posted
Only here can I share what happened last night and only because I need to know why...
I peed the bed- there I said it- What is going on with me???? I woke about 3:00 in a large puddle. I haven't had any known bladder problems and really haven't had any problems w/leaking or urgency.
The only fluids I drink is water, and drink a lot of it. I am going to the bathroom on a regular basis. My diet hasn't changed. I have been herxing this weekend/week, but haven't been totally out of it.
So now what? This is not something I ever expected...Goodness, I'm not turning 40 until next week ,I'm sure my husband doesn't want a "water bed", and I'm thinking diapers would not be any help to my already missing sex drive.
This really is a concern if this happens again, any suggestions are welcome...
posted
Oh no - you must be incredibly freaked out by this!
Did you call your LLMD?
Lyme hits the bladder hard - many many folks here have bladder issues
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
To be honest, I think you could get alot more responses if you posted what actually happened in the title of your thread
I know it's embarrassing, but I bet some folks on here could give you really good info/support, but would not realize the issue from the title of the thread alone
just my 2 cents...
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
Do call your LLMD. Have you recently changed your meds?
It could be something with your brain or simply the lyme attacking the bladder.
Are you taking an abx that gets into the brain well?
I'm so sorry this happened to you! I'd be freaked out too!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
hi wantabe,
this happens alot!
after my replacement last year, i started 24/7 incontinence in the hospital; i'd rush for the bathroom and midway .... puddles all around me. person with mop was seeing me way to often.
from what i gathered also, nurses/etc. had NOT put that in my medical reports as when i reported it to surgeon and his PA; 1st they had heard of this.
11 months later; FINALLY stopped!! I bet it was a couple of thousand $$$ for all those poise napkins/diapers!!! unbelievable.
i was washing dishes last night; all of a sudden i felt diarrhea hit and took off for bathroom; just a little drippled and caught the rest.
later sat to long watchign tv, and didn't make it to pee!
i too suggest you edit topic, click pencil/paper and then change it to something like this.
INCONTINENCE HIT ME LAST NIGHT! WHY? *******************************
posted
Until recently I never thought my bladder issues could have been caused by Lyme. I was one of those kids who wet the bed often... into my early teens. Doctors thought I was lazy.
Then things got better until I had to have a total hysterectomy a year ago at age 29. Started having some issues when I would sneeze, laugh, cough.. sometimes all I had to do was stand up!
Just before I got diagnosed with Lyme this year, I had a weird episode happen WHILE I was peeing... my right eye started jerking to the side over and over again for a few seconds. Freaked me right out! I still think something to do with peeing triggered it... sounds strange but thats what I feel.
Also... even before my hysterectomy I had a few occasions of bed wetting. Sometimes I was actually dreaming that I was sitting on the toilette and didn't realize it was a dream until too late. Do you think you could have been dreaming at the time?
Id mention it to your LLMD... but I wouldnt freak and go buy depends just yet either
posted
Well, I didn't buy any Depends when I went to the store, but I sure had to laugh when my husband asked why the nurse called and was asking about my "incontinence" problem. He had left for work before I had a chance to share my little problem w/him.
So LLMD's answer- limit liquids after 6:00. I feel like I'm 3...
Changes in medication: started (400 mg.) doxy iv 3 weeks ago. I infuse for 4 hours in the evening.This is supposed to get through the brain barrier. Taking Benadryl and another allergy medication at this time as well.
I have been sleeping better and am taking sleeping pills- have been taking them since November. Have noticed some dreaming -maybe I was thinking of the flooding...
This will be one more thing that my husband can shake his head, laugh, hold my hand, and tease with all his heart. I still seam to amaze him after 20 years- what will I do when I'm 80?
Thanks for your suggestions/comments, wish me a dry night...
posted
I bet it was a herx reaction. Maybe once the doxy gets into your brain really well, you won't have any more trouble. It's got to clear out the crud, ya know!
Also, if you've been taking additional meds to help you sleep... you probably got "too" deep in sleep.
This happens to my cousin who also has Lyme. She said it's more likely to happen when she's too tired to wake up when the signal comes.
Here's to a great DRY night!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
This happened to me several times when I was at my worst (before lyme was diagnosed). I was on no meds or herbs or supplement then. I think it was the neuro aspect and infection.
also I wonder about relaxation nature of Benadryl - sleeping pills- ??
EVERY TIME I take anything to relax my central nervous system or my muscles, my bladder goes with that. I think part can also be neurological with the autonomic / sympathetic nervous system.
I also notice when I have more toxics to expel this happens, too.
Poise pads may help and be less bulky and less expensive than Depends.
With some you might just get leakage but when I try any seizure meds or other drugs that relax, it's like once the flow starts I have no control at all.
All the kegels in the world are no help if the signal between my brain and my muscles is sedated. This is something that not one of my friends is willing to understand. If I hear "do more kegels" one more time, I'll just pee my pants !
Therefore, I simply can't do sedative - even melatonin does this.
However, if you can cut back on something - take less meds or supplements in the evening that might help.
Others may have happy solutions. With any infection, the bladder can be more irritated. This can get better. And, interesting, when I was on 10 days of Cipro for a kidney infection, I had no urgency whatsoever.
-
[ 18. June 2008, 12:52 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
ive heard this happening to other lyme patients.
i would run it by your llmd just to make sure.
before knowing i had lyme i would pee the bed ocassionally, actually in the year i got very sick with it.
i just thought i was a sound sleeper....i think it was the lyme.
now my muscles are so tight, nothing will escape.
hang in there.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
here's to a DRY NIGHT....and months to come!
i forgot to mention woman gyn who gave me the urodynamics test ended up giving me a prescription ENABLEX; it started working immediately!!
so wanted to pass along this name to any/all who have had problems; it was a wonder drug for me!
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posted
Wow this never even occurred to me. I contacted Lyme as a child and also happened to wet the bed until about the age of 12.
They may be connected.
-------------------- I was diagnosed with and treated for late stage Lyme in 1991 with 6 weeks of doxycycline. Initially felt better, but then developed health problems that last until today. Posts: 83 | From New Jersey | Registered: May 2008
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I have 6 people in my family w/LD one of them has night time incontinence once in awhile...I have heard of this before.
It has to do with the muscles and nerves of the bladder, they can be effected as any muscle or nerve with Lyme.
Mention it to your LLMD...it can also be a medication side effect.
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Just make certain it's urine....
Because the first time I had HORRIBLE babesia night sweats in some time, my underwear was soaked and so was the bed, like, where pee would be, but then I realized it wasn't pee, it was tons of sweat.
And usually it's all over sweat for me, but for some reason that time it disguised itself as incontinence and was only in that area. But it was definitely sweat.
I doubt the happened, but you might want to make sure......I was convinced I wet the bed when it happened to me!
Posts: 4590 | From Midwest | Registered: Jun 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Iam with Hoosiers51 on that I had a massive sweat at least where my wife asked me if i peed the bed.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
My LLMD told me (and I hate the idea of animal experimentation) but...
If you inject lyme in monkeys it goes straight to their heart
If you inject lyme into mice it goes straight to their bladder
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
My daughter wet the bed and had incontinence issues during the day until she was about 8 or 9 years old. She has neuro lyme bad.
When I first got sick in 1996, I had a lot of bladder issues come out of nowhere and I was only 31. I had incontinence during the day and horrific burning inside, like my bladder was on fire.
Never tested positive for a bladder infection either. I had uterine pain that I lived on percocet for years. Finally couldn't take it anymore and had a total hysterectomy.
Guess what...I still have the same pain! I believe it was my lyme all along causing the problems.
I would probably call my LLMD and tell him about it. Maybe you need a new antibiotic or maybe he can give you something to help the symptoms at night.
Take care,
Posts: 56 | From Downingtown, PA | Registered: Jun 2007
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I am so glad that this could be Lyme related!!! I was hoping you guys would support my "little indiscretion"- I was a bit freaked. Trust me, it wasn't night sweats.. Looking into the medication combinations and wondering about the seizure thought. I was having "brain seizure-like" episodes before I started treatment, but I haven't felt any recently-didn't think about them happening while sleeping...
Again thanks for your support-my bladder, mattress, and I thank you!!!
Lou- read your link-thank you for bringing it to my attention-I guess it didn't mean anything earlier...
posted
Lymetoo...thanks for the information. I will look into both those possibilities.
Sorry lou..I missed that link as well, but have read it and found it extremely helpful as well as very interesting.
Posts: 56 | From Downingtown, PA | Registered: Jun 2007
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,I'm sure my husband doesn't want a "water bed", and I'm thinking diapers would not be any help to my already missing sex drive.![[bonk]](graemlins/bonk.gif)
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