Topic: So FRUSTRATED with Dr. M in Alabama! Help!!!
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
quote: Pick up the phone? Write a letter? Become an activist? Direct my energy and anger in the proper direction....
I have spent over a thousand dollars of my OWN money printing up pamplets for the Mississippi Dpt. of Wildlife and Fisheries on lyme disease.
I am now a part of the hunters education program - I speak there every three months on lyme education.
I also recently e-mailed every newsstation in my state trying to get them to do a story on lyme, and am getting my story published in the local paper here.
Hokey Smoke, Lauren! This just absorbed into my malfunction brain. You are doing more than most, AND when you are so ill.
I know it's stressful going to a new doctor, going through your history, AGAIN; not to mention all the travel you will now have to do.
My doc is just 26 miles away, and in our town, that's nearly an hour's drive.
I hope you find someone who will get to the nitty gritty and move you in the right direction.
posted
Charlie- a doctor simply willing to treat for Lyme is not an LLMD. And that seems to be the case for LL.
My doc was willing to treat me-he was not an LLMD, although he may have considered himself one-he followed the IDSA guidelines-and I think it may have done more harm than good.
So part of the education that needs to go out to possible Lyme patients is to ask which guidelines their doctors follow.
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Cobby....I started such a flap at LNE that I had to 'splain myself...my point is this, and I think it's the same as TC's....
A scrip for a month worth of doxy from a marginal LLMD is much more valuable than a scrip for an SSRI from a neurologist for the same malady.
That's all, nothing complex whatever.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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Cobweb
Unregistered
posted
But LL's doc wasn't even an LLMD,let alone a marginal LLMD. There are no LLMD's in Alabama.
I think docs who profess to treat Lyme disease, but do not follow the ILADS guidelines, should be exposed as possibly harmful to patients.
Inadequate treatment merely drives the bb into hiding. And when it does reemerge it is often unrecognizable as Lyme Disease.
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
OK I can understand...I'm just giving TC some back up sort of generically when she tries to stop bashing of docs who will prescribe abx. Dr D in MA being another one who gets beat up on all the time....but these docs give us a window of opportunity to find another doc.
SSRIs are no way to treat a bacterial infection even temporarily....I guess I just have a mad on for the psych drug prescribers too, after a couple of family tragedies.
We probably ought to let this thread die since I bet we're boring people on 2 forums to death, to the point they'll need an SSRI.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Charlie,
I'll second you on the lawyer in Pennsylvania!
I do have to agree with Kelmo and Cobb that inadequate treatment leads to a lot of unnavoidable problems later on down the road.
I haven't recieved adequate treatment or testing but ultimately that's my fault.
I'm responsible for my health and my treatment and hindsight 20/20 I should have done further research and seen another doctor from the beginning.
Kelmo - thank you for acknowleding my efforts and guess what?
I have an appt. with a new Dr. in July! I have heard wonderful things about him and am excited and hopeful!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Cobweb
Unregistered
posted
Great news LL about your upcoming Dr.'s appointment.
Meanwhile I think you should get an Unsung Hero Award for everything you do for Lyme Awareness.
My daughter just got an Unsung Hero Award from her Varsity soccer coach. She plays defense, sweeper , if you happen to know anything about soccer.
Coach pointed out how often it's the most visible players in Offense who get the spotlight, while those playing defense go unnoticed-although their actions contribute just as much.
Last year Carolyn couldn't finish the season due to Lyme Disease-but she came back this year, better from treatment, with more resolve and determination.
I think there are many Unsung Heroes among us who go unnoticed.
Meanwhile-if you feel so inclined there is an Alligator Pit in General for Dr. M if you think it's appropriate. My misinformed Dr. had good intentions-but even after I tried to educate him he stuck to IDSA. Oh well.
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Cobweb
Unregistered
posted
This thread got me trying to remember what the rules actually are on LN:
I couldn't find them posted anywhere, so I finally went back to the beginning at hit Reigister.
For anyone wanting a refresher-
"Considering the real-time nature of this bulletin board, it is impossible for LymeNet to review messages or confirm the validity of information posted. Please remember that we are not responsible for any messages posted. We do not vouch for or warrant the accuracy, completeness or usefulness of any message, and are not responsible for the contents of any message. The messages express the views of the author of the message, not necessarily the views of LymeNet or any entity associated with LymeNet. Any user who feels that a posted message is objectionable is encouraged to contact us immediately by email.
We have the ability to remove objectionable messages and we will make every effort to do so, within a reasonable time frame, if we determine that removal is necessary. This is a manual process, however, so please realize that we may not be able to remove or edit particular messages immediately.
You agree, through your use of this service, that you will not use this BB to post any material which is knowingly false and/or defamatory, inaccurate, abusive, vulgar, hateful, harassing, obscene, profane, sexually oriented, threatening, invasive of a person's privacy, or otherwise in violation of any law. You also agree not to post the last name, or the first name, of any doctor. Instead, please use the first initial of the last name only. For example, Dr. B. This is to protect the doctors and the Lyme community.
Although LymeNet does not and cannot review all the messages posted and is not responsible for the content of any of these messages, we at this BB reserve the right to delete any message for any or no reason whatsoever. You remain solely responsible for the content of your messages, and you agree to indemnify and hold harmless this BB, Infopop, Inc. (the makers of the bulletin board software), and their agents with respect to any claim based upon transmission of your message(s).
Please note that advertisements, chain letters, pyramid schemes, and solicitations are inappropriate on this BB.
LymeNet has the right to change these rules at any time without prior notice. "
No I don't see anything about not posting other websites-I guess it's just the final statement where LymeNet has the right to change these rules at any time without prior notice that got me.
I hope they don't make a rule where you can't explain yourself with the truth when someone tries to defame or discredit you.
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Cob - That's awesome about your daughter! You must be very proud.
I'm glad that she's feeling better and is getting back to what she loves and getting recognition.
Let me say - speaking of unsung hero awards - you get one from me!
You stuck your neck out for me and almost got it chopped off!
Thank you!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Cobweb
Unregistered
posted
Awww shucks-it was nothing.
I am not related to either the Hatfields or the McCoys-contrary to what some people may think.
But sometimes I think I am related to Rodney Dangerfield.
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Hey, I won third place in a Rodney Dangerfield imitation contest once, and got front row seats to see him.
Of course, first and second place won trips to warm and tropical places.....
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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