LymeNet Flash: Pain Clinic: Mayo or CHOP?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Pain Clinic: Mayo or CHOP?

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Topic: Pain Clinic: Mayo or CHOP?

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

Do any of you have experience with the in-patient program at the Children's Pain Clinic at the Mayo Clinic in Minnesota or the Children's Hospital of Philadelphia (CHOP)?

Are you familiar with their objectives or methods?

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

posted

Here is my experience with the Mayo clinic: It had been suggested I had Lyme, and I was horribly ill, so I went to get a full work up.

I figured if I don't have Lyme, they will figure out what I have. I was very disappointed with the infectious disease guy I saw. He didn't even TEST me for Lyme! He was basically "sure" I didn't have it!

I also went there to see a specialist about another condition I have since been diagnosed with, and he blew me off too. He actually had a much less experienced doctor ask me some questions, then that guy decided I didn't need to see the doctor I had an appointment with!

Those are just my experiences though. I know people that have great things to say about Mayo, but they went for totally different reasons. I think if you have something straightforward wrong with you, they probably are good at treating it.

But, I feel like they are very apt to dismiss people with Lyme. So, if you bring up Lyme, and you have been treated already with antibiotics or whatever, they will probably be like, "sorry, you don't have it, but we will send you to our psychiatry wing."

Good luck!

Posts: 4590 | From Midwest | Registered: Jun 2008 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

I heard very bad things about CHOP from a Lyme Seminar about 3 weeks ago where they kept a kid w/ Lyme locked up and would not let their parents visit for 2-3 days, until the kid did some exercise on a treadmill and other efforts.

Sounded crazy to me.

What are you looking for as far as a pain clinic?

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

jblral
LymeNet Contributor
Member # 8836

posted

I tried to send you a private message, but your mailbox is full. I have some info for you, but prefer not to post it publicly.

Posts: 991 | From California | Registered: Feb 2006 | IP: Logged |

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

I'll have to clean out my mailbox.

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

ANY good news?

Any GOOD news?

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

/\ /\ /\ /\ /\ /\ /\

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

I know an old lady who lives in a shoe....

I think I'd go to her or Captain Kangaroo...

Before I would go to the HOLD-THE-MAYO Clinic... or their partners in crime.. CHOP.

And before you ask... Hopkins is on that list too.

Save your money, your energy and tons of frustration. I highly recommend against them all. Sorry!!!

Of course that is my opinion.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

And just what are you implying Ms. Smarty Pants????

Rather than "Any news is good news"....

All news is bad news.

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-

magnesium, calcium and B-vitamins and certian oils have helped my pain decrease a lot.

being gluten-free, too, helps the pain decrease tremendously.

An herb, cordydalis has many abstracts on being effective to reduce pain (at PubMed's site).

QEEG or neurofeedback has been a tool that has helped some, too, though not enough without other measures.

And, when I can, weekly - or twice weekly massage is the best tool.

All these can also be useful for children. Acupuncture, too.

-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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