of course there is DVD of Dr. P's presentation Chronic Lyme Disease: Connection to MS- Facts behind the controversy http://www.newhaven.edu/unh/lyme/
Which bands were positive? Hope you have a good LLMD!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
We are MANY.
That is, those of us previously (mis)diagnosed as having MS, when in fact we have lyme.
It is possible, too, that you have one or more of the common coinfections which would exacerbate your symptoms. For me, it was babesia WA-1. Not a fun party by any means.
I had numerous brain lesions, abnormal evoked potentials, enough to warrant an MS dx in the neuro's mind. Never mind my description of a bullseye rash. He scoffed at that! I basically diagnosed myself, then found an LLMD through this very fine support site. My western blot was smokin' positive!! Yours may well be, after a dose of antibiotics.
I would take my LLMD's advice about stopping MS meds. Not all MS meds are created equal.
DO expect to feel worse, but don't let that stop you. You likely have some bacteria to kill, and they will make you feel worse before feeling better. That's part of the process.
Get some Theralac (see website by same name). Take it religiously to replace lost gut flora. Stay ahead of the yeast-beast curve!! :-) Watch carbs.
Unlike with MS, with lyme you CAN get better. Don't believe otherwise!
Oh yeah -- before someone else mentions it, lose the "s" on lyme.
Come often for support!! We're so glad you found us! "Joisey" has lotsa lyme -- I so wish neuro's would wise up, but at least patients have, if the doctors haven't! Welcome!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
Ditto for me. Diagnosed with MS. Had the bullseye. Sent myself to LLMD knowing full well that Lyme had caused my illness. Also Bartonella. Am fine now after 8 months of antibiotics (started with IV). Please write with any more specific questions. I wouldn't touch an MS drug if my life depended on it!
Allison
Posts: 43 | From Chicago | Registered: Mar 2008
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
MS was suggested by healthcare practitioners and I was sent to neurologists to confirm. They were unable to confirm the MS diagnosis though many of my symptoms matched. Eight years later, I was diagnosed with Lyme disease. I believe that most people with MS have Lyme, HHV-6, or both. Fortunately, these can all be addressed, though not quickly or easily. At least there is hope.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
In addition to some of the links above, you might find some good information in this current post.
MS is a frequent question here. Of all the articles I've seen, the one by Goldings may help the most. It is through ILADS www.ilads.org in their articles and presentations - and on one of the posts here:
Oh, as you read on, you may notice that lyme has no "s" - and regarding other TBI (tick-borne infections) you may find helpful articles in the NEWBIE links.
Sorry you are here, but Good luck to you. I hope you find what you need to feel on the right course.
I have been ill since I was a child (now in my upper 40's)
I was also misdiagnosed with MS (at age 31)
it took 7 years to get that diagnosis....to bad it was wrong
lived with the misdiagnosis for over 12 years....even took Copaxone for 8 of those years
I was dying and all my neuro was offering me was pain pills
it is a long, long story how I finally got help...
when I started abx I began to feel better
after 6 mos of abx I made the decision to stop my copaxone
and told the neuro where to go
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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