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» LymeNet Flash » Questions and Discussion » Medical Questions » NIH, Columbia, LDA said "Lyme pain = post surgery pain"

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Author Topic: NIH, Columbia, LDA said "Lyme pain = post surgery pain"
hshbmom
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I'm trying to track down the original quote that says Lyme pain can be as severe as that experienced by post-surgical patients.


Any other documentation of the intensity of pain associated with Lyme disease would be invaluable.


School wants teen to do schoolwork regardless of pain level and in direct contradiction to doctor's recommendations.


We're still trying to find a pain plan that works...15 months with no progress.

[ 29. May 2008, 07:04 PM: Message edited by: hshbmom ]

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roro
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i am so sorry your child is going through this [Frown]

I don't have any proof, but I think it can be worse. I was on short acting demerol post-op for hysterectomy, small 2-inch incision.

I am now on extended release morphine and vicodin for breakthrough. it is intractable pain, you might want to do a search on that.

the best way to manage pain is with a long-acting medicine (extended release morphine, fentanyl patches, or oxycontin) and then a short-acting one for flare-ups. make sure you go to a pain specialist.

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northstar
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http://www.lymeinfo.net/pain.html

(I will add more links if I find them)

N/


http://www.springerlink.com/content/lb9k9gfe5aftm2u7/

(you may need to provide definitions of some of medical terms)

Abdominal Wall Weakness and Lumboabdominal Pain Revealing Neuroborreliosis: A Report of Three Cases
Journal Clinical Rheumatology
Publisher Springer London
ISSN 0770-3198 (Print) 1434-9949 (Online)
Issue Volume 20, Number 6 / November, 2001
Category Case Report
DOI 10.1007/s100670170015
Pages 447-450
Subject Collection Medicine
SpringerLink Date Thursday, November 01, 2001

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PDF (62.6 KB)

Case Report
Abdominal Wall Weakness and Lumboabdominal Pain Revealing Neuroborreliosis: A Report of Three Cases

E. Mormont1, W. Esselinckx1, Th. De Ronde1, Ph. Hanson1, Th. Deltombe1 and P. Laloux1
(1) Cliniques Universitaires UCL de Mont-Godinne, Universite� Catholique de Louvain, 5530 Yvoir, Belgium, BE


Abstract: The authors report three cases of thoracic radiculoneuropathy disclosing neuroborreliosis.

All three patients had low back and abdominal pain and two had marked abdominal wall paresis. EMG confirmed a motor involvement of the lower thoracic roots and CSF analysis revealed a lymphocytic meningitis in all three cases.

Antibodies against Borrelia burgdorferi were present in both the serum and the CSF. A favourable outcome was obtained in all three patients with appropriate antibiotherapy. The differential diagnosis of this misleading presentation is discussed.

Key words:Abdominal muscle paralysis - Abdominal pain - Low back pain - Lyme neuroborreliosis - Thoracic polyradiculoneuropathy
Received: 29 January 2001 / Accepted: 18 June 2001

--------------------

http://www.springerlink.com/content/rwn111b6ynfh3nnn/

(there is a pdf available on the link)

P. Demaerel1, I. Crevits1, M. Casteels-Van Daele2 and A. L. Baert1
(1) Department of Radiology, University Hospitals, Herestraat 49, B-3000 Leuven, Belgium Tel. +32-16-34 37 80; Fax +32-16-34 37 65, BE
(2) Department of Paediatrics, University Hospitals, Leuven, Belgium, BE
Abstract We report a child with Borrelia burgdorferi meningoradiculitis. This entity, also known as Bannwarth syndrome, is rare and its presentation with low back pain only is even more unusual. The MRI findings can suggest the diagnosis.

Key words Lyme disease - Spinal cord - Magnetic resonance imaging
Received: 28 May 1997 Accepted: 1 July 1997


---------------
This concluded the first 3 pages of a google scholar search for

pain lyme

Results 21 - 30 of about 14,300 for pain lyme

I have omitted all IDSA articles as they do not accept subjective symptoms.

There are plenty of other articles.

N/

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roro
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if its neuropathic pain, drugs like neurontin and lyrica work for that
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Lymetoo
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I know my LLMD has told me that and I definitely have experienced it.

I think there was indeed an actual study on it.

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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i've read pain can be equal to cancer pain...and energy depletion equal to congestive heart failure...but i'm sorry...i don't know where

--------------------
Lyme? Its complicated. Educate yourself.

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hopingandpraying
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I also read that in a post somewhere. Sorry, I can't remember who the poster was!
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bettyg
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mom

i used search above on that phase in medical and support, nothing popped on subject or text for those 2 forums except your current post.

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hshbmom
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I found the phrase in Pat Smith's LDA 2-page publication about Lyme in Schools...will have to find the title, but the statement was not referenced. It's the one with the green ink.


Kayak, I've also read the statements you mentioned about and how disabling Lyme fatigue can be.

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valymemom
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Dr. F. of the Columbia Research center has written that & I heard him say that at a conference.
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hshbmom
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I found a quote by Pat Smith of the LDA...at the Corning, NY March 10, 2005 presentation.


She said "Children with Lyme experience tremendous pain. A recent NIH study likened the pain intensity of Lyme to that of congestive heart failure. Sometimes...children attempt suicide."


Who knows what NIH study Mrs. Smith was referring to?

[ 29. May 2008, 06:59 PM: Message edited by: hshbmom ]

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njlymemom
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She said "Children with Lyme experiene tremendous pain. A recent NIH study likenend the pain internsity of Lyme to that of congestive heart failure. Sometimes...children attempt suicide."


I have a copy of this letter, yes it has green ink. That is how I remembered it. I have used it for my children. I hand it out each fall to all of their teachers.

Have you tried to email Pat Smith or LDA?

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

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AliG
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Will this help?

LDA News Release

so sorry [Frown]
[group hug]
Ali

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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hshbmom
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That's it. Thank you AliG!!!!!!!!


http://www.lymediseaseassociation.org/NewsReleases/20051028.html


National Institutes of Health
Study on Lyme Disease Reveals Significant Chronic Symptoms and Common Misdiagnosis


Columbia University and Lyme Disease Association Announce New Data at 6th Annual Lyme Conference in Philadelphia


PHILADELPHIA, PA (October 28, 2005) - Columbia University and the Lyme Disease Association today announced results from a National Institutes of Health (NIH)-funded study, which found that 76 percent of women and 24 percent of men with chronic Lyme disease exhibited specific symptoms,


including pain similar to post surgical pain, fatigue comparable to Multiple Sclerosis, and physical disability comparable to congestive heart failure. Results were previewed at the 6th Annual Lyme Conference in Philadelphia, PA.


In addition, the study, titled ``Chronic Lyme Disease in Adults,'' found that adults, during the course of their Lyme disease, often showed neuropsychiatric symptoms, such as mood problems, which could cause them to be misdiagnosed as having a psychiatric disorder.


Delay in diagnosis is common and can contribute to a more entrenched disease, as well as persistent or relapsing symptoms after treatment, such as severe pain, fatigue, and physical disability. On average, people struggle for 1.2 years before they are accurately diagnosed with Lyme disease.

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Lymetoo
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YEA!! Thanks, Ali!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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AliG
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[Big Grin]

Google is a wonderful thing, if you can just figure out what combination of words to use! [Smile]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Lymetoo
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Yes, because I had Googled several things. What did you google to bring it up!?

--------------------
--Lymetutu--
Opinions, not medical advice!

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