posted
Hello everyone...been some time since I've been here.
I had my rash about 30 yrs ago. Many problems since then. About 1 & 1/2 yrs was clinically diagnosed with ehrlichiosis by an LLMD.
I'm relapsing very severely. I injured myself on the 7th of this month bending down with my right arm. I felt a very sharp pain between my right armpit & breast. I think I broke a lyme cyst.
Afterwards I noticed the simplest things I do my right area lymph nodes would hurt severely. The first couple of nights while sleeping I had like 8 head seizures each night.
Lymph node under my chin hurts. Pain on right side of neck going up into head. Lymph nodes all around right armpit area hurt. Pain down right arm with the worse pain to node inside elbow. Pain across right collarbone to thymus area hurting badly. Very severe chest pain below that(lymph vessels). Head pressure. When all this happens I get the fevers.
The other day I had very severe pain a couple of inches below my left shoulder. Couldn't pick it up at all. I put my zapper on it for a couple of hrs & it took away the pain. Also been putting my zapper on all my lymph node pain...works great.
I've been getting this lymph node pain in all the same areas with the fevers many many times since the injury. The craziest things have been setting it off.
Hot showers, hot or cold food or drinks, vibration like a vacuum, or simple tasks.
In addition to the above symptoms new ones have developed. Flushed face, headaches, sharp pains in right side of head, pressure between eyes on forehead, lots of tremors, twitching & thumping behind both armpits on back. Tremors anywhere on both arms, down my left leg. Am I getting pathetic yet? Pain in the middle of my back that feels like another cyst. More lymph node in various areas.
Twice last week came very close going to the ER as the chest pain was severe. Thought I would get a EKG. But I didn't cus I never get satisfaction at a ER.
But I did go to my regular doc Friday. EKG was fine, chest x-ray was fine, breathing test was fine. I explained all my above symptoms to him. Guess what he said...absolutely nothing, not a damm thing. You'd think he would at least agree with me that just maybe I ruptured a cyst, but no...nothing. At least he did order an elisa test for lyme, but I declined as I got a WB coming up with another doc through MD Labs. That will be Tuesday.
It will be my first visit with this holistic doc. Lets hope I make out better.
So I'm presuming I have a lyme cyst problem. I wonder how many I have? Anybody know of a test for this? When a cyst ruptures what's inside? Are there thousands of lyme babies? Anybody know about this stuff?
Currently taking oil of oregano sub lingually, lots of zapping, ibuprofen for the fevers, & cayenne. While at work working very slowly, if I don't I suffer.
For the record. I've had epilepsy since 1999. Abx is what gave me seizures in the first place, so I'm very afraid to take them again. I have all kinds of notes of natural therapies but let me talk to the new doc first. Before somebody says it, I'm aware of lymph drainage therapy, but again let me see what the doc says.
But can somebody please help me out with this cyst thing? I'm a very worried man right now. Sorry for the long post.
-------------------- Pat Sr Posts: 63 | From Toms River,NJ | Registered: Oct 2006
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posted
i didnt realize nor have i heard that you can "feel" a cyst break. my understanding is that yes the Bb goes into cyst form and yes they do open and yes they do multiply in the cyst form....i belive that is all correct
but "feeling" one burst - never heard. dont know that would be the case. i dont think its like a gangleon cyst - one palpable. i could be wrong but dont think i am
i am aware of many stating as well as my own experience feelings of ripping or tearing something in a particular area and haveing terrible pain in that area following but think
this is more muscular in effect than cyst breaking effect and yes that is lyme related for sure
i am glad your going to a different dr and getting the wb. is it a LLMD?
dont know if i was of much help but wish you well and will look to see how your doing in future posts
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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bettyg
Unregistered
posted
...hi pat,
wow, sorry to hear of all the misery you are in! i have NO knowledge on this.
have you tried doing a search here for past posts about this?
go to top, click search, and type
cysts breaking medical text any date leave membership no. blank; hit send
read all posts/replies...
if none, hit BACK button, and change text to subject line; HIT SEND AGAIN, and hopefully you'll get something
if you just show CYSTS; you'll get so many but nothing about what you want to know about.
good luck pat; up we go for day crowd to help you!
IP: Logged |
I really don't think it's muscular. If it was I would feel pain at the injury site all the time. I'm sure it's lymph related. Guess I'll find out Tuesday if the new doc is LLMD. Going to ask if he's ILADS. Thanks for your get well wish!
bettyg...thank you
I've already did a search, but didn't find anything that I understand. Maybe I need better key words.
To all
The more I think about that doc the madder I get. He should have done some kind of test to see what I did. I mean it's only common sense. Sorry had to vent.
-------------------- Pat Sr Posts: 63 | From Toms River,NJ | Registered: Oct 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
The cystic form is one of the forms of borrelia, but it's not the same as a cyst that might rupture as you are thinking .... these are still microscopic in size.
I'm sorry you might be dealing with this again. I'd make an appt. with your LLMD to have it checked out.
Grapefruit seed extract goes after the cystic form.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
We have had similar experiences with injuries.
Does the spirochete target areas that have been injured? I have no proof, only that it has happened here, and our PT sees a lot of this happening with other lyme patients.
It sounds like you need to see your LLMD. Are you still on abx?
Have you changed treatment recently?
Have you started excercising after a long time of not being active?
Has there been additional stress in you life?
Glad to hear your ekg was fine. Lyme spirochete likes the connective tissue....chest pain and pain along the ribs is common for us. I have experienced the lymph nodes swollen with the same pain shooting into my head, down my neck and into my chest and lymph nodes under arms. Detoxing and physical therapy were the answer for me.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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Peacesoul
Unregistered
posted
Hi, sorry you're feeling so awful. I'm also relapsing with the same symtpoms as you. It's disheartening.
I also never heard of being able to feel a cyst. In fact, Lyme research is so limited, I thought cyst were only an assuption of lyme and not a fact.
I would see the LLMD and not get angry at your regular dr for not knowing what to say or do. You can't expect someone not familiar with lyme to have any answers.
posted
njlymemom...I'm not on abx, I can't...it's what gave me seizures in the first place. I had 3 seizures last night.
But this is something I'd like to ask the doc about tomorrow. Could it be possible that it wasn't actually the abx that gave me seizures, but rather the abx made the ketes active? If that's the case then how do you explain I'm still having seizures after 1 & 1/2 yrs after going off the abx?
No I haven't changed any type of treatment. I don't exercise cus of pain, but I do alot of physical work where I'm employed. There's no stress before the injury day but there is now cus of what I have done. Thanks for your reply.
Peacesoul...you say I shouldn't be angry at my doc. He could have at least suggested something for my symptoms to at least get me by till I figure this out.
To all...took a shower alittle while ago. Only used warm water. Again I suffered big time with all the same symptoms as in my original post. I used my biofreeze...helps alot & gets me by.
-------------------- Pat Sr Posts: 63 | From Toms River,NJ | Registered: Oct 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by MrG: Could it be possible that it wasn't actually the abx that gave me seizures, but rather the abx made the ketes active? If that's the case then how do you explain I'm still having seizures after 1 & 1/2 yrs after going off the abx?
I would guess that your seizures are one of your symptoms and that when you took abx it increased your symptoms in a Herxheimer Reaction that many of us get.
I would guess that since you are not treating, the bacterial load is now getting higher and causing the seizures again.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
sixgoofykids...thank you...this has been my thinking too lately. Let me see what the new doc says tomorrow. I hope he lets me talk & not rush me.
-------------------- Pat Sr Posts: 63 | From Toms River,NJ | Registered: Oct 2006
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posted
Dear Pat, Although my story is not exactly like yours, I waas on an herbal protocal even before I knew it was lYme again...was first dx in 2001 due to EM rash and tick bite.
anyways, I started a HARD hitting herbal protocal using everything I could find on hte net using all sorts of doc's recommnedatons that treated herbally and I still had in Oct what I belive were TIA's or mini strokes.
Now that I have seen a LLMD and am on treatment, I have started having 3 diffferent kinds of sezures. It is awful. I have also prgrossed to a wheelchair. which is humiliating and hard to deal with in that I too have children and family duties and I CAN't do them!! Somedays I feel sucha failure but yu know what?
God is still God and He knows what is going on and what I need. Perhaps I am learning pateience in a way I NEVER could have realized before. On days where I "fight" against it, of course it's all the worse. Now I try to take one day at a time....moment by moment and I do sometimess have small victories.
BTW, I go see Dr. on the 2nd. I'm anxious as these seizures are new since our last visit. There is no money for EEG's or neuro docs...he's all I got in the medical fild. I hope for the best and pray for God's will to be doen IN ME first. May He be glorified in some way by thsi broken and wearied body if I might be of some service to Him.
Take care and Lord bless thee, Sister KImberly
Posts: 41 | From Brookfield, MO | Registered: Jan 2008
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posted
Dear Pat, Although my story is not exactly like yours, I waas on an herbal protocal even before I knew it was lYme again...was first dx in 2001 due to EM rash and tick bite.
anyways, I started a HARD hitting herbal protocal using everything I could find on hte net using all sorts of doc's recommnedatons that treated herbally and I still had in Oct what I belive were TIA's or mini strokes.
Now that I have seen a LLMD and am on treatment, I have started having 3 diffferent kinds of sezures. It is awful. I have also prgrossed to a wheelchair. which is humiliating and hard to deal with in that I too have children and family duties and I CAN't do them!! Somedays I feel sucha failure but yu know what?
God is still God and He knows what is going on and what I need. Perhaps I am learning pateience in a way I NEVER could have realized before. On days where I "fight" against it, of course it's all the worse. Now I try to take one day at a time....moment by moment and I do sometimess have small victories.
BTW, I go see Dr. on the 2nd. I'm anxious as these seizures are new since our last visit. There is no money for EEG's or neuro docs...he's all I got in the medical fild. I hope for the best and pray for God's will to be doen IN ME first. May He be glorified in some way by thsi broken and wearied body if I might be of some service to Him.
Take care and Lord bless thee, Sister KImberly
Posts: 41 | From Brookfield, MO | Registered: Jan 2008
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
hello, were you ever treated for bartonella? Your lymph node stuff sounds like bartonella to me.
Posts: 3528 | From US | Registered: Apr 2007
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Please excuse me if I don't respond to anyone but there's been a big turn of events for me.
I had a heart attack last thursday & have been the hospital up untill 2 days ago.
They did a cathezation(sp)on me. Had angioplasties done with a stent. I had 90% blochage at the back of my heart which apparently was causing my pain on my right side. I also have a 70% blockage.
I asked many docs what's the connection with lymph node pain & the heart & nobody could answer. As to the injury area itself...it apparently saved my life.
Don't know though if it's lyme related...I say it is. I had too many weird symptoms besides the pain. It had to be lyme.
I'm feeling quite depressed right now & feeling like a failure so I'll leave for now.
-------------------- Pat Sr Posts: 63 | From Toms River,NJ | Registered: Oct 2006
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