Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
I'd like to personally thank BettyG for all of the hard work she does on this board.
This has NOTHING to do with any recent posts/comments, etc. but more of a realization on my part of what an important role she plays in our daily experience on Lymenet.
(As I type, I don't even think I'm spacing it right but hopefully the words and message will be understood by all)
Can you even imagine having to send out EVERY new member a "newbie package", monitoring the posts, remembering birthdays, explaining how emails must be formatted for Lymies with vision problems?
All the while, she struggles with TBD's, as well. I know that TBD's have made me extra sensitive so I can only imagine how it makes her feel when she has to regulate or make suggestions of more appropriate topic names and then she gets insulted.
I remember the first time she suggested how I could re-phrase something more appropriately and I regressed to a child (in my brain) and felt naughty and angry.
Then I realized that she's just trying to help and then I saw, slowly, over the months how much time and energy she contributes to "our family."
I've been in sentimental-mode lately so please forgive my sappiness but I do feel that I'm speaking the truth on this particular topic.
I have a feeling there are many of you that may just want to give thanks to a lovely woman who watches over all of us, all the while, helping her husband and dealing with her own personal suffering.
You are very sweet to say this. And you are right - Betty is a lifesaver for us.
So, thank you Betty, and thank you Clarissa for bringing this to the forefront!
Posts: 589 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Thank you, BettyG!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
BettyG has my heartfelt "thanks".
More interestingly, I responded like Clarissa did (naughty child), when Betty corrected me or others. In retrospect, I see that there really is not a venomous edge to Betty at all....she is just graciously trying to help us all.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Thanks bettyg and Clarissa!
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Thanks Betty!
I'm very appreciative of Lymenet even though I may disagree with people or post things some people think are weird or controversial.
It's a blessing that we have this way to communicate & exchange information... I'd be lost without you all!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Ditto, Sparkle! I feel so blessed to have all of you, too!
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
BettyG, you keep us going.
YOu always have a kind word, inspiration or funny little ditty for anyone who is down.
You are the first to offer congratulations to anyone who has something to celebrate.
The hours you put into Lymenet are unparellelled by any of us.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
Yes, thank you! You have done so much to help me on my Lyme journey by providing me with lots of information and advice Thank You I also want to thank Lymetoo. You guys are great!
Posts: 370 | From NJ | Registered: Dec 2007
| IP: Logged |
Dawnee
Unregistered
posted
Absolutely! I wouldn't have thought to space my sentences or paragraphs were it not for BettyG!
WOW CLARISSA! i'm wiping back tears as i type this for this most greatful post and all the kind, loving sentiments behind them!
i sure wasn't expecting this post to be about ME!
you hit the nail on the head; i don't mean to "scold" folks about subject titles!
I JUST WANT THEM TO GET AS MANY READERS/REPLIES AS CAN BE when they show "SPECIFIC" titles to grab people's attention and more importantly; something the member has wrong and can share mutual experiences!!
i get stressed out and my brain won't cooperate many times so i struggle getting out the right words or words that hopefully will NOT OFFEND anyone.
a big, heartfelt thank you to EVERYONE: **************************************
clarissa for starting this and her wonderfully worded thoughts that deeply touched my heart.
lou...wow, a beacon guiding those in the dark! how powerful that statement is!!
feelfit quoting her...
More interestingly, I responded like Clarissa did (naughty child), when Betty corrected me or others. In retrospect, I see that there really is not a venomous edge to Betty at all....she is just graciously trying to help us all.
feelfit; thank you for seeing BEYOND my initial contact of my suggestions to you and others! Yes, i'm trying to help you all as well as myself in the process!! thank you for your forgiveness of my "rough presentation"! xox
tracy9, thank you for your beautiful words as well. yes, i try to always have some type of POSITIVE thing to say or to look at the glass 50% FULL!! (i was always a 50% EMPTY person prior to CORRECT diagnosis).
yes, we need to be complimented on EVERY ACHIEVEMENT we make! we, who walk in each other's shoes daily; we know how much work, time, and commitment has gone into whatever we finally have SUCCESS IN!!
yes, i have many family stories; golly; we've been thru so much NOT to share things that others are NOT WALKING ALONE on their lyme journey or any other journey we dO NOT know about!
tracy, you said I ROCK! fyi, today, our front step landing and public sidewalk were all replaced to all the SALT we had to use on last year's ICE STORMS! so tracy, i've got all these LITTLE ROCKS all over the place now!
so i guess, i'm "BETTY ROCKS & LITTLE ROCKS COMPANY" !~!
my humor always does not come out; can't think of words but do better on my BD poems !!
dawnee, glad you learned the double spacing between paragraphs well!!
yep, i'm a STICKLER on that one because I REALLY WANT TO HELP EACH ONE OF YOU IF MY NEURO MIND WILL LET ME COMPREHEND so i can understand it to reply or give you some decent advise! ******************************************
also to the below for stopping by and adding your thanks/thoughts as well! :
just to clear something up; i do NOT have to send my newbie package; it's not mandatory; it's my volunteer project as well as helping with LLMD names for all states if available.
it's just my way of giving back to the board and every newbie coming here for help. there was very little info in ONE area when i joined 4 years ago.
since i'm a former secretary/data entry operator/keypunch operator ... this was my EXPERTISE for 30 years, 7 months; so MY contribution to the board.
we all bring our former jobs here with whatever expertise we learned there and to hopefully help others needing THAT PARTICULAR ADVISE.
the diversity of members joining never ceases to amaze me!
we have A-Z categories..... ***********************
so many medical field including LLMDS and regular doctors, PHDs, lawyers, landscape, actors/behind the scenes movie folks; zookeeper, engineers, pastors, folks from washington dc; outdoor jobs; police, and the list goes on.
i saw that need as well as our BELOVED TREEPATROL WHO HAS GIVEN THOUSANDS OF AREAS ON HIS NEWBIE INFO !!! THANK YOU TREE !!! you are just the best and incorporates our suggestions of what to continue to add to his!!
we have some duplication of things; mine is the more DETAILED INFO vs. a single link and you go read it there.
so Clarissa and ALL MEMBERS LISTED ABOVE; my heartfelt thanks and appreciation to each of you who have responded.
i spend from 5 - 8 hours daily here divided up into 2 sessions; have to work 2-3 naps in there since i can't sleep at night so do most of my work and reading late at night/early am so that's why you see the WEE MORNING HOUR TIMES!
i have my frozen ice packs on me all during that time for my constant pain; get fresh ones when the others get warm!
I HAVE AN "UPPER" FILE, AND WILL PRINT THIS OFF LATER!! it's for the days when NOTHING GOES RIGHT!! i can go there and feel good vs. feeling like a total loser!
posted
wow, i hit enter, and it stated i hit button twice and had to wait 30 seconds before trying to post AGAIN.
i hit back button to get back to my LENGTHY 1 hr. response above, and NOTHING!!!
total panic here! take it easy; keep hitting BACK button until something shows up.
then i got the wait 30 seconds again, and hit REFRESH KEY; finally it showed it went ONE time! wow, i didn't want to have to go back and recreate this lengthy one again.
thank you God for teaching me patience! betty
IP: Logged |
tutu .. to another HUGE CONTRIBUTOR on this board who started the BIRTHDAY CLUB perhaps when this current board started??? been forever; helping newbies galore on llmd names, and advise galore especially dr. c's explanation of western blot igm/igg blood tests and gluten/yeast info!!
so TUTU, THANK YOU FOR ALL YOUR HOURS AS WELL! it's not everybody we know that DROPS THEIR DRAWERS 24/7 !!
lauren; yes, we all need a SOFT PLACE TO LAND!! loved your phrase!
IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I remember when I first got here, I had a similar experience as Clarissa. She told me I had to break up all these paragraphs and change the subject lines and then said she was sending me this newbie package.
I was so sick and could hardly understand what she was talking about and as far as the newbie package, I was lucky to read a few lines on these boards, much less the whole package.
But she was writing me privately and giving me step by step instructions on how to change my posts and subject lines and although so much of that time frame is a total blurr to me even today, I do know she was still there being patient and helping.
As far as her newbie packet she sent me, I honestly didn't even start reading it until about 6 months into treatment since anytime I tried, I couldn't even comprehend, but that wasn't her fault. It was that I was THAT sick that I couldn't comprehend most of what I was reading.
Now as the brain starts coming back as the neurological gets worse, I'm atleast able to see that yes, even though I was a "slow case" in coming around since I was so darn out of it, it really is a Godsend for us to have the help and guidance when first getting here.
Good job Betty and keep up the great work. I'm sure you thought you were talking to a brick wall back them with my blank stares back at you, but it all makes sense now and I'm glad you kept your patience with me.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Thank You bettyg for all you contribute to the board
thank YOU for having patience with me too!!! i do remember many of my earlier conversations with you, and i just love your name ... what it stands for ....
TO DREAM THE IMPOSSIBLE DREAM! WOW! ************************************
i remember thinking ... how can i rephrase this in USER-FRIENDLY terms where she might understand me?
thank you so much; glad i could help you and your daughter get a good llmd! that is PURE SATIFACTION RIGHT THERE!
i remember how lost i was and members here gave me leads where to turn to, and even gave me members emails to ask them 1 on 1 by PM what they thought of the llmds, etc. it was reassuring to me to get PRIOR knowledge with the $$$ going out as they do.
IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
clarissa, you have such an astoundingly kind, beautiful heart.
bettyg, thank you for everything you do for us at lymenet. you are both vital to our community!!
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Wow! Talk about what "goes around comes around". I'm incredibly touched by all of your comments, too.
I sincerely wanted this to be a dedication to BettyG's hard-work, kindness and loyalty to us and the board but your sentiments to me were a total bonus!
Sometimes you just get this feeling (or at least I do) that someone is due a big standing ovation. I felt it in my gut and soul that it was that time for BettyG.
I'm glad this thread was an all-around "feel-good" one because we ALL need that during this time of suffering, survival and victory.
Total warm fuzzies to all and continued blessings and healing thoughts on our paths to good health.
posted
Thanks Betty!! Thanks also to all the many helpful people here. I have learned so much from coming here!!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
bettyg
Unregistered
posted
kathy, thank you so much also!!!
clarissa, THE GOLDEN RULE WORKS WONDERS HERE; DOESN'T IT??
you started this thing SURPRISING the heck out of me, and in turn got an extra bonus of all the WARM FUZZIES of love out here for you too,
and all others MANY NOT MENTIONED since where do we begin and LEAVE OFF ... impossible to do.
SO TO ALL ON LYMENET,
THANK YOU FOR EACH CONTRIBUTING WHAT YOU CAN...
your time,
your personal experience,
your MEDICAL knowledge and background,
your HUMOR, and cobweb carol is right up to the top on that one!!;
YOUR SUPPORT to LISTEN to rants and when we need a shoulder or two to cry on;
medical reports to use to HELP us;
all the letter writers to newspapers, congress, etc.
all the phone callers/faxers/emails to CONGRESS on behalf of our lyme bills;
all those donating money to DR. CHARLES RAY JONES, OUR KIDS NO. 1 LLMD during all his hearings to KEEP his medical license;
to the faithful who CONTRIBUTE TO LYMENET AS I'M SURE THEY ARE SHORT AGAIN FOR "ANNUAL" FUNDRAISER HELD LAST MONTH!!
please every $1, $5, $10, and MORE adds up since lou stated to run this monthly is $325, *******************************************
I THINK he quoted from my lyme mind!!!
think $5,000 was the goal; can't remember; *******************************************
IT'S POSTED AT THE TOP OF EACH FORUM; please read this and give what you can to help on the monthly expenditures!
they only had 1-2 months of MONEY left!!!
well, that's all from gabby betty on this one! UFFDA!
IP: Logged |
bettyg
Unregistered
posted
up as a reminder to:
please send any size DONATION TO LYMENET TOWARDS MONTHLY EXPENSES TO KEEP THIS BOARD UP AND RUNNING!
thx all!
i'd be lost without THIS precious board with all my friends ....
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[kiss]](graemlins/kissing.gif)
![[group hug]](graemlins/grouphug.gif)
![[spinning smile]](graemlins/spinsmile.gif)
![[Big Grin]](biggrin.gif)
![[woohoo]](graemlins/woohoo.gif)
![[hi]](graemlins/hi.gif)
![[Smile]](smile.gif)
I also want to thank Lymetoo. You guys are great!
![[lol]](graemlins/lol.gif)
![[Cool]](cool.gif)
![[Wink]](wink.gif)
Printer-friendly view of this topic