posted
Lyme, Bartonella and Ehrlichia for 20 + years.
After 5 months of Rocephin and 1 month of Levaquin I started having numbness and heat in both hands, slowly spreading throughout both hands. For 9 months it has slowly gotten worse with the addition of my palms and insides of fingers turning bright red as the day goes on. Symptoms get much worse when I try to use my hands. My arms were previously out of use for over a year due to forearm inflamation. My Lyme Doctor sent me to a neuro, Dr. Y, who said it was CIDP from the Lyme. I have been on IVIG for 3 months and it has only gotten worse. Has anyone else had this experience?
Posts: 10 | From Madison, CT | Registered: May 2008
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bettyg
Unregistered
posted
welcome lynn to the board; glad you found us.
i have no experience on this one, but this will take your post to the top.
you mentioned an abbreviation; what does CIDP stand for, it's helpful to spell it out once when you use abbreviations; thanks~
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jamescase20
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posted
I find my hand hurts very bad while on tetra class abx on high dose, and I need high dose to kill lyme. What I do is pulse it so it dont hurt so much. The pain goes away everytime I stop it. It may be a herx, maybe a babsia herx, some say that I here, There is a rare thing reported with minocin for exp that says autoimmune prob can occur in heavy use. Dont seem to appear to be common and very rarely persist. I think its listed on the full rx insert.
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