posted
My feet, actually more my toes, feel like they are being stung by a million bees at the same time!!!
This started earlier today when we were outside and I thought that a bunch of ants had bitten me on my toes. It got worse and worse.......
I've tried Benadryl cream, ice water in a bucket, getting in the pool, taking a cold shower, and nothing is relieving it.
They're not really red, they just sting like hell. I've got Reynaud's and peripheral neuropathy, but this is different.
I don't really see any bites, and I don't see anything I would consider swollen. I just can't get rid of the pain and burning. I want to yank my feet off!!!!!!!!
Any suggestions? Solarcaine, aloe vera, baking soda soak..........help me!
Yes, I'm guilty of being outside today by with flip-flops and a bathing suit on. A no-no, but it's Memorial Day and I'm gonna join in family fun. (Please, no scolding. I'm dealing with enough other stuff right now.)
My feet aren't sunburned, either. My arms are a little bit, but they don't feel like they're being stuck with needles! I can't stand it.
Before I try anything else, I wanted to see if y'all had any suggestions........my feet aren't hot, either.
Any ideas??????????? Please!!!!!!!!! I'm miserable!
Thanks, terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
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Hi Terri, I know what this is like, have had it for 1.5 years, one of the defining and worst sx's leading to my dx of Lyme/Bart! Are you receiving treatment?
BTW, I am a little perplexed how this came on so suddenly for you? Know exactly what you're feeling, however I can get relief, in some very perplexing ways such as exercise, yes being on my feet helps!
OK, can someone give suggestions to Terri?
Regards, MBB3
Posts: 247 | From The Country | Registered: Oct 2007
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I use to describe this same sensation..but it wasn't only in my feet it was all over my body...bee stings, is what I would tell my LLMD. This feeling is a part of peripheral neuropathy. The nervous system can create many strange and odd sensations, most indescribable.
I was treated for LD/Bartonella first. Bart is gone now and so are the "bee stings". It would wax and wane.
Now I am down to one co-infection and Lyme (I also have active viruses) and once in awhile I get what I call "sparking" sensations ...it reminds me of one of those sparklers they put on birthday cakes or have on the 4th of July...it feels like that sounds and looks. I don't know how else to describe it. That's the weirdness of these sick diseases. This also waxes and wanes, I believe this is related to Lyme die off/herxing.
Are you in treatment? Could this be a herx?
If it continues call your LLMd, for immediate relief to take the edge off, Xanax works well, for long term relief Lyrica or Neurontin may help.
If it is Bart related, no topical creams will help...so sorry, I know this horrible feeling.
posted
Thanks for responding. No this isn't new to me, this is just more intense than usual.
It tends to get worse when I walk tonight and now it's in my hands, arms and scalp. Yes, I'm in tx and have been for almost a year for Lyme, and we don't really know what else as far as co-infections go.
I've got lots of other medical issues (don't we all?) so I've been seeking the help of many doctors over the past 12 years. I've gotten all the same dx's I'm sure y'all have gotten as well: FM, CFIDS, GI issues, heart issues, depression, MS, blood disorder, etc.
It's too exhausting to even think of all the rest of the dx's. I was dx'd with Lyme after waking up with a bulls-eye rash last Aug. The doctors say I'm lucky I got the bulls-eye.......I guess! Lots of western blots since then and still doing them. Been doing so many blood tests, etc. since '96.
Currently on doxy, diflucan, probiotics, neurontin, klonopin, toprol, wellbutrin, 2 thyroid meds, ATP/Glutathione shots............you know, too many to think of right now. Lots of supplements as well.
Had a 48 EEG last week (got to do it at home), and an MRI the day after they ripped out those electrodes. I'm doing a 2 day sleep study tomorrow and Wed. Oh, the joys of all this crap. They think I'm having mini-seizures and that I've had a couple of TIA's (mini-stokes.) I'm 48, almost 49. Strokes run on my dad's side of the family.
Anyway, I guess I'm just having a MAJOR neuropathy problem today. Probably a combination of being stressed from all the tests, being outside today, kid issues, and just being worn out.
Don't know if I answered all of your questions, but the main thing is that I'm not new to this. I'm SICK of this!
I need to go finish the paper work for the sleep study for tomorrow and make sure my youngest son (13) is studying for his finals he has tomorrow.
I'll check in later...............
Thanks again, terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
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Just a thought. Feel better!
Posts: 21 | From newtown,CT | Registered: Oct 2002
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Alv
Unregistered
posted
I have bart and lyme and the company.
IF you feel it at your toes ( I had that yeasterday ) and hands than this is definitly bart.
YOu said you have treated lyme.Than probably lyme is lower and bart ( GI issues, heart issues, depression, blood disorder) .I had them all.
Yes bart can give you heart problems and hypercoagulation as well .Digestive track issues were resolve after 1 year of treatment.
My bart load is horrible.And the sensation that you have in you hands , feet and scalp IS BART!BART !BART !BART!
I have head this all.
And still have them but lesser than ever.Finally I started sleeping and I NEVER took any of your pills .I take only 1 MELATONIN.
If I had waited by the lab test -I would have never make it.Muscle testing showed and still shows bart .BUt AFTER 1 year -I sleep while 1 year ago , I was walking as crazy all night up and down as there was no way I could sleep.
It even hapened that I stayed 1 week AWAKE.
Do you have brain swelling ( hope not ) but burning SO TYPICAL for bart!
I was today rubbing my fingers and toes as I have them swollen too and I know bart is stil there!
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Please consider getting some Hyperbaric Oxygen treatments. Not for the lyme/bart but for the mini strokes.
HBOT can be preventive if you are having mild TIAs. They may be indication of a much larger one to come.
I had one client who can to me because he was having mild TIA. His wife insisted he have the sessions. He did have a major stroke about two weeks into his treatments.
His wife contacted me to tell me that when the paramedics arrived he was completely unresponsive with all the indications of a massive stroke.
He was put on normo baric oxygen by the next day he was walking around symptom free. His Doctors where at a complete loss.
Also, HBOT has been shown to have upwards of a 94 % recovery rate for stroke patients if administered within 4 hours. Those studies have been done in Russia, China & Japan.
I doubt that it will ever become main stream here in the US though.
If you would like those studies send me a PM
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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posted
Agree to what has been said sounds suspicious of BART! Talk to you LLMD about it!
Alv - what meds and how long did you treat bart? I have the same sh** and I take rifampin, it does not seem to help too much yet.
Posts: 347 | From sweden | Registered: Feb 2008
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posted
Moving this post from last night UP as well, to make it easier..............???????????
Thanks,
terri3boys Posts: 268 | From Texas | Registered: Aug 2007
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Alv
Unregistered
posted
Ok ..Swedish lymesuferer...MY BART started since in germany And I kept adding other strains...thaqt is where I felt my legs were heavy , maybe I had it before ...but symtosm started sine in GERMANY -clearly !
I realy need to put my treatment under my signature.
MARCH -MAY 2007 -tons of herbs--Non end that my boyd wanted
Also March may 2007 -IV blood Iradiation for babs and bart
June 2007 -stephen buhners herbs and doxy
July added zityhromax ( doxy also) Rifapmin 300mg =what it was before -stoped IV ( exsp)
August increased RIfampnin to 600mg continued on previous stuff
December switchet to KETEK( now that I read Dr J S last article) ketek flushes bart out of the tissues ..that exsplains why I got sick again...Did also 1 month homepathic formula for bart January -only ketek , Resveratrol February -LEvaquin -Doxy March 15 -HERX, Tend-switched to Rifampnin 1200mg with DOXY and herbs
APril Rifampin 600mg and doxy 400mg -midle march added Azithr also
May started back to LEvaquin 500 , Azithr 600mg and doxy 400mg ( herbs also)
By aware that I have been rifing since 1 year on BArt henselae freq for the entire year since MARCH 2007 every week.
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Alv
Unregistered
posted
terriboys..I highly suggest you to take igh dosage of WOBENZYME...2-3 times a day on an empty stomack 10 pills.
I had ministrokes...And that helped tremendously.They could not draw blood on me.WAS SO THICK i could feel my bloot clots moving from my arm to my liver ( after I did liver flushes -I felt everything clearly in my body) and in my right arm.God knows how it did not ended up in brain.
Also read at Dr J S that for bloot clots -take nattokinase from NUTRACEutical SCIENCES INSTITUTE
jUST GOT IT TODAY
yOU NEED TO EAT UP THE FIBRINS -HYPERCOAGULATION IN YOUR BLOOD FROM THE INFLAMATION.These are better than varfarin -done in China...also I take it every day.Also suport your heart with CO-Q10 .
These are the only that you need to take every day to suport your heart and avoid the clotts.Also it wil eat up the fibrins biofilms that bugs create and hide theself from the antibiotics
By the way WOBENZYME will help you for pain issues also -without needing -otehr painkillers that your liver need at least days or weeks to detoxify from it.
WOBENZYME, NATTOKINASE And Co-q10
Rechregulat is exspensive-I give it to my son -that is PERFECT also!It helps on killing mucoplasma also.read about this.You do not need perscription on them.Do the shopping yourself.
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
i second boejr, she knows her stuff.
also, consider circulation P, its an herb used by zhang, part of his protocol.
it has eliminated my burning and tingling, or most of it at least.
also consider methyl b12 injections.
hope u find relief soon, i know its a terrible symptom
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
If it is Peripheral Neuropathy - try Vitamin B12 injections.
I suffered from that - now many years ago - and B12, only injections that you can quickly learn to do yourself, helped it - took it away.
In fact, I did the whole thing together = B Complex, B12 with Procaine, so it won't hurt.
It's very important if your whole system has been stressed by the disease, which we all know easily happens with Lyme.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
I wonder if perhaps the cold water of the pool and ice water contributed to your symptoms. I had a podiatrist recommend alternating hot/cold soaks for my feet, ending in cold. Ending in cold made me nearly unable to walk.
"Try ending in warm, then."
Ya think? Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Thank you for all the great advice on this! I got back a little while ago from the 1st part of my sleep study that was previously scheduled.
I was hoping and praying that my feet wouldn't bother me during the study last night, but they did. I showed the doctor who was doing the study what my toes looked like, before I went to "sleep." I told him I thought they were ant bites that were very irritated.
By that time, my toes looked sort of like they had actual bites or some type of red irritation on certain parts. They weren't stinging or itching at that time, though. Also, they didn't have that white dot in the middle, like ant bites usually do. That's puzzling.
Anyway, I thought I was out of the woods until the middle of the night, and then BAM! My toes started stinging and itching and driving me nuts! The doctor saw this on the camera and asked me if I was okay. I told him no, and that I needed to put some of the Solarcaine spray on them that I brought with me.
He came right in and I spray the dickens out of my toes. I put my footies back on and my toes were fine the rest of the night. They haven't really bothered me today, except an occasional "reminder" sting.
I don't know what this is, but I'm going to watch the areas on my toes very closely. What's strange is that they didn't start that stinging and itching until the middle of the night! Is that SHOW TIME or something?
My Bart came back negative, I just found out, from blood drawn 2 weeks ago. That really doesn't mean much to me. I've never tested positive for Bart, but again............whatever.
I'll see what happens tonight and then try to get through the 2nd half of the sleep study on Thursday night. I'll be talking to my doctor about all of the results of everything soon......the 48-hr. EEG and the sleep study. I have a message that my MRI looked "great" which is fantastic news, but I want to see the report myself.
Too much going on right now, and it's really hard to process which direction to go for anything. I'm just taking lots of notes from all of you, which I appreciate very much.
I've got an appt. set up in June to have a consult with an out of state LLMD. So, I'm trying to stay on top of it all.
Thanks again for all of your suggestions! I've got a lot of things written down........
I'll check in later. Y'all take care, terri3boys Posts: 268 | From Texas | Registered: Aug 2007
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posted
I would make sure you get check out for bartonolla. Pain, and burning/stingin is a very common sign of Bart.
I tested positive for bart 6 months ago, treated for babesia first, now bart and Wola--- the pain in my legs and feet is gone. This is after 5months of abx. 3 for Babesia and 2 for bart.
Lyme treatment next.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
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