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» LymeNet Flash » Questions and Discussion » Medical Questions » Chlamydia Pneumonia: Can anyone enlighten me?

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Author Topic: Chlamydia Pneumonia: Can anyone enlighten me?
Hoosiers51
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I have heard this can be a big deal, and a source of a lot of fatigue for people.

I do have symptoms indicative of pneumonia, not to mention all the other "Lyme-like" symptoms some people attribute to it!

I did test positive for it through bloodwork, though I believe it was "prior infection." Can't remember.

Since then, I have been on the Doxy and Zithromax protocols (for my Lyme), but have only used Flagyl briefly.

Does anyone have opinions about this pathogen? Any surefire ways to get rid of it if I do indeed have it active? Is it even a big deal?

Thanks!

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Keebler
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-

I got back very high results for this two months ago - for persistent, chronic. The norm was 16 and my levels were over a thousand for one and a couple hundred for another. They should test the IgA, IgG and IgM.

===============================================

Spring 2008:
http://sacfs.asn.au/download/Nicolson_6LabMedicine2008ss.pdf

CHRONIC BACTERIAL AND VIRAL INFECTIONS IN NEURODEGENERATIVE AND NERUOBEHAVORIAL DISEASES
-
Garth L. Nicolson, PhD

(Department of Molecular Pathology, The Institute for Molecular Medicine, Huntington Beach, CA)
LABMEDICINE

Additional research on chronic Cpn can be found at www.cpnhelp.org - research article tab upper right of page.

The author has quite an extensive web site at www.immed.org where work on mycoplasma is also detailed. He also details testing for some other chronic stealth infections such as HHV-6.


===============================================

CPN HELP www.cpnhelp.org

=================================================

Surefire ways to get rid of it? Well, my head is pretty much reeling as it seems as involved - and with various stages and forms - as lyme.

Treatment protocols pivot on the works of Dr. Whelton (in the UK) and a Dr. Stratton (at Vanderbilt Univ.).

Much of their research can be found at the Cpn Help link above. at the top right of the page, there is a tab for reasearch.

Some of this protocol mirrors that of lyme. However, not exactly, so it's important if trying to co-treat to know the details.

It would also be interesting to consult the works of Buhner and of Zhang (as well as others) in the area of complementary medicine regarding this.

================================================

www.immunesupport.com/library/showarticle.cfm?id=7938&t=CFIDS_FM

Chlamydia Pneumoniae in Chronic Fatigue Syndrome and Fibromyalgia - An Opinion, by Patient Advocate James Kepner

04-23-2007

- full article at link.


--

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
timaca
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See www.cpnhelp.org for further info.

Best,
Timaca

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
slayadragon
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Some thoughts/issues about cpn.

My last test showed a really high IgG for cpn. I think (but am not sure) that these tests are accurate.

My doctor states that it is hard to separate the effects of lyme from cpn, since they often occur in the same patients and respond to the same treatments (doxy, minocin and more "natural" stuff). It seemed to me that he believed that whichever was a problem, it was reasonable to treat with antibiotics until die-off ceased, however long that took.

(He's more of a CFS doctor than LLMD.)

Last fall, I was having quite a lot of lung problems. I was having problems breathing and had fluid in my lungs. It felt like a mild version of the "real" pneumonia I had in college. It went on for months.

The thing that worked wonders for this was colloidal silver in a nebulizer. It cleared the problem up immediately, within a couple of hours. I had to keep using it or the problem would come back.

A while after that, I discovered that my house had a toxic mold problem and moved out. I only had to use the colloidal silver a few more times for the lung problem. Then it went away completely.

It could be that some sort of poison mold (penicillium species) was growing in my lungs, though I am suspicious of that since to my knowledge the kinds of mold that grow in people are not what I had in my house.

I think it's that the mold shot holes in my immune system, allowing cpn and other things to grow in my lungs.

Eventually I'll re-test the cpn and see if there's been a fall in that problem.

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timaca
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I was tested for Cpn at Focus Diagnostics Lab in CA. My IgG titer was 1:512, my IgA titer was as high as the lab measured at >=1:256. The ID doctor is treating me based on those titers. I did have a significant herx from the doxy he put me on.

You cannot tell the difference between lyme, viral and Cpn illness by symptoms. The symptoms are the same.

Best,
Timaca

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Keebler
Honored Contributor (25K+ posts)
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-

Of note: Chlamydia pneumonia can affect the lungs, but it is far beyond what we've thought about "pneumonia" - it can be a full body systemic infection, too. It can get into the brain, just as Bb. The heart, too, may be affected.

Yes, it's very much like Bb in many ways and so is the treatment.

NAC is one of the most important supplement in the treatment of Cpn. Strict attention to prevent porphryia reactions, too, in helping to minimize herx.

More through links above about that: www.cpnhelp.org - be sure to go to the menu bar along the top for research links.


-

My tests were done through Oregon Medical Laboratories in Springfield, OR - but performed at Specialty Laboratories, Inc. in Valencia, CA. (4-08). Cpn: IgG; IgA; IgM. - HHV-6, too.

-

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bettyg
Unregistered


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slayadragon,

welcome to the board; glad you found us.


please UPDATE MY PROFILE and ENABLE private messages found at the bottom of the profile. it's how we send LLMD, lyme literate md, names, etc.


it's also how i send my newbie package to folks; read below....thank you! no way to contact you directly.

********************

WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?


I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!


also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.


most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!


If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
******************************

we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics.


400 mg daily; 200 mg am/pm each 12 hrs. apart!
***********************************************


so glad you found dr. burrascano's 05 lyme guidelines!


call your dr. and DEMAND MORE! you are now in the LYME WAR CONTROVERSY ... another thing you didn't ask for!


please see BELOW LINK about ACTION ALERTS....CALLING 4 WASH. DC PHONE NOS. GIVING THEM YOUR FULL NAME/COMPLETE MAILING ADDRESS AND TO "PUT LYME DISEASE ON THEIR AGENDA!"!!!!

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=8;t=001271

******************************************

short/sweet version is this:


IDSA, infectious disease society of america, are infectious drs. who:

.. do NOT believe in CHRONIC LYME;

.. treat from 1 day to 3 weeks MAX ANTITIOBICS, AND YOU ARE "CURED"! HOG WASH!!


ILADS, intl lyme associated disease society, are our LLMDS, LYME LITERATE MDS, and they:


... believe in chronic lyme AND TREAT US AS LONG AS NECESSARY!!!


... another controversy; various STATE HEALTH DEPTS. FILING CHARGES on our llmds for treating antibiotics longer than 4 weeks!!!


example: see activism; read about DR. CHARLES RAY JONES, KIDS NO. 1 LLMD IN CONN! starting his 3rd year of charges trying to take away his license!!!

*********************

Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.


We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!

Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.


We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!

So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there!  Betty
*******************************************

When you post or reply, please break up your solid, continuous block text [Smile]


welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.


IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.


specifically, delete the first 4 characters of 2ND LINE of a ""


[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. [Frown]

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