Topic: New LD video by my sick son ("brilliant", "great",...)
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I am very proud of my son, sick with LD as are 6 total in my family.
He put my thoughts into an educational video on Youtube late tonight, I am so proud and excited, he is a great "kid" and did a great job, tremors, anxiety, brain fog and all!
EDIT: IF IT IS TOO SMALL TO READ - WHEN AT YOUTUBE NEXT TO THE VOLUME LEVEL TO THE IMMEDIATE RIGHT ARE TWO GRAY SQUARES - CLICK ON THE ONE FARTHEST TO THE RIGHT OF THE VOLUME IN THE LOWER RIGHT HAND CORNER AND IT WILL MAKE THE VIDEO FULL SCREEN AND EASIER TO READ/SEE! IF YOU CLICK ON THE GRAY SQUARE CLOSEST TO THE VOLUME IT SHRINKS IT EVEN MORE, MAKE SURE TO CLICK THE GRAY SQUARE IN THE FARTHEST LOWER RIGHT CORNER
posted
Do I really get the honor of being the first to say that video is ABSOLUTELY BRILLIANT?
What a marvellous production -- I was cheering with my fist in the air for every salient point made (and they were all salient so my arm got tired really fast)!
I am so impressed and inspired. A billion props to your son, especially about including the part about other biting insects.
Well DONE.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Wow! great video! Clear and concise. Says so much in under 5 minutes. If I could figure out how to copy it to a Cd would he mind if I used it? People ask me for info and it takes me an hour to communicate what that video says in 4:44.
Just an idea : If he put these on discs and sold them for a few dollars he could raise funds for his favorite Lyme charity while he educated the public. I know advertising for personal gain is against Lymenet rules but I think fundraising is ok.
Please tell your son that his work is greatly appreciated. He did a great job and you can feel his passion for educating others.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
WONDERFUL Video!!! He did an amazing job.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Truly amazing and so professionally done. I think you have a future cinematographer on your hands, Lymebytes!
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Thanks - I am his mom, so course I think he is great...I will have him read your remarks.
Robi - you actually have give me an idea, I'd like to hand these out to mainstream Md's that misdiagnosed all of us..that be about 35 doctors.
I don't know if there is a way to put to Cd..but if so go ahead - if you could make sure to get the entire 4:44 because of the news reporter that speaks at the end, and the credits/site.
quote:Originally posted by Clarissa: Truly amazing and so professionally done. I think you have a future cinematographer on your hands, Lymebytes!
Amen!! How old is your son??
GREAT job!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
hello you proud mama!!!!
WOW, a very talented son you have!! KUDOS to him/you.
bytes, would you copy his link and put in medical in my post, LYME VIDEO COMPILED...PLEASE ADD YOURS HERE.
show the link length of time and brief summary what it is specifically concerning
thanks so much; give him an extra HUG/KISS from us all ok!
i see he's had 124 views w/2 comments since he put this on here 11 hours ago!!!! that's awesome!!
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Wow!!!!! I am totally in awe of your son's ability to pull my life
And struggle into five minutes of video.
Thanks for the video. It made my me cry and made my day.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Well done! My gratitude to him for putting this out there.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I can copy it to CD's. The key is to download realplayer. You can then click over the youtube video he posted and in the upper right corner will appear "Realplayer" downloader. You can download the video to your desktop. Then if you like, you can convert it to any filetype you like, to play on DVD, CD or whatever.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
It's already been said here, but the video says in a few minutes what it took me weeks to learn about lyme disease on the internet.
I really hope many people see this video. It can't help but have an impact on them (I say this being nearly in tears right now).
good work.
Posts: 23 | From San Francisco, CA | Registered: Apr 2008
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
WOW - SO HAPPY EVERYONE LIKES IT!! My son is 18, nearly died from LD at age 7. Then remission until 17 and has relapsed hard this time...makes my pain 100 times worse watching him go through this. I thought he had it beat.
BETTY - Already done, I added it to a link I had originally posted.
THE SONG IS FROM: CREED - ALBUM: WEATHERED NAME: DON'T STOP DANCING
He is VERY happy you like it...we fought over this, it wasn't easy, my ideas, his ideas....we pulled it together....he put it together - I see some errors, somethings I'd like to correct but once uploaded you can't change anything, I wish Youtube had a way to correct, but they don't.
The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Lymebytes, is your son congenital or did he have his own tick experience?
Posts: 3528 | From US | Registered: Apr 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Great video!!! Thank you so much for posting this!!
Posts: 1603 | From ny | Registered: Aug 2006
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Fantastic video, it so elegantly tells the story of lyme. LB you must be very proud of your son and his ability to rise above adversity. He displays the best of us.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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please thank your son for a great job he did.......loved Creed for the background music
thank you for sharing that with us.... mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Thanks you have made our day!!Really...our two brains get to work and there is no stopping us...he is reading your posts and smiling
For those of you who liked the Creed song...my idea..yep, I chose that one ..I love Creed and the song just fit perfectly. For those of you who might not have liked it, my son chose it!
CD57 - Good question...I don't know. It is possible he was born w/it...I know my mother was bitten as a child, so I was probably born w/it. But I know for sure all 3 of us started showing symptoms about 1997...we all could have had it already..then we had a horrible flea attack...I use to rescue animals. He was very sick at age 7, almost died, IV abx saved his life w/o a diagnosis. About that time I started getting migraines and vertigo...my husband started with back problems and knee problems. Thankfully, my son was in remission for 10 years...but has relapsed last year and again this year...it has been very hard for all 3 of us being sick....so hard on me to see him like this, when I have so much pain myself. I pray one of us gets well soon...either me so I can take care of him, but better yet, I hope he gets well...he needs to go to college and live his life. It stinks right now..really.
THANKS AGAIN TO ALL OF YOU!!!!!! WE ARE SO HAPPY YOU LIKED OUR VIDEO!! YIPEE!!
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Awesome Lymebytes. I wish everyone could watch this video. It would be great if kids could use it as a project if they had to do a speech or something to spread the word!
I know how you feel with a sick "child" that can't go to college.... I have lyme and my daughter now 21 was diagnose at age 4..... she had to stop school recently for treatment... I hate the fact that she is missing stuff like college because of this..... I will show her your son's video... thanks again... and I hope one or all three of you get better soon!!! mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
oooh my, that video was soooooooo good! Very professional!! Such talent!
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
Stunning! This video is really moving. I'm so sorry that your son is sick.
But he still has talent!!
Thank him for all of us.
Posts: 1173 | From USA | Registered: Nov 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
wow. i can't add much to what has been said. great job. i'm going to pm you.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I want to save this post forever..you guys/girls are so kind - it makes our hearts soar!
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I'm TOTALLY impressed!
This short video really does stand in for hours of talking!!!!
Love,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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bettyg
Unregistered
posted
bytes, print it off ... in case something would happen to it ok!!
put it in your UPPER FILE for days when things do not go worth a darn!!
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Thanks to you - it appears that in 2 days the video is now 4th in the line up do to qty of hits in short time...awesome....send the link on, lets educate everyone we know.
My LLMD's office called and said they saw it today!
Send it to anyone w/fibro, ms, etc., ...let people know Lyme is an epidemic and to sit back and watch the facts.
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Yeah and I have to say extra hard for a mother to witness...having this disease myself was absolutely the worst thing...or so I thought, until he became so sick.
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I wanted to give a little trick, if it is too small for some people watching...you can make the video full screen, I edited the first post, but in case you don't see it, this is how:
NOTE: IF IT IS TOO SMALL TO READ - WHEN AT YOUTUBE NEXT TO THE VOLUME LEVEL TO THE IMMEDIATE RIGHT ARE TWO GRAY SQUARES - CLICK ON THE ONE FARTHEST TO THE RIGHT OF THE VOLUME IN THE LOWER RIGHT HAND CORNER AND IT WILL MAKE THE VIDEO FULL SCREEN AND EASIER TO READ/SEE!
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Thank you Daise..he's reading posts, he is smiling and happy it is getting so much attention. Already 4th today in the line up in less than a week - wow...who knew!
I hoope its helps people...I hope it reaches those with Fibro, CFS, MS and more, that is our hope.
i tried your suggestion but my pc doesn't have 2 things on right corner.
i can enlarge it to 150% which is just as bad as 100% and then increase it 10% by contrl + sign, but NOT to see FULL screen.
thanks for the pm about this; i tried!
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
EXCELLENT!!!!!!
Posts: 2903 | From AZ | Registered: Feb 2006
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Betty, I know what you are changing...that is on your computer in the lower right corner.
No, this is controlled at youtube the little screen has its own controls..play, pause, time/length of video, volume and then the two gray squares next to the volume ON THE VIDEO control panel right below the video (not your computer). (If you are using youtube Beta there will be one gray square to the right of the volume control) click it and it becomes full screen. If you are not using youtube beta there will be two gray squares one will shrink it, the other makes it full screen (bottom right corner of youtube video control panel) all videos have this...I didn't know about the full screen option, until my friend said, "Here, (he clicked the gray square) now we can really see it!"
No adjustments are made to your computer...just to the video - control panel right below the video.
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Fantastic video and so professional. I'm cross posting it on to other disease (MS) website.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Dmc - GREAT IDEA!! Anyone else can you get it into Fibro forums?
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