posted
I was recently tested for arthritis and my C Reactive protein came back at 54.7
Of course I went online and scared the heck out of myself.
My Lyme titer was equivocal too.
So I made an appt. with my primary and he wants me to go see a cardiologist b/c I have heart issues in my family history (I am 28 yrs old).
So in the meantime my primary dr wants me to also go back to the lab for the Western blot and today I find out it is positive and I need to start on meds for 3 weeks (2 pills/day).
I am wondering if Lyme makes sense for a 54.7 level of CRP or if I should still go to the cardiologist.
Don't want to waste anyone's time, but at the same time, I feel like a ticking timebomb when I read about all the heart conditions they believe high CRP levels are related to.
Any suggestions would be great.
Has anyone ever heard of a CRP level this high before?
-------------------- You only get one GO AROUND - Live it up! Posts: 11 | From New Jersey | Registered: May 2008
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bettyg
Unregistered
posted
welcome, glad you found us. i unfortunately was not able to read your solid block text, so i'm including instructions below ok! SORRY
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! **********************
please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Iris, here is the short answer. Get to an LLMD. While waiting around for "ducks" to decide what to do, the lyme spirochete is getting deeper and deeper in your tissue. It becomes difficult, if not impossible, to eradicate if you wait too long.
Go to the "seeking a Doctor" section and ask for a doc in your area. Post your city and state. Be sure you have your Lymenet account set up to receive private messages. Doc names are only sent in private. Since you are in New Jersey you should be able to get in to an Lyme Literate MD fairly quickly. There are several in NJ/NY/CT. TIME IS OF THE ESSENCE!!!! Do not wait around for your regular doc and a cardiologist visit to get expert advice. Please go to an LLMD recommended by someone on this board. A recommendation from your doc will not be good enough. I cannot stress this enough. Not that your doc is bad or anything, just that most docs are not aware of Lyme being a clinical diagnosis and if they do treat, it is often not for long enough. By the time you get inadequate treatment ( which may make you feel better, but not eradicate the infection) Your window of opportunity has passed to get rid of the Lyme completely. This is what happened to many on this board. It is far from a rare occurrence.
Please for your own good find an LLMD ASAP ...... like yesterday!
Hope this helps, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
I just posted an entry to find an LLMD in my area under the category you suggested - thanks!
-------------------- You only get one GO AROUND - Live it up! Posts: 11 | From New Jersey | Registered: May 2008
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
High CRP and Ultra Sensative CRP are very common in Lyme Disease - C-reactive protein measures an inflammatory response in the body, not just in the heart but gives an indication of general Inflammatory response in the body.
Again it is VERY common in lyme disease and other infections or autoimmune disease as the body is in a continual autoimmune response - you can often see many other inflammatory markers high.
Get yourself to a good LLMD who can confirm the correct diagnosis and advise you on your healthcare from here onwards.
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
hi there.
My CRP has been high at 25. Doctors have told me this is very high. I am sorry yours is so high. I agree you need to find a Lyme doc. Sounds like your Primary is better than most. But the dose of Doxy you may be on is likely not high enough.
Are you in pain? I am really sore.
Good luck Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
Hi I also have a very High CRP, I think the last time we checked it was 17,and the upper limit is 7, so that is pretty high.
Now if you look at it this way.....I will try my best to explain this.
Inflammation is the bodies first response/defense to infection, which is why they test for it immediatley after surgery.
When you have a CHRONIC infection like Lyme, than the body will always be creating inflammation in defense thinking it is helping us. Unfortunately CHRONIC inflammation is bad for us. but in actuality it is being created as a defense mechanism.
Hopefully once the infection is under control so will the inflammation.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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posted
My CRP was high, around 60. My SED was over 100. It shocked both me and my MDs. After treatment from my LLMD, both returned to completely normal. All symptoms were gone.
Unfortunately, I have relapsed and the are high again. I assume they will go down once symptoms are gone again
posted
my sed rate was normal, just the crp at 54.7.
I just picked up my meds. doxy @ 100 mg/dose x 2/day for 21 days.
I am going to check now to see if anyone responded to the other post for a good LLMD in the area to help me.
Melissa - I am very tired and just totally out of it. I feel like I've lost grip on my life. My very meticulous ways are no longer. It's definitely an adjustment that I do not care for.
-------------------- You only get one GO AROUND - Live it up! Posts: 11 | From New Jersey | Registered: May 2008
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
iris-
I am so sorry. I completely understand what you are saying. My doc is monitoring my CRP and I guess when it goes down it will be a good sign. It just stays the same or creeps up.
This disease sucks
Melissa
Posts: 3905 | From USA | Registered: May 2007
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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