posted
I have been taking IV's for 12 weeks and thought I may get my balance back.But nothing at all in the balance dept came back. Does anyone know what antibiotic may improve balance? Thanks
Posts: 14 | From Dayton, Ohio | Registered: Apr 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Sorry, I can't speak to the meds as I've not done a typical protocol for various reasons and am still working on this.
However, when I could take doxycycline, it was nearly magic for me in that it greatly reduced hyperacusis (sound sensitivity). Because that was so much better, so was my balance. (Sadly, I developed a rash from it and can't take it anymore.)
Have you been to an ENT or a neurotogist ? The inner/middle ear (vestibular) system is very complex. While lyme often really does a number on this, it is important to be assessed for other possible reasons for balance dysfunction.
It seems logical to start with a few exercises, though, and if no improvement is seen, then see a specialist. Not everything is lyme (but do find a doctor who at least knows about lyme if you can so he can proceed from there).
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Ginger capsules and balance training helped me the most - Tai Chi or QiGong, yoga ("Yoga for Your Eyes"). There are specialist Physical Therapists who are expert in vestibular training.
"Aston Patterning" is one type of motor skill retraining - and two other whole body awareness programs are the Feldenkrais Technique and the Alexander Technique is another. Feldendrais is both done by a therapist - and with specific exercises for self-training.
Your LLMD might have the name of one who is familiar with lyme, too. In my experience, I have found that the P.T.'s - even if trained in balance disorders - but don't know about lyme (esp. neurolyme) are inadequate in the retraining of lyme patients with balance disorders.
An AIREX dense foam mat has been very good for home exercises. About $50, not covered by insurance, but still one of the best tools I ever bought. Kinda fun, too. A mini-trampoline makes me terribly dizzy, but I can very gently bounce on this mat.
in retraining (and this is one main reason for LLPTs) if you tire, stop. rest. return.
I would do no longer than 20 minute segments - for new material or skills - and then go do something totally different - or rest. Some research says that our brains learn new motor skills best in 20 minute segments or less. In fact, much of the learning/integration takes place AFTER the drill of new material. I actually learned this from my guitar teacher.
Also, if fatigue sets in, the motor skill exercises will not be as precise as is best for the brain/body when "reprogramming" -
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While I do not recall an exact answer to your question, you might want to take a look at some of the links at this thread:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
My balance became so bad I had to attend a balance clinic for a year, no antibiotic got rid of this although.........
After I went on the 3 month actos/csm protocol this improved by about 80% - I had lived with this for 7 years
I am told it can often be related to neurotoxin load and some very interesting articles have been written on this - apparantly a few case studies on Nanotk Chitosan also found that by removing neurotoxin load improved some patients so much that balance and many other symptoms improved dramatically
so if the AB's dont help it make sure you pull those neurotoxins out with CSM or Chitosan
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Rianna,
excellent point about the neurotoxins/endotoxins. Our inner ear system is excellent at detecting toxins and will be tossed a curve ball, so to speak, at even slight poisons.
years of reading about ear stuff, I just came across that the other day - it helps explain a lot.
Also, in the world of acupuncture, the theory is that if the liver/gallbladder "channel" is swollen, sluggish or "backed up" that the tissue all the way up to the ears is affected. Seems to make sense for me. It can be called "phlegm" or "obstructive phlegm" or "stagnation" in Chinese medicine literature.
I have found acupuncture to help as well as cranial/sacral therapy (but only the gentle techniques).
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Great information at the Hain link below, but the spacing is so tight it's very hard to read in some places. It's just a start. (But actually, I'd start with "Yoga for the Eyes" and then something like this).
posted
MY balance gets bad when my babesia gets bad. Have you treated for that yet? I also went
through vestibular testing, which was not fun. I have also heard some say that their balance is off from bart. Could be a co-infection.
Posts: 323 | From Michigan | Registered: Sep 2006
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