posted
I was thinking about why traditional medicine has been so ignorant to chronic lyme and I ended up with the following question.
Have people who tested positive through traditional lyme tests (not Igenex or Fry labs) all gotten better? Do you guys know any people that tested positive through traditional tests (I understand these tests only diagnose a small minority of lyme patients) that haven't gotten better?
The idea is, there must be people who have tested positive through traditional tests and have not gotten better and this should serve as STRONG evidence for the existence of chronic lyme to the medical community.
Posts: 3 | From Cleveland | Registered: Apr 2008
| IP: Logged |
posted
You mean like tested CDC positive at a non-tick borne specialty lab?
Many, many Lyme patients have. I have tested positive at Quest, the Mayo Clinic, Stonybrook and Labcorp on various occasions--ELISAs, Western Blots, and PCRs.....I'm no where near better, I have one of the worst case by some of the top LLMDs in the Country have seen.....It's uncertain if I can improve.
I also have Quest positive for Babesia, and a Stomach Biopsy positive at the Cleveland Clinic for Bart.
I dont think it's an uncommon occurance.
Posts: 29 | From New York | Registered: Aug 2007
| IP: Logged |
posted
Unfortunately, the IDSA calls people who tested CDC positive but don't get better with standard treatment as suffering from "post Lyme syndrome."
Meaning that the bacteria is dead, but left an untreatable, incurable autoimmune reaction.
They have no evidence that this is actually true; their lack of logic and inability to extrapolate from existing data is mind boggling.
Posts: 129 | From Virginia | Registered: Feb 2008
| IP: Logged |
posted
How can traditional medical doctors continue to deny the existence of chronic lyme if positive people (by cdc guidelines) remain positive by cdc guidelines after treatment? Wouldn't it be clear to them that this is not post lyme symptoms but lyme itself. Have any of you tested positive by cdc guidelines but then have not gotten better...how do doctors respond to that? Thank you all for your responses.
Posts: 3 | From Cleveland | Registered: Apr 2008
| IP: Logged |
northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
No, they just call it a false positive test.
Antibodies stay there, but there is no infection because you had 4 weeks of abx.
And the symptoms are auto-immune, or no different than anyone else, etc. etc.
It is possible to have a positive and not have symptoms,
but if you are positive and have symptoms, after the abx, they just write it off.
They only accept objective symptoms, whatever that means. Cant measure pain, cant measure sensations, etc., therefore they do not exist.
If they did a skin biopsie or somehow detected an actual spirochete in tissue, then they would say that it was not enough to cause the symptoms because (again) you already had the 4 weeks of abx.
How can they do this?
They make up their own rules as they go, depending on their agenda. This is filtered down to general practitioners, and rank and file IDSA, AAN, etc. groups, who trust their leaders.
Here is a link to a posting that contains several links to current information that may help you understand.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic