posted
This past week has been so amazing....all my symptoms were greatly decreased giving me the opportunity after being so ill and bedridden for almost a year, A TASTE at life again....
I went out to sing karaoke twice (havent been in almost 2 years), went to the movies (havet been in over a year), Went in my pool with the kids 3 days in a row, and even went out for breakfast..... I even helped clean the hosue (havent done this in almost 2 years) This was so incredibly awesome!!! I never wanted this to end, but I am sad to say it has
I started feeling really sick again last night and today all my symptoms are back full force leaving me in bed once again. I am so scared to be as sick as I have been this past 15 months. I DO not want to end up completely bedridden again needing assitance with EVERYTHING....
I dont know what happened, I thought WOW, I am getting better... things are FINALLY looking up for me, maybe I do have a chance....and than BAM it's all gone.
Me and my fiance have a date picked for our wedding, August 21st 2009... I am so worried about this. I dont know if I will be well enough to get married a year from now or even well enough to plan it. I still have many neurological symptoms that leave it hard for me to walk etc... I want to marry him so badly and I just think I may have to wait even longer now...
I am so sick of this illness determining my life and everything I do. But I know it will be impossible to get well enough to plan, and be part of a wedding in such a short time.
After being in bed for a year of my life, I had one amazing week that I never wanted to end, Maybe I overdid it... I just couldnt bare one more second in my house or in my bed.
I wonder if I will ever recover from this demon and return to life again??? This week was a tease ... but I feel blessed and grateful that i had it!
I picked out my dress and everything for the wedding, We have a location, all I need is my health...... I dont know what to do???
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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ByronSBell 2007
Unregistered
posted
Fill us in on what your treatment is and how long you have been sick? What infections do you have?
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Your wedding date is a little over a year away. I think you have a lot of time to get at least a good portion of your health back.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Byron- I have been sick since the birth of my daughter (March 2007), I actually started to get sick in that pregnancy. No one knew what was wrong with me but I have been bedridden since her birth and very sick. I was dx'd with every Autoimmune illness under the sun. I started researching my symptoms and came up with lyme, found this site and went to my first LLMD at the end of April 08. I finally got a DX for lyme in May 08 by a positive IgG WB from IgeneX.
Before I had a DX I did the MP for 5 months and got very sick. I started on Doxy 200mg daily in may for 4 weeks, and am now on 1000mg Tetracycline and will be adding zith 250mg this week to the tetra.
D- I hope it is enough time to get healthy enough to get married and plan the wedding..... I cant wait to marry him any longer!!!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
It sounds like a very common pattern; with Lyme you don't usually just get better, it is up and down.
The beauty of it is that having such a good week is a clear indicator you are getting better, and the Doxy is helping! It is likely you will have more and more good weeks.
Many of us only get a good day here and there, I think it is a very positive sign you had a whole week that was good already!
It sounds like it was drastically different from how you have felt. It will come again!
Lyme recovery is up and down if it's anything. So glad you had your first "up"!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Have you considered getting wedding insurance? I'm a wedding planner and recommend it to most of my brides. It covers various expenses as a result of the wedding being postponed or cancelled. This is NOT "run away bride" insurance. It's for illness, injury or acts of mother nature. www.wedsafe.com is a popular company that sells it - levels and premium prices are posted on the website.
Hold on to the positive things the good week did for you and know you will have more.
Smjkoj
Posts: 26 | From Virginia | Registered: Apr 2008
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NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
That's so wonderful that you had a great week. I think you will have more. I actually had a good month that stopped but just for a few days.
I think maybe you overdid it and that is easy to do. You feel so good you want to make up for lost time. That sets me back every time.
Now when I have a burst of energy I have to reign it in. I still try to get some things done or have some fun but you have to take it easy.
I put up my grandkids pool last weekend in the horrible heat and humidity. I got dehydrated and ended up in bed for 3 days with the worst headache I've had in my 8 years with Lyme. Did I overdo it? Oh yes!
You have a year to get strong, I bet you'll do it. Posts: 1129 | From Maine | Registered: Feb 2008
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posted
Sounds like a wonderful week! Next time you feel that great, GO EASY!!
I know it's very tempting to do and do and do... but you have Lyme. Take it easy and yes, it's an up and down thing.
That's what makes it so hard to handle sometimes! The downs are so deadly to our egos!! It makes it feel like you'll never get back up again... BUT YOU WILL!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
awwwww, i was just watching your latest vlog last nite.
Im so sorry that you are feeling bad again.
I just came off a good period of time too.....and it was tough to deal with.
You have to be very strong emotionally to deal with it, and as you treat you will have more good days, then bad, then good again.
hang in there.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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It is a good sign though that you had a great week. I know it is very frustrating to slide back again.
It's hard to get a taste of wellness and then hit rock bottom again. Better days will come though and soon your good days will outweigh the bad.
You have a whole year until your wedding so don't stress too much over it. You might not be 100 percent by then but then again...maybe you will.
I have recently slid bad again and I am having similiar worries as you. I start nursing school THIS August and I am in a big panic over it. It is very worrisome but I am trying my best to stay positive.
Don't over do it next time you have a great week. I know it's exciting to feel good and you feel like you have to accomplish everything you have missed over the last year. Take it easy though and still get extra rest. Even though you feel great your body is still fighting.
I hope better days will be coming very soon for you. I too got ill while I was pregnant. I know how hard it is to watch your child when your too sick to do anything.
Hoping better days for you...kit
Posts: 655 | From Pennsylvania | Registered: Jul 2006
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posted
If you have been treating only since May and had a really good week already you are on to something!!
Lyme waxes and wanes, that's just how it is. You might have overdone it but who knows - you had a happy week, that is also good for your immune system.
Keep treating! Sounds like you're responding to your antibiotics already. You have time to get better!! Don't get discouraged, more good days are on the way.
Talk to your LLMD about your good week, and keep in mind that you might need to switch abx every once in a while, especially if you plateau or go backwards.
~webmeg
Posts: 257 | From Connecticut | Registered: Oct 2007
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posted
Thanks everyone for writing in. I am still not feeling well today
I am still unsure about what I should for my wedding?? Maybe I will just extend the date another year.... Didnt want to, but I am just worried I will never be able to get married at all in the condition I am in.
I am happy I had a week of feeling better... Hopefully I CAN get even better!!
My only worry is that I havent Herxed, At least I dont think I have?? I just dont see how you could kill of an infection without herxing?
to better health!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Shandy - Not everyone herxes. Those are the lucky people! Some people don't herx and just get better slowly, however slowly it might be.
AND, it doesn't mean you won't get better if you don't herx.
Plus, you may be herxing but just don't know it yet since you just started treatment and don't know exactly what to look for yet with what herxing is like. I know when I first started Doxy in the beginning, I wasn't sure if I was herxing or not, but now that I look back, I know I was.
I still say don't extend your wedding to later. Think positive (I know that's SO much easier said than done). Like others have said, since you've already had a WEEK of feeling well, that's a VERY good sign!
Matt and I were married in November 2006, and though I wasn't VERY sick during that time, I was on a downward spiral and had symptoms of lyme but didn't think much about it. I couldn't stand up long without feelng very dizzy or feeling like I might faint, etc.
At my wedding, I was SOOOOO scared I was going to faint during because of the other episodes I had in the past. I am glad to say I got through it without fainting, but there were a few times where I felt blah like I might. It was shortly after our marriage when lyme decided to come out of hiding all the way. And now I realize that it was causing all my weird symptoms and shortness of breath and feeling-like-i-may-faint spells.
I still say you have plenty of time to get a good portion of your health back before August 2009.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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