posted
I've done a search and can't find the article that recently came out that stated long-term abx. IS, in fact, needed for LD...indicating all the ducks were wrong.
posted
Yeah...I think that was more than what I was asking for. Well done.
Yes Bea- I did get it. Thank-you.
We had a researcher contact us stating urine testing revealed mycotoxins. He thinks antifungals, muscle energy techniques, cholestyramine, and possibly some liver/kidney treatments will help.
Her PT noticed pitting edema around her neck yesterday [below the base of her skull]. This is where her head sits, but it's hard to believe this could be a result of position...she's been in this position for quite some time.
These abstracts show that Lyme disease can persist or relapse despite antibiotic therapy. 12 pages. Last modified: September 2003
A thought about the pitting edema....
Alex may have lymphedema, the leaking of lymphatic fluid into the tissue. The plasma leaks into the tissue too, then pulls more fluid into the surrounding tissue. It can cause pitting edema.
This is a pretty new field, some physicians are not aware of lymphedema, and just assume their patients are obese. There are lymphedema specialists. I posted recently about lymphedema, cellulitis, vasculitis, and manual lymphatic drainage/ lymphatic massage. Trained therapists can also apply compression bandages if needed.
You might to want to look at the general information links at this website about lymphedema and it's treatment.
It makes sense that people with Lyme could get secondary lymphedema...Lyme disease is a bacterial infection that can damage our endothelium (blood vessel walls).
I don't think it's too much of a stretch to assume our lymphatic vessels could also be damaged by this disease. Secondary lymphedema due to a Lyme or other TBD infection.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/