posted
Does anyone here have cranial bones that lock together and get jammed up? I visited an extremely knowledgeable psysiotherapist last week. She has trained under 3 of the top osteopaths in the world. She said my head feels as if it has deep tissue scarring and inflammation-very similar to people with MS.
I suspect this inflammation has something to do with the cranial bones being restricted.
My MRI's show multiple lesions (which of course don't mean ANYTHING and a choroid plexus cyst (on the part of the brain that makes cerebral spinal fluid).
I wonder if this is from borrelia, babs or mercury, which I am still struggling with, after a year of chelation and amalgam removal. I did 10 month of abx but I could barely tolerate them because of the pain/inflammation in my head.
When the cranial bones lock, it throws your whole nervous system off. I get shaky and my whole spine tightens up. It seems to be related to restrictions in the flow of the cerebral spinal fluid as well.
Four years ago (prior to my lyme diagnosis)I had my first cranial sacral treatment and it put me into a complete remission from my non-stop spinal problems for over a year. I suspect it was because the practitioner was able to get the CSF moving and wash enough of the toxins off the brain. This is the best explanation I can come up with.
Curious to know if others have this and if anything can be taken orally to reduce the inflammation while dealing with the infections/problems.
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I have that too... and so sorry you've got to deal with it. NOT fun!!
I often get a real tender "baby's soft spot" on the top of my head when this hits too. My jaw joints (TMJ) also bulge somewhat.... and my ears hurt and are actually out of whack... and are not "even". I can tell because my glasses won't fit right on my head.... and they do at other times.
The muscles tighten up really bad... like a tight bathing cap is on my head squeezing it.... and it pushes so hard that the skull plates... and muscles in between... get knotted up and the plates jam together and slightly overlap as you describe.
I take Sudafed (the 12 hour kind with no other added stuff)... to help reduce the fluid in the sinus cavities and ears and pressure... maybe it even helps the brain swelling???
This symptom reduced BIG time after Babs treatment. I don't know why it did... but it is back again and so is the babs. Are they related? I am sorry, I don't know that either.
I take a combo of things for inflammation now and it really helps.. but as expected... nothing I know of can get that symptom to where it isn't still hurting. I need to treat babs again.. just being a big fat sissy baby as I don't like to feel bad on purpose (Herx).. and I REALLY feel bad when on the Mepron/Zith.
I take the ibuprofen round the clock which helps inflammation. I also use the following...
Non-citrus Querectin- 1 pill a day
I can't do Vitamin C but the protocol calls for it.
Wobenzyme- low dose and NOT the amount the bottle says. I get by with one a day. Any more and it makes me feel worse.
Vitamin E- 400 mg day
Bromelain- I take one a day but you can take more.
Recently I stopped taking the protocol because I figured I didn't need it.
WRONG!!!
Went back on it a few days ago and BIG difference.
I am NOT a doctor but a good doctor recommended I do this and it has helped me. Be sure to check with yours if you are considering doing it... ok?
posted
I was recieving cranial sacrial release from one of the therapist in the Therapist office I go to twice a week.
She told me that she could barely even feel a pulse at the base of my skull. It took her a while.
I could feel it working because often I would start developing a pain across the top of my forehead when she would work certain areas.
Sometimes I would leave with a slight headache that worsened. Or sometimes it would make it better. I think it was as you have suggested most definately!
She would have to back off some times. I would get little spasms in my face when she worked on my ears.
She said there is definately fluid acclumulation at the base of my skull and neck. Of course I can't tell any of my docs or specialist's that.
I found something else extremely helpful. Not sure if anyone else's therapist does this. My therapist will dawn rubber gloves and work the inside of my jaws. YOWZA! When I open my mouth before she does the other side. I can actually feel the difference.
This treatment is really helpful!!! When I get a really bad headache, It feels like someone is standing on top of my head and squeezing the sides in at the same time. Not to mention the intense throbbing at both occipital points at the base of my skull at the same time. As well as the pressure inside my head.
I feel like my head is going to implode. Yet it is always written in my records as "migraine", "c-spine tension headache", "vascular headache" or just plain old "tension headache". I tell them it is worse than any Migraine I've ever had in my life.
The one time I decided to give myself an Imitrex injection with one of these headaches. Even though I KNEW in my mind it wasn't a migraine.
Yet, I was just throwing up and in so much missery, I was willing to try anything! It was the BIGGEST mistake EVER!!! Sent me screaming in pain. I had the worst pain inside my head I'd ever felt before. Which lasted nearly 3min.
As anyone knows who has taken Imitrex Inj. They are immediate results.
I know the difference, having suffered with them for over 7yrs. To the point of 4 a week.Which had me bedridden.
I have not been treated yet for anything. I am awaiting my appt. on the 11th of June. I am so sorry you are having such troubles. I often take BC powder. That is the only thing I've found to give me some relief. Taste is aweful but helpful.
Posts: 109 | From San Antonio,Tx | Registered: May 2008
| IP: Logged |
posted
my hubsand just started cs..only went once..he was not sure or should i say worried about it..so i don't think he was relaxed...Dr did notice he has some bad disc...wants to see a report about them first...she understands about his lyme...can't believe how many questions she asked about it...to have a DR understand and ask about lyme what a gift...Dr did notice swelling in the back of his neck and head...just wish this will give him some releif of is head and eye pain..so glad he is even going..it hard when we have to serch out and find anything that might help..so glad i found this site and all the nice people here..i have learned so much..thanks
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[loco]](graemlins/loco.gif)
![[Eek!]](eek.gif)
When I open my mouth before she does the other side. I can actually feel the difference. 
Printer-friendly view of this topic