posted
I just got a PICC put in and was just looking for some helpful advice in maintaining it. Thanks
Posts: 23 | From myrtle beach sc | Registered: Feb 2008
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Buy one of these 'Dry Pro PICC line cover' when showering or swimming helps to keep bacteria and other contaminates away from the vein the PICC is inserted in. With a Dry Pro PICC line cover, you can keep the area around the vein completely dry whether you are in the shower or the ocean.
There have been lots of posts! Just do a search at the top of any page with PICC in the top box, and choose the Medical Forum.
Are you getting Rocephen? That's what most of the PICC posts are about. Regardless of the medicine, the PICC info ought to be helpful. Is the PICC in your arm?
posted
Yea it is in my left arm on the inside of my bicep...and yea i am on the rocephin right now
Posts: 23 | From myrtle beach sc | Registered: Feb 2008
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daise
Unregistered
posted
Hi surf,
Everyone herxes differently. But it seems a lot herx every 4 weeks. My first Rocephen herx lasted weeks and overlapped my next 4 week herx. Herxes gradually decrease in duration and intensity.
I had a PICC in my left bicep, as well.
With a PICC you can't lift more than 5 pounds or 1 gallon.
Rocephen must be kept refrigerated!
Times will get worse, in herx, but then times will get better than you've been!
I just read a post of yours from a month and a half ago. You said you had a headache that felt like it was bleeding.
I don't call 'em headaches. No. That's not a strong enough word for the debilitating pain so many of us have. HEAD PAIN is more like it. PAIN IN THE HEAD.
I had severe pain in my head constantly (for almost 4 years,) however it's much better now. Mine is in back, towards my right ear. It's all tied to my neck and shoulder pain.
It was a nightmare of pain.
When children get Lyme, 90% have head pain.
Pain in the head can also be a migraine, in front. Lyme encephalopathy can certainly cause that, too. So can babesia and I've heard others talk of bartonella head pain, as well.
For a long time it felt like a "brick" in my head. Then: "Germs sizzling on my brain," described it. You'll get past it. But it takes time.
Many have head pain. It's hard to use our brains to think, to get chores done.
Trying to keep stress levels in check has a direct bearing on preventing it from getting worse, at times.
Insomnia? Talk with your doc. A direct bearing on the intensity of head pain.
I know you're hurting. I hear you! Got tinnitus, too? (Ringing between the ears.) Try:
posted
thanks for the info
Posts: 23 | From myrtle beach sc | Registered: Feb 2008
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WildCondor
Unregistered
posted
Keep it clean and dry! Google "PICC line covers" and get a waterproof one! If you ever notice any redness or swelling, discharge of pus or fluid...etc get it pulled for safety. If you ever flush your line and feel suddenly ill, go to the ER and have it pulled. PICC lines carry the risk of line infection and sepsis, a sudden blood infection that is life threatening. If you ever experience any of the above, sudden high fever etc. don't assume it is a herx! Call 911 if you have to and get to the ER. Have them draw blood cultures out of the PICC line to determine what germ is in there and what sensitivity it has to appropriate antibiotics. I got this 2x from my central line and it is very serious! Infected lines are more common than you think, so keep that line dry and clean and take careful care of it. Don't ever let a nurse draw blood from the PICC line for routine blood work, that's a bad idea! Good luck!!
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