posted
ok so i just started artemesia today for babesia...
a couple of hours after my first dose, i felt the inner tremblings that i haven't felt in a while...
is that a herx or is it that i am intolerant?
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i just started this as well and had to back off it. It made me feel really ill, and now my bladder is all flared up. I have interstitial cystitis.
I think that you can herx off this stuff pretty quickly.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I am going to start Nutricology's "Super Artemisinin" in a few days. It apparently has the oil from the leaves in it besides just the normal ingredient. Is that safe? Could that be toxic?
Sorry, I can't answer your question though, nyjohn. How much are you taking and how many times per day? I will probably be able to compare notes with you in a couple days once I start.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
i am supposed to take 3 pills a day of zhang art.
i took the second one about 2 hours ago and i saw an increasein my heart flutter feeling, then a sharp pain shot through the chest/heart.
i don't think i want to take it again!
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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posted
I am taking ozonated oils. The first ingredient listed is art. It makes me tremble and my heart race as well. I have never had these symptoms prior to starting gamma rizol.
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Well how many grams of art are in these supplements? Just curious.
Also, see if the ingredients include "whole plant." I am TOTALLY not sure on this, so don't quote me or believe me, but I thought I heard this can be more toxic, the whole plant. I don't know if that's what the person meant whose opinion I read.....so I am afraid to say anything about it.
I might have read that on this website.
Who knows. Maybe someone can chime in to help me out here.
Posts: 4590 | From Midwest | Registered: Jun 2008
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daise
Unregistered
posted
Hi everyone,
I'm taking Mepron and I had started out slowly. By about day 3, I was taking my full dose--one teaspoon, twice a day. I got a very hard herx in about 4 - 5 days.
After that, I had a herx nearly all the time for weeks.
Then when herxes were less intense, I added artemisinin (I'm glad I didn't start out right away with both--it was my LLMD's advice to bring in artemisinin later, thank goodness.)
It's by NutriCology.
It doesn't say "super." The serving size is two capsules (I started out slowly with this, too.) I take 2 capsules, twice a day, with Mepron.
45 servings per bottle. Artemisinin, 200 mg. for every 2 capsules. There are no other ingredients, other than the veggie cap.
After about ten days I decided to go with the idea of artemisinin for 4 days, then off 4 days, then on again for 4 days. I decided to go with this idea because I'm poor!
By the way--If anyone takes Mepron, you need 23 mg. of FAT (YUCH!) twice a day with the Mepron, so that it will absorb well.
My pharmacy information didn't say anything about 23 mg of fat. (From Walgreen's.)
My LLMD said to take some of that fat as fatty meat. Smart Balance spread counts. As does fish oil and Smart Balance peanut butter.
posted
Dr. James Schaller has published several books about the herb, babesia, and bartonella, as well as others.
I've read several of his books and of those, I think they're well written and quite informative.
I can't remember the exact names of them, but if you go to Amazon and search their books, using the advanced search with just his name, then they'll come up.
If you Google his name, you'll find his website too.
You might want to think about reading one or more of them, especially the one about the herb.
That one will answer alot of your questions about it and then some.
You can find it on Amazon.
If you decide to buy any books from there, just be sure to access it through Lymenet, because Lymenet receives a certain percentage (I forget how much) of what you spend there, which helps to keep it going.
He also does phone consultations, if you are interested, which you can get more information about on his website.
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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posted
whoops sorry, hoosiers, i answered your question in a different art post that you started
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I took that and had to start low and it took a week to build up to the full dose which I then stayed on for two 40-day cycles
Call your doctor or Call Dr. Z. - he is wonderful about answering questions. It helps if you have read the book first, though. It also helps answer many questions.
Are you also taking the other items? They are meant to go together to balance.
This does use the Cytochrome P-450 detox pathway, so be gentle. Liver support is very helpful while on this, too.
In any case, contact him. I think he answers calls on T, Tu, and Sat.
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Can't answer your particular question, but I can say that there was a very interesting presentation at the HHV-6 conference about artemesia being effective against the herpes viruses.
You may want to get tested for HHV-6 and EBV if you haven't been tested.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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daise
Unregistered
posted
Hi timaca,
Yes and just to turn it around as food for thought, perhaps they ALSO have babesia:
quote: From the website:
The 6th International Conference on HHV-6 & 7 and satellite conference on Viruses in CFS held in Baltimore June 19- 23rd were very successful, with over 230 scientists and clinicians in attendance. We were also pleased to welcome representatives from five drug companies and half-dozen diagnostic companies who are exploring therapeutic options and new diagnostic assays.
[Note: I bolded the above.]
It makes you wonder ... bacause the above attendees, it would seem, would not be interested in babesia as it's part of the chronic Lyme disease field--the disease that does not exist (HA!)
posted
i had lots of blood drawn a few weeks ago...i haven't been told i have hhv6 or ebv as of yet... geez i hope not!!
i stopped biaxin till tuesday then giving it another shot
i am supposed to be on mepron but my insurance won't cover it and i cannot afford it.
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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daise
Unregistered
posted
Hi NY John,
I love how you're hanging in there with us--it shows how much you care about yourself.
1.) Perhaps this link will help and especially the Prescription Hope website listed toward the end of this first post:
2.) My experience was that my IV Rocephen for Lyme was turned down 2 or 3 times by the formulary department of my insurance company. Same with LA Bicillin shots and biaxin.
These three drugs were turned down at different times, multiple times.
I never had a chance to appeal--I didn't have to! A doctor paid them a visit IN PERSON. He works for the insurance company in administration and is familiar with chronic Lyme. Thank goodness.
IDEA: Ask your support group if they know of such a person at your insurance company, locally.
When he showed up IN PERSON with the formulary people--yes, they approved it! All they needed was someone who could dot their "i's" for them and cross their "t's," too.
They could then pass the paperwork on. However, it took a long time.
He went there three times: once for each drug.
3.) Many have gone to their state insurance board, that is, if your state allows outside appeals. If so, then the insurance company really does not want you to call or write or appeal.
They really don't--no no--because typically these state boards keep track of the number of all call and letters with complaints, and appeals and use it to RATE insurance companies--and that hits them in their profits from sales.
Appeals cost the insurance company money.
Their sales department will get huffy with insurance management because it hurts sales.
4.) Does your state have a state program that pays for meds prescribed by doctors--meds your insurance doesn't pay for? You may have to do some digging.
5.) I got myself a nurse case manager with the insurance company (sometimes called "care coordinators." See your insurance booklet.)
You may have to be persistent and creative. It took my calling the state insurance board and then calling back and telling the nurse case manager department where I'd called to complain and with whom I talked with and how long we talked! (I had a script, because my Lyme-brain, well, you know ...)
They're free. They help coordinate things for ill people with complicated illnesses. Perhaps one could go to bat for you with ILADS documents?
Go to www.ilads.org and scour their website for documents to give the nurse case manager.
I'm sorry that nearly all of us have to fight for what we need.
posted
thanks so much luckily my pcp is also an llmd!! so, my actual llmd, which is not my primary, but based right down the road, is going to contact my pcp and ask him to write a script for mepron. then insurance might approve it.
they won't approve it because my llmd is not recognized by insurance (we all know why)...
but, my pcp/llmd is...so as long as he jives with my treating doctor's approach, then i will be good to go. so the theory goes.
otherwise, i am going with an external appeals via the nyc insurance. or another option you suggested.
thanks again, john
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
daise~
I attended the HHV-6 conference. I'm pleased to say that Dr. Montoya, who presented twice, stated that it is very important to look for co-infections in patients. He put up a slide listing many co-infections....borrelia was one.
He is very aware that a person may have more than one pathogen making them ill. I know it was a topic of concern among the doctors. They are eager to help their patients get well.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
So I have started the Artemisinin....so far I have taken 200mg morning and 200mg at night. The first dose, I felt a weird burst of energy and my heart felt like it was beating faster and stronger...I was laying in bed (it was the night dose), and my pulse was about 15 beats faster per min than usual.
Today, day 2, didn't really notice that as much, but maybe a little. I am hopeful about this treatment (as a supplement to my Mepron/Zith); it does seem like it is doing something, and I have this strange intuition that it is killing something, and I am not seeing bad or annoying side effects yet.
How is it going for you, nyjohn?
Posts: 4590 | From Midwest | Registered: Jun 2008
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daise
Unregistered
posted
Hi timaca,
Yes, I'm aware of virus testing.
I was just making an observation.
Did it appear that, in general, they were aware of tick borne illnesses?
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