posted
Massages must be done by someone who knows about your condition. Deep tissue is usually a no-no, because the pain the next day outdoes any of the good that you get from the massage.
I recommend a good physical therapist instead. They are trained in massage too, usually.
In the past, I have printed out a copy of Devin Starlanyl's "info for health care providers" and given it to anyone doing body work on me. You can find it at her website. Just type in her name, or The Fibromyalgia Advocate, the name of her book.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
posted
LOL JEN, please edit your post to show MASSAGE; i kept reading this; why would a message from someone hurt you ??
neuro lyme at it's best.
my 1st massage i told woman i had fibro in all 18 of 18; she insisted and gave me ROLF; hardest thing ever, and i kept telling her it was too painful and she ignored my tears!!!
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posted
Aw heck. I thought you were going to tell us about an exciting message you got!!
PS.. I had the same thing happen after having a massage. Be sure to detox afterward and drink tons of water.
And tell the massage therapist to go easy on you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
I did the same thing to myself!
I have a handheld massager by HomeMedics -- I used it down my neck, back and legs -- and the next day i hurt head to toe-- and felt really toxic, hungover.
I guess homemedics knows how to make a good massager.
Posts: 1173 | From USA | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
the first massage I got, I had no idea that I had fibromyalgia (the CFS dx and then lyme came years later).
I got a Swedish massage with a friend. She loved it and had taken me to this regional resort for a day of swimming in a mineral pool and a soak and a massage.
I was in agony the entire time of the massage.
slow forward many years - and I was then getting massage each week. however, NOT Swedish. Different type by someone who really knows what she is doing.
With funds low, I've been without massage for 3 months now and the pain, the seizures are all about 300 percent WORSE.
So, when you find what works for you, it can be not only less painful but calming and you'll feel better long after from the effects.
yes . . . LOTS of water. I hope you find a method that works. Massage has wonderful benefits. I think if every person on the planet got a massage a week we would all be healthier and happier.
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
You should avoid massage unless it is specific Lymphatic Drainage Massage, or a conventional massage only using the 'Effleurage movement' Effleurage is one of the most common massage techniques using a succession of light or deep stroking or gliding motions.
Lymphatic Drainage or Effleurage massage is great for moving the toxins through the lymphatic system although any other massage would be detrimental as every lyme patient would be dealing with inflammation.
So the tips for getting a massage would be:-
Take Wobenzyme 30 minutes before and 2 hours after the massage to stop any inflammatory response - this is used by athletes etc
Then drink plenty of water after the massage with detox qualities in the water - Burbur/parsley detox
If you have the massage without doing the above you run the risk of creating a massive inflammatory response and moving Neurotoxins out of there beds which can cause a herx like feeling, so you need to get them flushed out of the lymph system.
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