posted
this symptom is very bad for me. I can barely walk around the house or go up and down the stairs.
but I think it happens in episodes because i was fine for the stress test (I had taken a lot of pain meds, dont know if that had anything to do with it)
something is definitely wrong, i sweat profusely at the slightest bit of moving around, i sweat when i eat.
i went to a cardiologist and he said nothing is wrong, everything came out ok, its not my heart. i dont know if i believe him tho
LLMD said to go to a pulmonologist next. i guess he wants me to get everything ruled out, that is the one specialist i never went to
but i cant help but think its infectious. i am on biaxin, doxy, and rifampin, which should take care of the bart and lyme, but i wonder about babs. I have been trying artemisinin, but cant seem to stay on it very long due to stomach issues (GERD)
my primary thinks my lungs are fine from the tests that he does. but I know that i did not do well on the one where you breath out as hard as you can. my son does that test every year (asthma) and he does MUCH better than me.
anyone have any luch with pulmonologist or are they just another duck? probably a waste of time, but worth ruling out anyway?
Posts: 615 | From maryland | Registered: Oct 2007
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I have the same problem and have since this hit in 2001.
I huff and puff a lot.
I did go to a pulmonologist (sp?) They were not able to do one test...they kept putting a needle in my wrist trying for something. I was too out of it to know what was going on.
I was laying on the floor as they were trying.
bottom line is it ruled out whatever they were looking for and told me the obvious.
There was an article in Lyme Times awhile back from a doctor on shortness of breath.
All I recall is he said it got better with treatment.
But, he did not say which abx helped.
I am with you. I tend to think it has something to do with the infection.
Darn, I wish that lyme bill will pass so they could come up with better testing for the different strands of bacteria and know how to treat what.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Shortness of breath was one of my first and most terrifying symptoms.
Still have it, although not constant anymore and not as bad.
Prior to finding out Lyme, went to a pulmonologist.
Had all types of tests done.
Nothing unusual.
Now, my POTs can cause the shortness of breath as well.
If I am laying flat, I breathe like I did prior to Lyme.
Once I am upright though, it is more apparent and difficult to get a deep, satisfying breath.
I am on my 3rd round of babesia treatment.
Mepron and biaxin. I have noticed an improvement on these.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I'm thinking it's a Babs symptom. Mine is getting better with treatment, but not gone yet.
What about dysautonomia? Is that a problem for you? I know that treatment for it also helped with this problem, but did not eliminate it. My dysautonomia is improving slowly with my Lyme treatment, too.
I still get out of breath when I try to blow something up, like my travel pillow, which isn't that big. But I can walk without having difficulty breathing.
I can actually stand and sing for more than one verse now, but usually sit in choir so I can conserve my energy.
Did you take the artemisinin with food? My LLMD says to always take it with meals. That may be the reason, not sure. It's what I do, though.
I also have a cast iron stomach!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic