posted
I haven't been on antibiotics since November 06. My doctor was "put out of business" temporarily and I just didn't have the strength to try to find another out of state doctor to help me.
Feelinglike I am starting all over as a newbie.
Starting this past Monday, I am on 200mg dox twice a day and 500 mg Zithromax twice a day. First day didn't count, I couldn't keep anything down. But after 5 days, is it possible I am herxing already?
Terrible nerve pain, tired (of course) stabbing pains in my eyes. Insomnia way worse, I think that is just because the pain keeps waking me up. Just generally feel terrible. Of course this is Saturday so I can't call.
Everything is worse at night but now it is getting really bad during the day.
If I know this is normal I can suck it up and deal with it. I have so much to do around the house and to take care of my horses. If someone is out there? I have ignored my Lyme for so long. In January my local primary care (who is sympathetic but not a LLMD) told me that I was seriously relapsing and that I needed to start addressing it either with some kind of holistic protocol or find a LLMD to start antibiotics again. I literally told her that there is not Lyme Disease in our state. Hadn't she heard? I do not have Lyme Disease. She allowed me to have my little fit. And then said that we both know that is not true and I need to take care of myself. So now I am back with my LLMD, doing antibiotics again and I feel worse. Didn't think I would herx so soon. Is it all in my head?
Will appreciate any responses, can't talk to anyone about this, no one understands... Thanks....
Posts: 49 | From Florida | Registered: Dec 2003
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Thanks to all who posted... Yes, I am very lucky with my primary care person. She keeps up with Lyme developments, but knows enough to know when to refer to LLMD. I'm glad she "gently nudged me back to LLMD" and glad he is back in practice. I imagine we all have a special place in our hearts for our LLMD's. When they shut mind down, I nearly gave up entirely. But he had helped me get so much better... So now back to work... I think we all get sick of being treated.
I know this sounds awful, but sometimes I envy cancer patients. They genereally go through treatment (which is horrible) but then they get well or die. I hate living in the middle, never getting well enough to resume life, not dying... At least for me, I live in this beteen world of pain. The fatigue is dibilitating and no one really cares. They just don't want to hear about it. Even with a diagnosis, because the the doctor situation, most people still think I am malingering. My husband, who is supportive, just tells me never to tell anyone I have Lyme disease. No one truly understands. Not happy to be herxing again. Finally was able to get some real sleep, but wke up to all nerve ending being on fire. Have never had this trouble nausea before. They gave me something for nausea, but it is still tricky keeping pills down. Thanks for lettting me know it is not in my head. Don't mind me... Just herxing Of all the things I've lost, I miss my mind the most.
Posts: 49 | From Florida | Registered: Dec 2003
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