posted
Ive been in severe pain all week after doing 5 days worth of Flagyl of 750 a day and also starting the lowest dose of the buhner protocol and the 3 core herbs. everything seemed to be going well so far until a few days in when i got terrible headache and all over body pain and nausea. i was on the Flagyl for C Diff but i guess its really doing something to the lyme. ive already done 20 months of antibiotics and have been feeling alot better lately so wasnt expecting quite this much of a herx. its the biggest herx ive had so far on abx treatment. my question is has anyone out there experienced the same thing? im worrying alot as usually when i herx once i stop the med the inflammation and pain is gone within a day or so but its been 3 days since i stopped Flagyl and havent taken any herbs since yesterday morning and the pain is still very bad. im writing this drugged up and wearing shades;) i spent a year when i was first ill with this same severe migraine-like pain and had to stay in my room which was boarded up as i couldnt tolerate light. i know im probably not thinking clearly because of the pain but im worrying that this pain will not go away and i will have to spend another year like that one, the thought scares me so much. i know im being silly but id really appreciate any advice anyone has on Flagyl, thanks so much!!
Posts: 45 | From PA | Registered: May 2008
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posted
Hi! I haven't taken flagyl yet, so I can't really tell you a definate of what is going to happen, but I was told that the herxes get bad before you get better. The meds.are killing the bacteria and it's working. I'm
going to be getting the IV soon and I was told I would get worse, before better. It really stinks,just hang in there and know your not alone. Alot of people all over have lyme and co-infections. Posts: 27 | From pa | Registered: Mar 2008
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be carefull with symptoms and flagyl, i meet somebody that take it in pulse each 4 days and improve all the symptoms, search your better way of take in your case with the doctor, greetings
Posts: 108 | From spain eur | Registered: Apr 2005
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posted
thanks for the replies, its good to know that Flagyl helps some people in their recoveries. I was just surprised how long the herx is going on since i havent taken any flagyl for 4 days now. its by far the strongest herx ive had. hopefully it ll get better soon though, thanks again:)
Posts: 45 | From PA | Registered: May 2008
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posted
Hi Windmill, I have have been on Flagyl for 6 days and don't feel that bad. I am also on IV Rocphin,4 days on 3off. I feel much worse when I stop Roc.I am on Flagyl 14 days on and 7 days off (1000mg a day). Lots of sweating,slight nausea,weak,eye floaters,tired,joint pain and brain fog. Atheana
Posts: 196 | From from a far | Registered: Jan 2008
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posted
Thanks Atheana, Im glad ur not having too bad a reaction though it sounds like you ve got plenty of other symptoms to keep you busy;) my pain levels are finally coming down but im not sure when ill take Flagyl again, im almost scared to take anymore. I think ur plan of pulsing it is a really good idea though cant imagine being able to take it full-time! appreciate the response:)
Posts: 45 | From PA | Registered: May 2008
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I had exactly the same reaction on flagyl. Felt so cr*p had to stop after 6 days on 750 mg. Its the only clear herx I have ever had.
I am glad I did it though. It gives me some good info to give my LLMD when I meet him for the first time next month.
I think it would do wonders if I was on IV or Bicillin at the time to mop them up as they bust out.
I'd say this is on the cards for me in the future once the Bart is dealt with.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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ur from Ireland! Im from Ireland too, Clonmel Tipperary to be exact but been living in the states for a few years now. thanks for the reply, i think ur right about Bicillin i think it would be great with the Flagyl i did it for a while and it really helped me alot. hope ur llmd is good and you like him/her when is ur appt?
Posts: 45 | From PA | Registered: May 2008
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posted
I didn't know whether to reply on this thread or your other one, but flagyl is really good for breaking up the cyst form of the spirochete.
That is why you had such a bad herx. Keep this in mind later when you are ready to go off abx. It's always good to end with flagyl to make sure you've gotten rid of all residual cysts.
As for the c.diff you mentioned in your other thread, c.diff can be very hard to get rid of and very serious.
Do not let it get the upperhand. If you have to, you can take vancomycin for it.
Also, get on some good probiotics which include s.boulardi. One abx which contains it is NuFerm's Wholefood Probiotics.
posted
thanks guys I really do appreciate the replies, i think when i wrote this thread the flagyl was really messing with my brain, it made me feel very anxious, teary and depressed which is not my usual state at all. im feeling better now in that sense and after some cramps (c diff i think) this morning i decided that getting back on the flagyl is the most important thing right now and staying on it no matter what. (i totally agree with you lymetutu about not letting it get the upper hand, i was procrastinating there but not anymore!) im going to try and do ten days worth and hope for the best. this week though when the pain wore off i felt the best ive felt in about 6 years so i cant say the overall effect has been bad:) thanks everyone for ur advice, it really helps not to feel so alone making all these decisions!
Posts: 45 | From PA | Registered: May 2008
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