posted
Okay, before all of this, I didn't take any benzos and I'm not a drug seeker. However, with that being said, how come when I take a benzo, I feel almost normal. The twitching stops, the sensitivities aren't that bad, I sleep better, and more than ANYTHING my neck stops hurting. It takes a larger amount than their "take .05mg in the morning and .05 in the night"....only because they have been throwing this at me like crazy saying it's just anxiety since Feb/March. Now I do have a dang tolerance to it.
My question is, does anyone else here take benzos to relief their pain...because I've had high dose pain killers and NONE of them work, muscle relaxers, you name it...nothing works....but benzos make things so much more livable. I woke up this morning, well rested and actually thought "hmmm what I am going to do today?" instead of crying because I'm still in pain. I took the Klonopin (which I HATE because it makes me cough so bad, every time I take it, leaves a terrible taste in my mouth, and have weird breathing - but it's better than being in PAIN!)
So, I just don't get it, why does the benzos relief almost all of my symptoms? Anyone else? I know this terrible pain is not in my head but why in the world would benzos help? I don't want to be on benzos though. I wish an Advil would do the same thing. I don't build up tolerance to those or feel guilty for taking those.
Can anyone here relate, if not, then I'm guessing I don't have lyme....it's just anxiety?? But I'm really not anxious is the deal? The pain makes me anxious but it's NOT the other way around!!!!!!
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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Rianna
Frequent Contributor (1K+ posts)
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posted
Benzo's help balance Neurotransmitters and calm CNS function so yes they would always help with nerve pain, twitching etc that is associated with Lyme & co-infections.
Many good LLMD's now use anti seizure meds as this helps with pain etc.
posted
But would it also mask a brain tumor that was causing the same symptoms? My doctor said that the things that would make her think brain tumor was loss of vision which I don't have, problems with speech, balance, etc...I don't have those. But I'm still skeerd.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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And no, I haven't been diagnosed yet. I my plan is to get this MRI today, see the results to rule out something more serious. If there are lesions on my brain, from what I've read, it can be an indicator of LD, but also other things....more scary things. Then after that, I'm going to order an Igenex test and try to find the money for an LLMD but right now, times are rough considering the almost 2 grand I've already spent on surgery for my lymph node, medicines and many co-pays and scans.
So, that's my plan. Like I did say, I came back with band 41, positive for the antibody but I was missing a band. Some say that band 41 just has to do with "inflammation" and then others say that it can be related to all (whatever that dang B word is) bacteria.
Before I spend all of this money, and it will be thousands...I want to rule out any thing else in my neck or brain that could be causing symptoms....however, I have other symptoms like new rashes underneath my armpits (nasty ones) and other symptoms that a brain wouldn't causes that would be more indicative of Lyme. We shall see.
The road to figuring this out is frustrating, expensive, and long.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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posted
Concerning band 41... Go read DR C's WB explanation. It's the 3rd thread from the top.
VITAL INFORMATION ON BAND 41!!!!
From a seasoned poster:
the number of people exposed is in the millions. the reason you can't get treated is they have decided that only early disease merits diagnosis and treatment. the bacterium itself is the most bizarre human bacterial pathogen known, and is poorly understood. they don't know how many people are carrying a permanent relapsing brain infection. you can't get diagnosis or treatment because they have to pretend it doesn't exist and use labels like 'post lyme' and 'CFS' etc. for those who manifest illness.
Look at what steere did in his 1992 study which is the foundation for the CDC serodiagnostic standard. He and others often look back on this and refer to a 'normal' control, but in fact the control was taken from sick people...MS sufferers, CFS sufferers, in sum, conditions which could have been caused or complicated by late Bb infection. Moreover, he threw in 25 syphilitic patients which constituted 20% of the control. Hoever, syphilis itself has an annual US incidence of 3 per 100,000.
this statistical chicanery, which fudged the result at 41 kDa on Bb blot by many multiples, is significant, because syph serum will cross react at 41 kDa to Bb western blots. it allowed them to 'swift boat' the importance of the reaction to 41 kDa, which is the earliest and most consistent human ab response to Bb infection, being present in all stages as opposed to the rest of the proteins which are variably expressed according to stage, tissue type, even temperature.
Flagellin {41kDa} is necessary for Bb to survive under all conditions, and is constantly expressed, including in late CNS infection. Yet they chose to swift-boat this response.
why? it's for political and economic reasons. telling the truth about diagnosis and treatment results in mass panic and probable economic collapse/political revolution. it's likely a bioweapon. north american disease is different from european disease...lack of CSF antibodies, for instance. a much larger range of serum resistance to host species in wild{allows Bb to infect a much wider range of species, important in disease spread and maintenance in wild}. the CDC has found that Bb 31 goes intracellular in CNS cells.
Telling the truth threatens the careers and livelihoods of the very individuals who control this issue and who have actively lied and deceived and otherwise operated a scientific propaganda campaign for the past 15+ years, profitting from the campaign as they went.
lyme disease, which in the US also perhaps includes other pathogens notably a bioweaponized bartonella, threatens the entire establishment. if late disease was rare, we'd be able to get treatment. unfortunately, the EIS/CDC,DOD totally screwed this up and tried to make money off of the disease, making profitability their first priority as opposed to protecting the health of americans.
think about this...allen steere wouldn't listen to polly murray in early 90's when she reported a big incidence of neuropsychiatric disease in lyme. She had to call fallon. Now, fallon has overwhelming evidence of a serious disabling relapsing brain condition which is not easily treated. Global hypoperfusion on spect/pet ain't normal folks. Don't you think the CDC etc. should be breaking their balls trying to figure it out? Instead, we see nothing at all, only continued attempts to deny illness and obstruct treatment.
Obviously, they know what is going on, and have determined that the best course is to do nothing, to cover up, knowing that in doing so, they are condemning large numbers of people to perpetual diagnostic and treatment hell.
think about it. it's a horrific scandal and I'm not sure how much longer these *******s can keep control of it.
[by Aligondo Bruce]
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robi
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disturbedme
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posted
Sounds to me like you REALLY need to find an LLMD.
I only had 41++ IgG come back positive (from IgeneX even) and this was after I was bit 10 years ago by a tick.
You really need to get checked out by a lyme doctor who understands these diseases. It's the best thing you can do for yourself right now.
I also had an MRI and that came back normal.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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I wish an Advil would do the same thing. I don't build up tolerance to those or feel guilty for taking those. 
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