posted
I still have horrible twitching problems more than 1 year into treatment. Having read Mathias excellent posts on this subject makes me wonder if I alse have a mycoplasma infection as the twitching symptoms seem to be common with this infection.
ALSO it is very interesting the thread created by GaleHane about BLO, considering BLO MIGHT be a mycoplasma infection and not so much bartonella.
I tried Clindamycin IV and had THE WORST HERX EVER!!!!! with myoclonic jerking and sweating etc.
Here is a copy from Mathias Postings of how you treat different mycos;
Mycoplasma pneumoniae Azithromycin (Zithromax) Clarithromycin (Biaxin) Erythromycin Telithromycin (Ketek) Dirithromycin (Dynabac) Doxycycline or Minocycline or Tetracycline
my opinion as it is just spekulation as no body is really finding out what is is.
I see my llmd.She uses Muscle testing.But I have stretch marks as bart henselae ( had them isnce in europe) and caugh persistent mucoplasma symtoms back in germany( wonder if I have the same thing as you ) as i recall the frontal lobe problme heavy legs and shin pains...
i used to be a runner and felt righ away the diference .... Anyway.No blood work ( except FRY I never did it) all came back negative for bart.
I have used KETEK 2 months , AZITR 10months , RIFAmping more than 9 months , bartonella homepathic formula and levaquin with interouption ...11 weeks so far...and doxy 9 months...
OK based on mUSLCE testing I had all coinfections ( ehrlichia is gone) , BABESIA is not showing up anymore.
BArt and mucoplasma fementas came up strongly .
Now I have been chasing bart since 14 months .My dr said I might have BLO as I am not geting rid of bart ...So that is why started LEVAQUIn after 5 months rifampin and 2 months ketek ..had doxy and azithr besides many herbs
Now that I went back to levaquin had added up to 8 capsules of HH .I am herxing.BArt cat scratch fever stretch marks are fading.
When you say twitching I can relate as I had them from head to toe...once I stop chasing bart I get them back .But lately Rifampin stoped working.Muscle testing shows that Rifampin ( that i took once 1200mg for 2 weeks is not testing positive for me)is not working anymore.
Right after that shows that LEVAQUIN was more aceptable for my body and it requires 1000mg.
But something new..mucoplasma fementas is not showing up anymore....but som e kind of BLO again...as my llmd ( she says it is like in ricketsial family )
I also have the VEFG in my body ...if you read Dr J S from Fl`s book .
They were not there until I got a twitchign feeling a few years ago.
DEEP bone pain and enchephalitis in the frontal lobe.I wonder what your other symtoms are.i am sure I got somehting else in HERE as My entire family has it ...
Now I have less jerking ( rare) and swetting is almost stopping ) worm hands and feet.
Now why I react as I have bartonella and only LEVAQUIN that is mostly covering all mucoplasma is wanted in that high dosages from my body ??
I am not sure but I hope that the presence of bart and mucoplasma crietes a special mutation of the bugs.
So far I am muscle testing everything and go by it as ...that is how I got my brain back ( not fully though).
I am curious ...do you have joint pain , deep bone pain ....deep shin pains ....?
I know I have neuroborreliosis ...but so far only this bart muco thing is showing up and my body wants levaquin in high dosages .....?
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posted
Very interesting indeed! I do not really know how muscle testing works and how it tells you that you need different meds?
I have neg. tests for co infections and I have neuro lyme for sure. My symptoms;
creapy crawlings in the head and also else where in the body. muscle twitches head to toe extreme fatigue intemittent fever jerking/mycoclonus during herxing. some joint pain.
currently rifampin + zith for suspected BLO. Not making much progress on it though.
Posts: 347 | From sweden | Registered: Feb 2008
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Alv
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posted
from muscle testing bart and lymeneuro is left...
Boomerang
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Member # 7979
posted
ALV, hubby is also on levaquin. He was like you...twitching/jerking from head to toe. Never a sound sleep.
The levaquin improved this problem from almost the first dose. It was amazing.
Posts: 1366 | From Southeast | Registered: Sep 2005
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Alv
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hi boomerang...how long did your HUBBY used LEVAQUIN ?
I am almost on 11th week after so many other treatments?
Also I am curious ...does your hubby has any rahs or particular signs of VEFG that DR S talkes in his book.I am not sure if you have cheked the book.But just by that I had the red/blue/purple strains in the thighs , mollars and stretch marks of BARTONELLA henselae.
From symtoms I think I got B Quintata also..so my bugs have become SUPERBUGS from the presence of each other I guess...
BUT all I can say is that MY PERSISTENT cough in GERMANY , that I could not stop if for many months and took many drugs on and off...( than got calmed down ) was associated with the shin pain , but prior to that I recall a night sweat that started crazy and when the caugh came up the sweats and chills were on.
I wonder if I got BART and MUCOPLAMA on that bite in germany.Brussels stated that her daughter got reinfected over there with BART and MUCOPLASMA last months....Maybe that is what I got back than and everything turned upside down for me since than. That was 14 years ago...
Did your hubby stay twitch-free after discontinuing levaquin. Some folks have had it back after some time.... I still wonder whether it is neuolyme or bart? And there is no one who can tell for sure.... Bah..... Misery.
Posts: 347 | From sweden | Registered: Feb 2008
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posted
Clindamycin, yes it is supposed to handle some myco strains. Is your twitching gone after levaquin Alv?
Or was it gone and then returned?
Posts: 347 | From sweden | Registered: Feb 2008
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Alv
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My twitching ( when peopel say use magnesium and I DO NOT USE ANY ) since in levaquin is very light.
If I stop it somehow comes back ????
I noticed the first time droped at my knee below part...than when I switched to rifapmin as I though I was having tendonitis( well somehow it efected them but slowly recovered) ...my titches ended up to upper part "butt area" belive it or not.
Now that I am typing I have a few rare ones on the calf...but not noticable as they used to be.
I used to twitch crazy in my cafe lips, hands and compelty body was jerking.
My kids will see my m uscle twitching ...was scary.That time I had no clue.
my numbness on my face( bells palsy got beters).
The only thing I am doing in 14 months -CAHSIN GBART nons stop.. i had it for TOO long.I recall my foot pain since a child ..so I do have several strains.I used to be a runner and blamed running...but at the end of day my anckle would hurt...
That was since 30 some years ago...so my war against BART is gone be long too.
i recall another child here that is chasing bart in 2 years non stop and still is in treatment.
MAYBE I am the other severe person ....
IF I ever put it in remission ..I will let everybody knows what worked...So far whatever I am doin g works..but if I stop comes back !!!!!
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Boomerang
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Hubby is on his 12th week of levaquin. Don't know for sure how long he will be on it. I just know that it really did the number on his jerking problems. Wonderful to see him sleep well for a change.
He has had an skin outbreak while on levaquin...lot of raised itchy bumps all over his back. That has improved somewhat.
We are hopeful treating the bart will really help him. take care all!
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pamoisondelune
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Just a warning about Clindamycin: I've read that it is one of the worst abx for causing Clostridium difficile, so be sure to take good probiotics defense.
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Clarissa
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Boomerang:
Your hubby's skin outbreak could be that he's not detoxing enough. I had papules on my back during and after Bart treatment.
I'm finally knocking the numbers of outbreak way down on back (and face) with 12 grams of cholestyramine a day.
I'm taking Mesosilver (no abx) but the Meso's killing something so I'm still having die-off.
posted
GREAT TOSHO!!!! THank you!!! Yes I bet the mycoplasma is there somewhere....... I will drop rifampin now after 4 months of absolutely NO improvment and go for IV clindamycin. I did that and added metronidazol 3 days a week IV. The herx almost knocked me out. Maybe something for you tosho?
Posts: 347 | From sweden | Registered: Feb 2008
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Alv
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we all have some kind of mucoplasma....I can not recal ..but right now I found this...
we all have mucoplasma ..and we all need to treat them even though we do not catch all the trains on blood work...that does not mean is not there...A little detail..the first 5 months my body was showing in muscle testing -BABESIA , EHRLICHIA , LYME and bart.
But than over months of treatment ehrlichia was gone , babs went away ( well I was treating it before I knew about lyme anyway based on herbs) and bart and MUCOPLASMA fementas showed up ....
they take turns as one load of one bacteria gouse down the other ones comes up...
So even though originally your body might show 1 or 2 coinfections...if you keep loocking ..later they will show up not matter what..and mucoplasma is one of the most spread in the world...no doubt about it...
I have spoken to a person that works with DR G alternative.He checks all his patient and found out that everybody that has cronic disease has some of the strains of muco...at least one fo rsure...
MAybe they get activated when our immune system is supresed...
that is my opinion...anyway !So having a combo fo ra long term that cover it is a good idea...
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