly convincing so he said no further testing or treatment until more symptoms arrise.
I am in search of a new dr. as to not end up in severe poor health like my mother. I think she also has Lyme but is being treated for Lupus, RA, Raynauds, Crohn's and Heart DIsease.
Anyways, he gave me a script for Lodine for the swelling on my knees. Has anyone else had to use this?
The pain and swelling in my knees is getting worse everyday and I am scared to take it until I know other Lyme pts have used it.
All I know is that it is an old drug and that it supposedly works? Any feedback? Lynnette
[ 02. May 2008, 12:32 PM: Message edited by: Lynnette ]
Posts: 7 | From Kentucky | Registered: May 2008
| IP: Logged |
posted
There's also Bio-Freeze gel. Relieves pain!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
jamescase20
Unregistered
posted
I self treat...minocin is cheap and a front line drug for lyme disease. Use at your own risk. I found the same probs. U can see a natpath doctor that has a live blood microscope and have them check the blood for keets,(aldult lyme) fast swimming dots ( babs, bart, etc) lyme babies (hovering in only certain area slowly hover)
IP: Logged |
quote:Originally posted by Cass A: Best to treat the Lyme.
Have a look by searching for BEE VENOM. It was discussed here recently.
Some of the topical bee venom cream might help your knees and work on the Lyme at the same time.
Best,
Cass A
I will definately bring that up to my next dr. Is it something you get from the dr.? I wouldn't even know where to get it?
Posts: 7 | From Kentucky | Registered: May 2008
| IP: Logged |
quote:Originally posted by jamescase20: I self treat...minocin is cheap and a front line drug for lyme disease. Use at your own risk. I found the same probs. U can see a natpath doctor that has a live blood microscope and have them check the blood for keets,(aldult lyme) fast swimming dots ( babs, bart, etc) lyme babies (hovering in only certain area slowly hover)
Thank you for your help. How do I look for "natpath" dr's in my area. Ky. is VERY limited as I am finding out.
Posts: 7 | From Kentucky | Registered: May 2008
| IP: Logged |
daise
Unregistered
posted
Hi Lynette,
Welcome!
I wanted to look over your past posts, since you are new and there were only 5 shown on your post. But actually you've posted 37 times!
quote: Lynette wrote:
The RA doctor I just saw did the WB test and doesn't feel it was strongly convincing so he said no further testing or treatment until more symptoms arrise.
What he said and what is actually reality, may possibly have a deep, wide abyss between. Do you have a copy of your WB? You could post the results in a separate thread, if you like. Others with expertise will jump in, to give their input.
It's important to know where the test came from. If not from IgeneX it's likely no good.
Most of us have tests done. But Lyme remains a clinical dignosis, due to the difficulty in testing.
Do you know about finding an LLMD for proper assessment? You may post for an LLMD in the Seeking A Doctor Forum. OK? I know it's harder and more expensive in the middle of the country.
But yes, for most, indeedy do we do get help. It often takes time. OK?
Have you looked into insurance? For example, if your insurance won't pay for an LLMD and they turn you down for a lot of Lyme meds, perhaps this link will help:
posted
I wonder why it says I have posted 37 times? Oh well, who knows.
I have someone looking over my so called results as we type and no they weren't done by the I name you mentioned. 'Quest Diagnostics'
I go to a different dr on Monday I will be taking some notes in with me.
Posts: 7 | From Kentucky | Registered: May 2008
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Quest is worthless, for the most part. At least in late-stage Lyme Disease, as well as co-infections.
You can post your results here L, it's ok. I'm on both forums, so if you want a wider selection of opinion, here is fine.
Also I just came across a natural anti-inflammatory that may be up your alley. It should not interfere with your immune system in a negative way. It's called Serrapeptase. You can purchase it through many sources, and many suppliers, but Nutrimedix is a good source. You may consider using Vitacost to find if it's on there.
Another brand my girlfriend uses is Enerex.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Yes, Quest does a bad job. IgeneX Western blots are the gold standard. Even then only about 40% test positive, so it doesn't catch most people.
That's why Lyme remains a clinical diagnosis.
When I saw that you'd posted 37 times, that meant that you must have received the important newbie information.
Have you rec'd BettyG's newbie package? It's a huge email for your computer and can be searched for all kinds of information.
Simply send a private message (PM) to BettyG by going to the top of her NUMEROUS posts. To the right of her name you'll see an envelope with two people standing next to it. Click that.
If you haven't been properly oriented as to the different types of tests and as to the politics and getting a Lyme-literate doc, please send me a PM. OK? I'm glad to help.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Frown]](frown.gif)
![[Eek!]](eek.gif)
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic